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Treating MS

Hair Loss and Techfidera *

Been on Techfidera for 4 years now. The hair loss is almost intolerable. I don't need haircuts anymore since my hair doesn't grow. It's so frizzy and weak, I look like I put my finger in a light socket.  Wanted to share this in case anyone else has experienced this. I also still experience flushing every so… Read More

Anyone else taking Tecfidera?

I began taking Tecfidera about 3 weeks ago after having taken Avonex for over 13 years! I am aware of possible side-effects but would love to hear from others taking.  I have begun experiencing severe indigestion.  Anyone dealing/dealt with this - I am wondering if it goes away over a period of time? Read More


Copaxone injection sites.....they are itching me to insanity!  the backs of my arms are the worse, followed by a very close second on my thighs.....knots and itching....eek!  And by the time it finally goes away, i've made it back to that area in rotation.  anyone have suggestions for the itching?  is there… Read More

Help choosing dmd*

Very confused and overwhelmed my 15 y/o son has just been diagnosed and we have to choose a dmd I've been reading on copaxone, it's a older drug are there better i like the idea of a pill looking at tecfidea also any thoughts Read More

New Treatment*

I had been on Betaseron for approxiametly 4 months, then I had a liver function test and my readings were too high. One of the liver function tests was in the 300's when it was supposed to around 40 or so. Now I have another Neurologist appointment were I should be starting a new treatment. I am a bit upset… Read More

Side Effects......*

This is my first post and its mostly just to rant some of my anxiety/stress with treatment. I was diagnosed in August and feel very fortunate that my symptoms have been mostly managable. I have had tingling and numbness. My worst symptom is fatigue which changes daily.Myfirst treatment was Copaxone. I had… Read More

Copaxone *

Hi all  have had a recent Mri which showed my brain lesions are still the same, my lesions on c1-4 have some resolution but I have a new leison on c5, so they want me to start copaxone 3x per week.  Has as anyone had any experiences of this drug please?. I have been drug free for 15 yrs but in the last 2 yrs… Read More


Some years ago Unitedhealthcare bought optimum mail order drugs and tried to put local independent pharmacies out of the competition by offering cheaper scripts through their mail order. Many of us complained to our state senators and got that situation corrected.  ​Now CVS is buying Aetna Insurance and Amazon… Read More

Tysabri and JC Virus *

So I am entering into my fourth year of being on Tysabri as my treatment and it is really helping me, but from what I remember my doctor telling me I will eventually have to probably be put on another treatment, because eventually I will go from JC negative to positive and I wont be able to be on Tysabri… Read More

Bemer Therapy*

Hi! I am surprised that when I search "Bemer" on this entire site, nothing comes up! I have heard about this for a long while, and the benefits for MS patients. I am a little skeptical but there is a lot of excellent studies and some are on PUBMED, a very re*****ble source.  I am trying it out and plan to buy… Read More

Tecfidera vs Aubagio*

hi was just dianosed on Friday and my dr gave me the choice of these two meds if I want oral.  Just wondering if anyone has thoughts on either.  Been doing some reading but wanted to see if anyone has tried them and how you have made out with them Read More

Stopping Tecfidera side effects*

Can anyone share suggestions or experience when stopping Tecfidera?  I am about to run out and having a difficult time getting all of the pieces to cooperate (new insurance, new pharmacy, new authorization, etc.).  The pieces are moving, just not fast enough.  Biogen has been helpful with an emergency supply… Read More


Hi everyone, I'm newly diagnosed with RRMS on 6/27, finished IV steriod treatments last tuesday.  Started copaxone on Monday.  Cognitively better however I can't get the numbness of extremities, the cramping and spasticity of legs feet to stop.  I am anxious and very frustrated.  I am a nurse and out of work… Read More


Hi! My husband was given the infusions of Ocrevuz last month and I was wondering if anyone else has started them. I would love to hear others thoughts on the drug and keep in touch about any results. Read More

Betaseron to start*

I was diagnosed almost two years ago. Only recently am I doing anything about it I was in denial. So my Problems as I think they relate:   Nerve Pain, Neuropathy, Central neuropathic pain  Allodynia Migraines   Chronic Pain     Muscular Skelton Problems   Ataxia     Numbness, Loss of Sensation… Read More


Hey, is anyone else currently on Lemtrada? It's very frustrating as very few hospitals are REMS certified to be able to administer it. It's very dangerous also. Once I receive it the Dr says that I'll have zero resistance to anything as it will wipe out my immune system by killing all the "b" & "T" cells. It's… Read More