Hi Rob, First I must say, I am not prescribing by informing you what I am taking and what makes me feel better, do not believe anything i say, find the truth for yourself. I take vit D 5000 uts daily as well as vit E 400 uts Vit C 500 mg along with B complex 2 days a week as prescribed by doctors. Then on my own I take Omega 3 caps and probiotics.
Last week with the neuro we stopped the betaseron I have been on since 1993, he said it will be three months for the stuff to leave my body. I am on 5 mg baclofen twice a day and 400mg gamabentin twice a day. The newest script is for pain carbamazepine right now i am on 100 mg twice a day with food because on of the side effects is a dangereous rash, if i dont get a rash i move up to 200 mg twice a day. The drug is used for seizures and NERVE PAIN which is why it was prescribed for me. It has only been a week. In the first two days I had drilling pain in every place along with severe spasms which for the first time in more than two years I was able to relax the muscles every time they went into spasm. But so far, I am waiting to see what will happen when i get to full dose for a bit.
Keeping my muscles soft is my daily goal and is always on my mind first before anything else. That is what I look at when i wake and during the day, my canary to feeling well. Deep breathing exercises work for me too.
In the treating ms topic I posted all my notes from the Take Charge of My Ms Project which has given me much insight into a better living strategy.
I went through times of rigid diets and changed my habits and found benefit from them all. Now at almost 70 I eat whatever I want, in moderation. Recently i have begun drinking coffee which i had not for years and years, probably more than twenty. I also enjoy sugar, ie desserts whereas i avoided sugar and the sugar blues(do you know the sugar blues, the effects of the withdrawl of sugar from the system). The coffee and sugar along with modafinil, all help with the ms fatigue and side effects of the other drugs. I also take a small dose of an antidepressant to take the edge off living with an old man who is having memory problems that are getting worse. Eating whatever i want is my last pleasure and hopefully getting off the betaseron will show that it helps me retain pounds. haha. Making fun of everything i can is my favorite past time, laughing at everything too, except ignorance, that makes me sad. Doing my best all the time is important, the little i do do. do do, haha. And also as beaury says, choosing to be happy, weighing and balancing the scale to find all the better to balance the worse. And working hard at giggle giggle giggle