MS Connection Blog


Anyone Got the Holiday Blues?

So, the holidays are approaching fast. There are presents to buy, friends and relatives to see, get-togethers to plan or attend, and meals to prepare or share. No wonder many of us greet this season with a mixture of excitement and panic – it’s easy to feel overwhelmed. And for anyone living with the overpowering fatigue of MS, just the thought of all this activity can be exhausting.

For some people the pressure to feel jolly, festive, social and grateful can have the opposite effect – leading to a whopping case of the holiday blues. We’ve all had them at one time or another, but MS can sometimes bring on those blues with a vengeance, particularly when MS symptoms make everything a little less fun and a little more challenging.

Soul Sister: Something’s Missing

“Hi Karen. This is Carol. Dr. G said I should talk with you about my MS.”   I was surprised by the call.  When the nurse asked me if I would speak with Carol, I willingly gave her my phone number – two years ago!  Two years later, Carol was ready to talk. I thought that she might ask about topics like how to handle fatigue, best ways to prepare for travel, how to manage symptoms, challenges of medications, injections, and physical therapy...

Hands at Heart Center

When I teach yoga, a few minutes into class I invite students to join me in bringing hands together at heart center in the universal gesture of gratitude and to pause for a moment to take note of something for which they are indeed grateful. “It can be anything,” I tell them. “A person, a pet, this warm sunny morning, the fact that you get to do yoga.” Once they’ve identified that which they are grateful for, I encourage them to allow that spirit of gratitude to inform their practice that morning. To me, that’s one of the most important moments in the whole class. Because while all the downward-facing dogs and triangle poses are fun and make the body and mind feel good, the opportunity to connect with our sense of gratitude offers rewards beyond simply thinking a happy thought...

The October Surprise

It had been snowing steadily all afternoon – an unusual event even by Buffalo standards as it was only the second week of October. Big fat flakes that were at first melting but then, began to stick to my very green grass, baskets full of blooming geraniums and the leaves on all the huge trees in my back yard that had not even changed color.   My children, then eight and thirteen, returned from school filled with the excitement that the first snow of the season always brings. As for me, my excitement turned quickly to anxiety when the first of many enormous limbs came crashing down on the deck. This was the start of what now is referred to as “The October Surprise,” one of the most devastating and costly snow storms to ever hit the area...

On Friendship

Over a year ago, I wrote a piece here called “Old Friend,” examining the longest relationship of my adult life—with multiple sclerosis. Having just passed our 28th anniversary together, I’m beginning to understand the ways in which MS has gradually, silently eroded my friendships with people I hold dear. I am no longer a good friend; no longer do I have what it takes. If you lean on me, I just might fall. Literally and figuratively...

MS Fatigue – or a Sleep Disorder?

I am very tired as I write this blog entry. I would love to take a nap, but I’ve got lots of work to do. This is not unusual for me; why do you think I drink so much coffee? I have written before about the difference between garden-variety tiredness caused by lack of sleep and the intense fatigue many people with multiple sclerosis suffer. Of course, a person with chronic fatigue can also experience regular tiredness, especially when we’ve been burning the candle at both ends...

Control Freak

It has taken me a decade to admit that yes, I am a control freak. From wanting the bed made every morning, to checking in three times to see if my husband followed my to-do list when dropping off the baby at daycare:  I have accepted the truth that I am not as laid back as I pretend to be.  I realize it can be a funny or endearing term, but I also know from experience there is a deep-seeded anxiety that lives in all of us control freaks. “If I don’t have the control then I am in danger.” ...

Marijuana & MS: An interview with Dr. Robert Fox

This month, we sat down with Dr. John DeLuca and Dr. Robert Fox to discuss your questions about marijuana and MS, as part of our new Discussion of the Month feature. Read our interview with Dr. Fox of the Cleveland Clinic below. Our interview on marijuana and cognition with Dr. DeLuca can be found here...

Cannabis & Cognition: An interview with Dr. John DeLuca

This month, we sat down with Dr. John DeLuca and Dr. Robert Fox to discuss your questions about marijuana and MS, as part of our new Discussion of the Month feature. Read our interview about marijuana and cognition with Dr. DeLuca, Senior Vice President of Research & Training at Kessler Foundation, below. And check back tomorrow as we talk with Dr. Fox about how to talk to your doctor about marijuana, whether or not to continue on your other medications, what we know about various forms of cannabis and cannabinoids, and more...

Accommodations to get out the vote

When the Americans with Disabilities Act became the law of the land in the summer of 1990, I was probably experiencing early symptoms of multiple sclerosis and didn’t know it. I was physically active and enjoyed international travel and adventure, and sports such as hiking and cross country skiing. I lived and worked in Manhattan, traveled by subway, moved anonymously through crowded streets and retreated to my house in rural upstate NY on weekends. The only “accommodations” I concerned myself with then were the latest modern conveniences. Fast forward 11 or 12 years – I can’t remember exactly. The harsh diagnosis of MS ground to a halt almost everything I had loved to do, physically.

We Must Rally for Medical Research

When I finished graduate school and decided I wanted to do research on neurologic disease, I went to work with one of the first women studying myelin, Dr. Marjorie Lees. Marjorie inspired me to build my research around understanding myelin and oligodendrocytes which are damaged in MS. Over the years, my research has built on her training and kept me focused on identifying how myelin is made and repaired in the brain. There has been very exciting, fast progress over the past two decades in identifying new therapeutics that reduce the immune component of MS, but there remains damage in the central nervous system.
Displaying results 1-11 (of 332)
 |<  < 1 - 2 - 3 - 4 - 5 - 6 - 7 - 8 - 9 - 10  >  >|