MS Connection Blog

Share

My Divine Fairytale

Blog Summary

Getting diagnosed with MS at the age of 17 posed a lot of challenges. Not only was I facing uncertainty when it came to my physical health, but I also wondered what life would be like finding someone who would accept me as I was. Someone who would be willing to take this journey on with me in sickness and in health.

If there is anything that I have learned over the last 29 years of life, it’s that there are no coincidences. Things don’t happen by chance, but rather by divine intervention. I believe there is a purpose in both the good and the bad. Instead of letting this disease take me down a dark path of discouragement and defeat, I refused to let it stop me and trusted that there must be some purpose in it all...

Alone in a Room Full of People

Blog Summary

No one could possibly understand this. This disease is so elusive, yet so real to me. Everybody with this disease seems to have a different set of symptoms, different age of onset or different way of coping. Fifteen years ago, I felt completely alone. No one I knew had MS, and I certainly wasn’t sure how to explain my illness or its symptoms I was dealing with...

A Leg to Stand On

Blog Summary

​Allow me to introduce you to Devin Stratton, a 25-year-old Utah man who captured himself on video accidentally falling off a 150-foot cliff while skiing.   Horrifying, right? He surely didn't survive and, if he did, he's probably paralyzed or hooked up to countless machines keeping him alive... right?...

“You Shouldn't Be Parked There”

Blog Summary

It was cold, wet and miserable outside. It all felt too hard, but I decided to drag myself away from our fireplace and venture out to catch-up with a friend. As we sat in a café immersed in conversation, a lady barged in. Her car was blocked in and she asked whether anyone owned the blue car...

How MS Changed My Marriage

Blog Summary

Our love story began as one of those “only in New York” moments. We met briefly at a lounge in the Lower East Side as I was on my way out, and neither of us got the other’s name or phone number. Like Cinderella’s glass slipper, I had only the description of a cute guy in a grey vest, but it was enough to find him through friends of friends of friends! We went on our first date 24 hours later, and we were married two years after that. My husband quickly started a career as a graphic designer, and he encouraged me to explore my passions until I found the right career as a social worker. We moved to New Jersey to raise our two children in a quiet, suburban setting...

Blessed with MS

Blog Summary

Just from the title of this blog, you may be curious how a person can feel blessed with multiple sclerosis. Well my friend, I’m here to open up about my experience and expand your mind frame! As you know, MS is a chronic disease. This is understandable and well known, but it lacks something more. You see, you’re wonderfully made, and if you didn’t know, now’s the time to acknowledge it. Know that even if your body goes through some changes, it’ll never take away your credibility...

MS at the Airport

Blog Summary

If you have ever taken a flight, you know how stressful airports can be. Some flights run smoothly, while others are delayed with little warning. People walking as slow as they possibly can, others at full sprint. Predicting what a day at the airport will entail is almost impossible.   Basically, no matter how well you prepare, airports are generally one of the most hectic parts of a vacation. Multiple sclerosis adds another hurdle into this mix. After all, large airports, varying temperatures and gate changes test the limits of even the healthiest travelers...

The Mask

Blog Summary

​Living with multiple sclerosis, I often feel like I’m wearing a mask. A disguise of sorts for protection. But sometimes, it’s hard to tell whom I’m protecting more–myself or others around me...

When the Medication Stops Working

Blog Summary

Being diagnosed with MS comes with enough baggage all on its own. But going through two years of a specific form of therapy and hearing the news that the medication hasn’t actually been working? Now that’s its own animal.   Hearing the phrase “we need to switch your medication, you’ve developed new lesions” is never something someone with MS wants to hear. After going through the turmoil of the diagnosis, finishing my bachelor’s degree without my dominant hand, and finally getting back on my feet (literally), the last thing I wanted to hear was that I was still developing lesions...

Flying My Fatigue Flag

Blog Summary

I tried not to make eye contact with her in the elevator while I pushed the button for the floor directly above us. I knew that it was bound to happen sooner or later, and I hoped that by not looking at her, she wouldn’t engage. But it did happen. It only happened just that once, but it was enough to make me feel about an inch tall.   “You’re so lazy!” she exclaimed. It was meant as a joke, but she wasn’t exactly known around the office for being timid or tactful. Joke or not, I immediately went on the defensive. She didn’t know I didn’t sleep well the night before. She didn’t know I could’ve (and would’ve) climbed the stairs, just one floor up, but I chose to conserve my waning energy instead...

Like a Box of Chocolates

Blog Summary

A few Sundays ago, I woke up with a tingling sensation in my left fingertips. It was irritating, but unfortunately when you have MS, waking up with a new or odd sensation is a common occurrence. Life goes on…