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  • Denise4
    For 7 months now, I've been suffering from severe constipation as a result of slow colonic transit and some pelvic floor disfunction.  I was diagnosed with RRMS in October 2008. I have been hospitalized 3 times with blockage that resulted in a severely dialated colon. Since my last hospitalization, I've been perscribed medications and "home kits" to take all measures needed to stay out of the hospital. It has been recommended by my GI doc and referred Colorectal Surgeon to undergo surgery for an ileostomy. I have managed to get an appointment at the Mayo Clinic in Rochester for May 1, but am not certain that I will be able to make it another 6 weeks without another hospitalization and/or surgical intervention. I've done some looking on the internet for cases where MS and constipation leads to an ileostomy but can't find a great deal of information to support my situation. Is there anyone out there that can shed some light on my situation.
  • Rhiannon
    I don't know anything about ileostomy, but before undergoing surgery, you may want to ask to be referred to a physical therapist since part of your problem is  due to pelvic floor disfunction.  I saw a physical therapist when I was considering self catherization for my bladder issuses, and thanks to biofeedback therapy I did not have to.   I also struggled with constipation, but it was not nearly as severe as yours.  I benefitted greatly by changing my diet.  I have been on the Best Bet Diet for MS for two years, and things are moving along a lot more smoothly.  

    Here's a link to the diet
    http://www.direct-ms.org/bestbet.html

    Best of Luck!

  • Kay_D
    For 7 months now, I've been suffering from severe constipation as a result of slow colonic transit and some pelvic floor disfunction.  I was diagnosed with RRMS in October 2008. I have been hospitalized 3 times with blockage that resulted in a severely dialated colon. Since my last hospitalization, I've been perscribed medications and "home kits" to take all measures needed to stay out of the hospital. It has been recommended by my GI doc and referred Colorectal Surgeon to undergo surgery for an ileostomy. I have managed to get an appointment at the Mayo Clinic in Rochester for May 1, but am not certain that I will be able to make it another 6 weeks without another hospitalization and/or surgical intervention. I've done some looking on the internet for cases where MS and constipation leads to an ileostomy but can't find a great deal of information to support my situation. Is there anyone out there that can shed some light on my situation.
    After my own hospitalization in December my daughter-in-law an RN bought Sustenex a probiotic that regulates the digestive system. I no longer suffer from bowel issues. Try eating at least two servings of vegetables a day along with one Sustenex tablet a day. You should see great improvement within two weeks. Sustenex can be found at Walmart, Walgreens and other discount stores.
  • mupap
    Great info! I recently came across your blog and have been reading along. I thought I would leave my first comment. I don’t know what to say except that I have.
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  • shorty32982
    Well your insight is good to know.  I go see the gi this friday due to lack of control, blood and then nothing for a week. I go to the urogolist next week. So many issues and I am a emotianl wreck and just knowing someone else has issues in the bathroom too makes me feel like I am not alone.  Thank You
  • Veronica1
    I was chronically constipated for what seemed like years, but was blessed by a natural remedy that works wonders. Mila is truly a miracle seed packed with nutrition and for us the 5 grams of fiber per serving is priceless. I will never not eat Mila. It scrubs your intestines, literally. I have never experienced eliminations like this, even Pre-MS. It just may work for you and prevent further hospital bisits for this symptom. Being so passionate about Mila, I became a distributor of it immediately. Where are you located for purposes of figuring out how to get some Mila to you right away? Otherwise, go to my website for purchase - www.lifemax.net/inthegame. Read testimonials about Mila at www.seed4change.net. Mila is the truth and the way to help body function as it was intended to function. Best wishes! (if there is scattered text, couldn't see all of it while typing - cut off)
  • Denise4
    Shorty32982, I definitely understand the frustration you are feeling. It is not a symptom you want to reveal to friends, co-workers, etc. like you might with numbness, fatigue, etc. I've had to use soap sud enema kits now for the past 3 months in an effort to avoid another bowel obstruction. I've never had a problem with a lack of control. That has got to be miserable as well. I hope your appointment leads to some solutions. Thanks so much for sharing.
  • Denise4
    I don't know anything about ileostomy, but before undergoing surgery, you may want to ask to be referred to a physical therapist since part of your problem is  due to pelvic floor disfunction.  I saw a physical therapist when I was considering self catherization for my bladder issuses, and thanks to biofeedback therapy I did not have to.   I also struggled with constipation, but it was not nearly as severe as yours.  I benefitted greatly by changing my diet.  I have been on the Best Bet Diet for MS for two years, and things are moving along a lot more smoothly.  

    Here's a link to the diet
    http://www.direct-ms.org/bestbet.html

    Best of Luck!

    Rhianna, Thanks for the website.  I've heard that some follow MS specific diets.  I will definitely take a look at the info you sent. I have gone through pelvic floor PT. I actually attended 3 of the expected 4 sessions.  However, the therapy caused spastic pelvic floor muscles each time, causing severe pain that lasted hours. That is when I was sent to the surgeon for additional tests. These tests then led to the conclusion the the severely slow colonic transit was my primary issue and surgery was probably my best and only option. I just want to be sure.  I don't know anyone that WANTS an ileostomy. I've just had a hard time coming to grips with the thought of it all. Thank you so much for reaching out to me with your thoughts and ideas. I appreciate it so much.
  • Rhiannon
    Rhianna, Thanks for the website.  I've heard that some follow MS specific diets.  I will definitely take a look at the info you sent. I have gone through pelvic floor PT. I actually attended 3 of the expected 4 sessions.  However, the therapy caused spastic pelvic floor muscles each time, causing severe pain that lasted hours. That is when I was sent to the surgeon for additional tests. These tests then led to the conclusion the the severely slow colonic transit was my primary issue and surgery was probably my best and only option. I just want to be sure.  I don't know anyone that WANTS an ileostomy. I've just had a hard time coming to grips with the thought of it all. Thank you so much for reaching out to me with your thoughts and ideas. I appreciate it so much.
    You're welcome, I'm sorry I could not be of more help.  After looking up the procedure I can really understand why you would like to find some other alternative.  My Grandma (who does not have MS, but type 1 diabetes and a hypoactive thyroid) suffered with constipation that landed her in the hospital a few times where she almost went into a diabetic coma, that they felt was caused by the constipation.  She has struggled with it and tried everything.  Now she is also on a gluten free, dairy free diet, although I think she still drinks whey shakes. Now she is much more regular and does not need an enema so often.    Also, there is a little recipe the PT gave me, 1 cup oat bran, 1 cup applesauce, 1/4 cup prune juice.  You start out with one tablespoon once a day the first week, work up to two the next, and finally take three tablespoons the third week on.  If you can afford to give the diet a little time it may make a difference.  Did you get a second opinon from another doctor?  I pray that you will have a speedy recovery, which ever option you choose.  
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  • Avatar
    TRY lots of fruits and lots of salad and Two Vit E per day.   LOTS of water or other
    non caffeinated fluids!

    I drink 16 ounces of RED COVER BLOSSOM herb tea nearly every day.

    EAT fruit as much as you can, too!!
  • mupap
    Good artcile. but it would be better if in future you can share more about this subject. Keep posting.
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