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  • CowboysnAngels
    Newly diagnosed 10/22.  My neurologis has put me on Vitamin D 5000/day, a B12 Nasal spray (if my insurance approves it).  I also bought Krill oil which is 300mg.  Now I am hearing from others that I should be taking Vitamin E as well as Potassium.  Help!  Can anyone tell me what they have been told or are using or just help me out with some good info here please?  Should I consider a multi-vitamin for the E&Potassium maybe??
  • seenjo11
    Magnesium / Spirulina / B-complex / mega amounts of D / Co Q-10 / fish oil / Turmeric / and a multi. That's my alphabet soup. And I use my juicer daily. I haven't been told to use any of these specifically. Some have been recommended by the good folks here since Dx (4.4.12) and some I have been taking for years.
  • sarahsmom

    seenjo11 wrote: Magnesium / Spirulina / B-complex / mega amounts of D / Co Q-10 / fish oil / Turmeric / and a multi. That's my alphabet soup. And I use my juicer daily. I haven't been told to use any of these specifically. Some have been recommended by the good folks here since Dx (4.4.12) and some I have been taking for years.

    Are you on any medication?  We're trying to find out if there are any contra-indications to Tysabri, when our daugter starts the infusion in one week.  She's doing ALL the same natural things, you are doing, too.   Any word on whether gluten free has worked for you? grain free? dairy free? soy free? so much to learn.. (-:  Thank you.

  • sarah_all1

    seenjo11 wrote: Magnesium / Spirulina / B-complex / mega amounts of D / Co Q-10 / fish oil / Turmeric / and a multi. That's my alphabet soup. And I use my juicer daily. I haven't been told to use any of these specifically. Some have been recommended by the good folks here since Dx (4.4.12) and some I have been taking for years.

     

    These are what I take too, plus few more. Cal/Mag/Zinc, Evening Primrose oil, Vit E, Vit C, Probiotics. I also just started on Quercetin & Bromelain and Alph-lipoic Acid, as they were recommended in my first MS group meeting. I also just started using maca powder and matcha green tea to get me going without coffee.

    ~sarahsmom, I just had my 11th infusion of Tysabri, and I'm very happy with it. No side effects, and from what I have experienced and asked about, there are really no contraindications.

    I have been gluten free for that whole time, and 99% dairy free (I'll cheat on a good GF cookie made with butter, and started eating goat cheese again). I use coconut oil for just about everything. I can't say that I've noticed any differences, but I have always eaten very healthy food. I'm a fish-eating vegetarian, so I love fruit and veggies and eat as much as I can, mostly organic. The important thing is keeping your gut healthy, and not letting the gluten and dairy allow unhealthy things get into the blood stream. Don't give the white blood cells anything else to fight!

    I think just a good healthy diet along with the vitamins/supplements and the Tysabri have worked together to keep me mostly symptom-free for almost a year.

    I hope the Tysabri works well for your daughter!

    ~Sarah

  • Curmudgeon
    I was diagnosed in April of this year, I am on Magnesium, CQ10, & Vit D.  It has definitely helped with my energy levels.
    Good luck
  • anita1961

    My name is Anita I am 52 years old and was diagnosed 2004 ( RM ) using Avonex injection 1 x week and this week 4-8-2014 I will start with vit.D and visoil

    wish you all the best

    kind regards

    Anita ( asweessies@hotmail.nl )

    hope to hear from you !!!!

  • Appgirlie
    I was diagnosed Sept 30th.  My neurologis also told me to take Vitamin D (my levels were slightly low).  She also suggested Flax Seed Oil supplements. Fish oil is something she said is good too, so I am sure the krill oil is a good idea.  Not sure about the Potassium or Vitamin E.  A good muli vitamin is always good for overall health
  • Maura_G
    I take Vit D, Centrum Sivler, Calcium with magnisium, fish oil and evening primrose (helps iwth inflamation) B12 and Vit E. 

    When I was having cramps I drank pure coconut water, you can buy flavors but make sure it's natural flavors not added suger.  Suger cauases inflamation.  Vita Coco makes a great pineapple and tangarine flavor.  It is loaded with potasium.  I also used to drink tonic water and take a suplement for leg cramps.  Both these have quinine in them. 
    And drink tons of water.  I've  heard, don't know if this is true, but people who drink lots of water have less side effects from meds.  I think the nurse told me this when I went for steriod infusions. 
  • Robgod
    Seemed like an advertisement to me and I clicked on the link.  Surprise, you are selling this stuff.  How about some real proof to your claims?  You said you improved 40% in 30 days, the exact claim this company is making.  I certainly hope you've actually benefited from this stuff and are not taking advantage of these desperate people, in an unfortunate situation.  
  • yolandaangel
    Robgod wrote: Seemed like an advertisement to me and I clicked on the link.  Surprise, you are selling this stuff.  How about some real proof to your claims?  You said you improved 40% in 30 days, the exact claim this company is making.  I certainly hope you've actually benefited from this stuff and are not taking advantage of these desperate people, in an unfortunate situation.  


    I agree;)
  • Kocickasmom

    Coconut water helps me - I get deydrated easily. I used to chug Gatorade all the time, but it has so many chemicals and colorings in it. :-p

    I do have a favorite brand because of the taste, but any of the brands will help replace electrolytes.

