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Treating MS


Hey all, I struggle with fatigue, like most of us do. What other medications are out there that you've used? Nuvigil is not my friend. Makes me feel sick. I'm planning on asking my doctor, but I'd like to get a better idea of what's out there first. Thanks, Jess Read More

New medication *

My mom was diagnosed with Progressive MS in the late 80's. I was there with her through all of the stages. She has been in a wheelchair and can't walk for the past 20 years! So I'm writing this post to get some advice from all of you out there..... She just got her first dose of the drug named there… Read More

Robotic exoskeletons - so cool

Anybody ever had or used one of these?  The possibilities are so exciting. What is taking them so long to bring them to market for the masses and why in the world are they so expensive (geesh...for $150K US you could buy a house )????   Imagine being able to go up and down stairs again or walk on uneven… Read More

First time optic neuritis--how urgent is it?

I was diagnosed with MS 3 years ago. This is the first time I'm having symptoms that seem like they might be optic neuritis. -Dull pain in right eye, especially when I move the eye, for the last 2 days. -I have poor vision already, but it's been a bit worse in that eye for the last 2 days. The discrepancy… Read More

Has anyone tried Acthar??*

I'm waiting to get approved for Acthar, as I cannot use steroid Solumedrol. Has anyone here ever used it and what was your experience on it. I'm also currently on Rebif and the fatigue I get from that is pretty bad, has Acthar added to your fatigue as well?  Read More


I am new here, so I don't know if everyone else already knows about this, but there is an app that plans your shot rotation and helps you keep track of everything, you can comment, it shows visuals, it is awesome.  Here is the link… Read More

tecfidera complications*

I have been on tecfidera for 2 years with RRMS and always had issues with my stomach, flushing, nausea .. but I dealt with them.. I stopped it for a month and feel a lot better but my MS symptoms are rolling back in .. so now I feel the pressure to start it again.. but all that talk about PML and low white… Read More

Interferon therapy*

Due to lack of insurance I have been off interferon treatment for about two years. I was diagnosed in '03 w/relapsing remitting MS. I have not experienced any change in the two years I have been off Rebif, except that I feel better. Now I have an opportunity to start interferon therapy again and I really don't… Read More

Low white blood cells and tecfidera*

I have been on tecfidera for a year and just had blood work.  Some of my white blood cells are below the acceptable level and one is high a along with uric acid.  Has anyone had this happen. If so what was done about it? I am waiting to talk to my dr about it and wonder about others experiencing this  Read More

What oral meds are good?*

I have been on Rebif since diagnosed in 2013 now the MD wants to change me to an oral med like Aubagio. Gilenya, or Tecfidera.  I know not eveyone is the same but anyone who is on any of these can you share your opinion?  I am a litter scared of Tecfidera because of the PML and Gilenya with the macular edema… Read More

Treating MS with chemo?*

Hi, I was surfing for something might help me to treat ms not only decrease the frequency of relapse symptoms.and I found on youtube some people used chemo but I couldn't find the final results (they're showing only the first day). So I am asking if anyone has any kind of information?  Read More

Betaseron vs. Capaxone

I am reading a book called Overcoming Multiple Sclerosis. In the chapter on interferons I learned about the medication Copaxone. I was stunned to learn there are no flu like symptoms and no need to have blood drawn. My doctor's office called the other day and the nurse stated that my white blood count is low… Read More


Hey everyone! My name is Madeline, I was recently diagnosed with RRMS and I have been put on copaxone.. I understand that everyone reacts to things differently and that no one's MS is the same.. but I start this medicine Saturday, and I just want to know from people that are on copaxone how effective it has… Read More


Hi. I started on Avonex the first of this year. At first I had the flu-like symptoms for about 4 months and then I started to have severe headaches for 2 days after my shot. I thought this was just more of the "flu-like" symptoms and just tried to get through it. No pain medication helped the headaches and the… Read More