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Treating MS


Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

Choosing a Medication *

I was officially diagnosed with MS on June 14, 2017. I am trying to pick which medicine to start on, I was given a choice of five medicines but it has now been narrowed down to four since I am not a candidate for Tysabri. Any input on the remaining four medicines would be much appreciated. They are: Tecfidera … Read More

Tecfidera vs. Ocrevus*

Hello, I was diagnosed with RRMS last fall, and have not been on any medication yet. I also have Psoriasis and Psoriatic Arthritis for which I was on Methotrexate and Otezla for.  My Neurologist gave the option to either try Tecfidera or Ocrevus, thinking that they would also help me with my preexisting… Read More

Aubagio was my decision *

I had my follow up today and went with Aubagio. I'm nervous about all medications but the Gilenya with the whole slow down the heart rate was not my idea of fun. I have asthma and I just get scared about anything that deals with my heart and breathing but I just hope this is a good decision. We figured that my… Read More

Secondary progressive MS*

Hello. My mother was diagnosed with MS (relapsing remitting) in 2000. We held steady for awhile but now we are headed downhill VERY fast and are currently in secondary progressive. Her current MS dr who is apparently the best in OKlahoma Has pretty much said there is noting else he can do. Our family feels… Read More


My dad was diagnosed with relapsing-remitting MS around 2002. Since then he has been seeing the same doctor. His doctor hasn't recommended an MRI in three years. Recently, he has taken a turn for the worst- perhaps a flare. Severe cognitive changes and mobility changes. Doctor prescribed steroids and said… Read More

Steroid treatment*

Does anybody know what window of time you have to initiate steroid treatment after start of relapse for steroid to be effective. I read on internet 2 weeks. Is there anybody who took steroid after a month of start relapse where it helped them.i recently had to switch to neurologist in same office and new dr… Read More

Choosing a treatment, confused and scared*

Hi everyone, I am really confused on choosing my next medication was hoping someone could provide some feedback on their experiences. I was diagnosed in April and started on copaxone, I had no issues with it at first but this month I started to have really bad side effects (full body rashes, chest pain, heart… Read More

Side affects and Frustration! *

I have been on 20ml daily Copaxone for a year now. I am so fed up I never liked it to begin with. I don't want them anymore. The bruising and pain in the injection site is really just becoming a pain. Getting ready to go on vacation and looking at my thighs I see nothing but lumps and bruises and I dont want to… Read More

Treating by not treating*

Hi, I'm starting to think drugs are not for me.  I'm wondering if this resonates with anyone.  My first symptom was in 1984.  First optic neuritis around 1990.  Told to "go away" until it got worse.  I only recently had a bad enough flare where I decided to make the diagnosis formal.   My neurologist suggest… Read More


A few weeks back I started a conversation discussing the MS symptoms that were really dragging on me including: tingling in feet and hands, weakness in legs/difficulty walking and severe fatigue.   After talking with two of my neurologists, neither of whom had any suggestions for my symptoms, I decided to turn… Read More

Okay, Got the DMD going. Now what?*

So, I have been on Copaxone for one year. I just had my one year follow up MRI and it showed one new lesion. For now the Neurologist is recommending to continue the Copaxone. Anyhow, does anyone take any supplemental meds for fatigue? (I also take D3 and B12). Anyone tried Black Cumin Seed Oil?Naltrexone?I am… Read More

Side effects from Avonex *

I am new to this site and was recently diagnosed. I am a wife and mother of a 4 year old and 5 month old and also work full time. I have been on Avonex for a month now and this is my 1st treatment. I'm having trouble with the flu like symptoms. I cannot sleep through them and it's hard to do much while… Read More

Plexus *

I was just wondering if anyone else has tried using Plexus instead of the traditional medicines that the doctors want to give. I have always been a holistic kind of person and have had a hard time accepting that I would have to take medicine for the rest of my life since my diagnosis. I started taking the… Read More


Hi all!  I was diagnosed with RRMS about 5 years ago.  I've been on Avonex since my initial diagnosis.  I am actually switching over to Plegridy and my first injection is today.  I was just wondering if anybody has started this medication yet and if so what are the side effects that I should be aware of if… Read More

Hair loss and copaxone*

Hi everyone, i have been been taking Copaxone for two months now (diagnosed about 4 months ago) and for the last three weeks have been experiencing way more than usual hair loss and hair thinning. I heard this is a rare but possible side effect of Copaxone. Some people say it could be shock of the diagnosis… Read More