  • CowboysnAngels
    Seemed like an advertisement to me and I clicked on the link.  Surprise, you are selling this stuff.  How about some real proof to your claims?  You said you improved 40% in 30 days, the exact claim this company is making.  I certainly hope you've actually benefited from this stuff and are not taking advantage of these desperate people, in an unfortunate situation.  
    Thanks for writing this..I had a sense about it too and just ignored her.  Sickening.
  • CowboysnAngels
    I was diagnosed in April of this year, I am on Magnesium, CQ10, & Vit D.  It has definitely helped with my energy levels.
    Good luck
    Thanks! And great to hear!
  • rainbowbrite

    I should be taking supplements, but I altered my diet instead and stopped taking those 17 pills prescribed for symptoms. This is not recommended by any doctor... so I am not offering any medical advice, just sharing my own, individual, doctor-is-frustrated-with-me experience. But there are no new lesions in the last year since I took matters into my own hands. 

    I researched inflammatory foods, avoid them, and focus on herbs and natural foods which have anti-inflammatory, anti-viral, and anti-microbial affects on the body. Avoiding meats, dairy, and bread (most glutens) has been instrumental in how I feel... and I notice the effects of when I do consume these items in moments of weakness. :D I switched to coconut milk and still enjoy my coffee every morning (the remaining guilty pleasure). 

    Great Spices: Cinnamon, Ginger, Turmeric, Garlic, Oregano, and oh! so much more... (google anti-inflammatory foods and inflammatory food /spices/herbs, eye-opening for me!)

    I avoid ALL processed foods with ingredients I can't translate into normal food speak, too much salt... and NO fast food, nothing with a drive-thru even when I am starving... except celery, raw veggies, those are Great Fast foods especially when fresh picked from my garden. No canned stuff either unless Grandma made it the old fashioned way. Frozen is okay in a pinch to keep stuff on hand, but I watch the additives / ingredients on packaging.

    Also, drinking Tonic water (Avoiding alcohol is critical, so I pretend its a Vodka tonic, lol!) garnished with limes... for the quinine is great for heart and nervous system health.

    This is working for me so far... and also keeping stress to minimal levels. 

    **************************************************

    My favorite recipe packed with good spices: Moroccan Chicken Rub 

    1 tsp cinnamon
    ½ tsp salt
    ½ tsp cumin
    ½ tsp turmeric
    ½ tsp cayenne
    ¼ tsp pepper
    ¼ tsp cardamom
    ¼ tsp ground cloves
    2 tsp brown sugar

    Rub fresh, organic chicken with the above mixture, bake at 350 degrees about 10 minutes, then flip over chicken, then bake additional 10-25 minutes depending on the thickness of the chicken. (When juices run clear, chicken is done... or cut it open and make sure no pink).

    ********************************************************

    I eat the above about 3-5 times a month. When I mix the rub, I increase all the measurements so I have enough to store for next batch. Goes great with Jasmine Rice (not gluten free but tastes so good!), and a slightly steamed green veggie. 

    Again... I am only speaking from my own experience. I was diagnosed in 2011, have good days and bad days, but all those medicines I was taking felt like being poisoned over the last few years. Apparently some side effects also cause suicidal thoughts, too... But thankfully and lately, I am having a long run of Good Days! 

    And when all else fails, I phone a friend, make new friends, or just chill somewhere with nature's remedies... and take a Nap. Love Naps! 

  • naturallyms3180
    I take a lot of different things. You can view my story on my website in my profile. Am looking for people to connect with to see what works for them
  • CowboysnAngels
    I need to ask my neuro I guess.  I am on a blood thinner and a statin for cholesterol.  Since Krill oil I've heard helps to thin the blood, I am worried about thinning it too much; heard that CoQ-10 does also..is that correct?
  • adaustin1971
    I have just recently been diagnosed so not sure about vitamins that help with MS yet, still working on that myself. But I have been a nurse for 23 years and if you are taking any kind of blood thinners or prescribed medications you need to discuss with your doctor before taking a lot of vitamins and different over the counter meds. A lot of these can counteract the effects of your prescription meds or react badly with them. As far as potassium supplements and magnesium, things like that it depends on what your levels are and what your kidney function is. To much or to little of either of these can cause muscle problems and have adverse effects on your heart. Sorry for the long discussion but I have seen people get into a lot of difficulty mixing prescriptions and otc meds over the years.
  • belladesnuda

    I follow the Terry Wahls Diet, and in her book and website she reviews all of the vitamins you need. She also goes over how you can get those vitamins from food instead of taking so many pills.  So if you want a food based way to get more nutrients, I would suggest looking into her stuff.  Hopefully you can find some help there!

     

  • seenjo11
    I honestly don't know. I don't take it every day....more like every 2 days. And like I mentioned I had read about others using it as part of their regimen so I thought I would try it....which may sound like an anemic approach to 'treatment' but I have a preference for options I can attempt in a cost effective and natural way. I'm not anti-med by any means but I do like the idea of combinations or cocktails if you will. Catalysts maybe to aid the Avonex. We'll see in mid-Dec when I have my 2nd MRI.
  • CowboysnAngels
    Thanks seenjo11 and good luck with your MRI!!

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