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Treating MS

boisenberry73
Solu medrol IV one dose*

hi i am traveling out of state and am having a flare up of fatigue, numb left face and some vision/ dizziness issues. i went to ER and after 6 hours received one IV treatment. has anyone had success with having just one treatment? I'm torn whether to go back to ER again or just wait it out a little longer… Read More

arlawgirl
Tecfidera

Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

MissNikki320
Choosing a Medication *

I was officially diagnosed with MS on June 14, 2017. I am trying to pick which medicine to start on, I was given a choice of five medicines but it has now been narrowed down to four since I am not a candidate for Tysabri. Any input on the remaining four medicines would be much appreciated. They are: Tecfidera … Read More

irmaveronica
Tecfidera vs. Ocrevus*

Hello, I was diagnosed with RRMS last fall, and have not been on any medication yet. I also have Psoriasis and Psoriatic Arthritis for which I was on Methotrexate and Otezla for.  My Neurologist gave the option to either try Tecfidera or Ocrevus, thinking that they would also help me with my preexisting… Read More

woodsy715
Immediate post injection reaction*

Yesterday was my shot day. I have been on copaxone 40mg 3/xweek for 1.5 years now. I gave the shot in my right stomach and within seconds, my face was flushed and warm, my chest got tight with heart palpitaions, my lips were itchy, and the whole lower half of my right abdomen was swollen around the injection… Read More

myabonita
Aubagio was my decision *

I had my follow up today and went with Aubagio. I'm nervous about all medications but the Gilenya with the whole slow down the heart rate was not my idea of fun. I have asthma and I just get scared about anything that deals with my heart and breathing but I just hope this is a good decision. We figured that my… Read More

mikelann
Secondary progressive MS*

Hello. My mother was diagnosed with MS (relapsing remitting) in 2000. We held steady for awhile but now we are headed downhill VERY fast and are currently in secondary progressive. Her current MS dr who is apparently the best in OKlahoma Has pretty much said there is noting else he can do. Our family feels… Read More

msdaughterbrooklyn

My dad was diagnosed with relapsing-remitting MS around 2002. Since then he has been seeing the same doctor. His doctor hasn't recommended an MRI in three years. Recently, he has taken a turn for the worst- perhaps a flare. Severe cognitive changes and mobility changes. Doctor prescribed steroids and said… Read More

funnycat
Steroid treatment*

Does anybody know what window of time you have to initiate steroid treatment after start of relapse for steroid to be effective. I read on internet 2 weeks. Is there anybody who took steroid after a month of start relapse where it helped them.i recently had to switch to neurologist in same office and new dr… Read More

lu1210
Choosing a treatment, confused and scared*

Hi everyone, I am really confused on choosing my next medication was hoping someone could provide some feedback on their experiences. I was diagnosed in April and started on copaxone, I had no issues with it at first but this month I started to have really bad side effects (full body rashes, chest pain, heart… Read More

tremainemichelle
Side affects and Frustration! *

I have been on 20ml daily Copaxone for a year now. I am so fed up I never liked it to begin with. I don't want them anymore. The bruising and pain in the injection site is really just becoming a pain. Getting ready to go on vacation and looking at my thighs I see nothing but lumps and bruises and I dont want to… Read More

wendycurry
Treating by not treating*

Hi, I'm starting to think drugs are not for me.  I'm wondering if this resonates with anyone.  My first symptom was in 1984.  First optic neuritis around 1990.  Told to "go away" until it got worse.  I only recently had a bad enough flare where I decided to make the diagnosis formal.   My neurologist suggest… Read More

brianb1979

A few weeks back I started a conversation discussing the MS symptoms that were really dragging on me including: tingling in feet and hands, weakness in legs/difficulty walking and severe fatigue.   After talking with two of my neurologists, neither of whom had any suggestions for my symptoms, I decided to turn… Read More

kimberlyj82
Okay, Got the DMD going. Now what?*

So, I have been on Copaxone for one year. I just had my one year follow up MRI and it showed one new lesion. For now the Neurologist is recommending to continue the Copaxone. Anyhow, does anyone take any supplemental meds for fatigue? (I also take D3 and B12). Anyone tried Black Cumin Seed Oil?Naltrexone?I am… Read More

ilene716
Side effects from Avonex *

I am new to this site and was recently diagnosed. I am a wife and mother of a 4 year old and 5 month old and also work full time. I have been on Avonex for a month now and this is my 1st treatment. I'm having trouble with the flu like symptoms. I cannot sleep through them and it's hard to do much while… Read More

gammy32123330
Plexus *

I was just wondering if anyone else has tried using Plexus instead of the traditional medicines that the doctors want to give. I have always been a holistic kind of person and have had a hard time accepting that I would have to take medicine for the rest of my life since my diagnosis. I started taking the… Read More