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  • charliegirl78
    So here lately I've noticed that my memory is....well, poo.  It's like my once sharp mind is now mush.  By bf lovingly calls me his "Space Cadet" bc he always says my head is in the clouds....It's not that I don't want to remember / listen / absorb...but somehow I've managed to become a person that wonders aimlessly around the house, bc I can't remember what it was that i was JUST ABOUT TO DO.  So frustrating.  Anyone else?
  • shorty32982
    You are not the only one.  If I have a doctor appt my husband has to put it on his phone, on the calendar and a note by the coffee pot.  Then he texts me to make sure I left.  I think I have a little memory problem... huh?  I asked my doctor and he said 95% of patients say this is a problem.  He said do crosswords and read.  That could help but there is no pill for it, not that I need another  pill to my list of 16. 
    Lynette
  • joynerthedad
    So here lately I've noticed that my memory is....well, poo.  It's like my once sharp mind is now mush.  By bf lovingly calls me his "Space Cadet" bc he always says my head is in the clouds....It's not that I don't want to remember / listen / absorb...but somehow I've managed to become a person that wonders aimlessly around the house, bc I can't remember what it was that i was JUST ABOUT TO DO.  So frustrating.  Anyone else?
    Oh no.  I used to tell myself that I was just 'busy'...had a lot more on my mind than I used to...so it was only natural that I would forget things.  How many people do you take up 'brain space' with Interferons - nervous system mapping - get the idea?  I would also tell myself that I was getting older...and forgetting a few things was to be expected.  I think there is a touch of both those things in there - but for a long time there was the one thing I would deny - MS.  It is very frustrating.   The girls and I have placed dry erase boards in the hallway and on the back door.   Truth is - that way I can look at the one in the hallway as I go to and from my bedroom - the one on the door is to remind me as I go out.  I often forget what I was about to do as well.  The dry erase boards may sound sad to some, but look at it...a member of our family was having a problem.  How do we address it and keep functioning.  This is how we did it.  Admitting I have this problem was the first step - the second was doing something about it in a positive manner.  I am their father - maybe I can not do what I could do mentally at one time...but if teach them one thing that sticks with them...if you have a problem, face it.  Find a way to work through it in a positive manner.

  • charliegirl78
    You are not the only one.  If I have a doctor appt my husband has to put it on his phone, on the calendar and a note by the coffee pot.  Then he texts me to make sure I left.  I think I have a little memory problem... huh?  I asked my doctor and he said 95% of patients say this is a problem.  He said do crosswords and read.  That could help but there is no pill for it, not that I need another  pill to my list of 16. 
    Lynette
    I keep saying to myself....at least I know I was sharp at one time!  I love crosswords and reading, I've always been a book worm.  But now this dumb optic neuritis makes it difficult to read without getting a headache...sigh, does the cycle ever end???
  • clarinetmom
    I just thought of a good aspect to our little memory problem. We can save a lot of money buying new books because the old ones always seem new to us! Happens to me all the time!
  • charliegirl78
    Oh no.  I used to tell myself that I was just 'busy'...had a lot more on my mind than I used to...so it was only natural that I would forget things.  How many people do you take up 'brain space' with Interferons - nervous system mapping - get the idea?  I would also tell myself that I was getting older...and forgetting a few things was to be expected.  I think there is a touch of both those things in there - but for a long time there was the one thing I would deny - MS.  It is very frustrating.   The girls and I have placed dry erase boards in the hallway and on the back door.   Truth is - that way I can look at the one in the hallway as I go to and from my bedroom - the one on the door is to remind me as I go out.  I often forget what I was about to do as well.  The dry erase boards may sound sad to some, but look at it...a member of our family was having a problem.  How do we address it and keep functioning.  This is how we did it.  Admitting I have this problem was the first step - the second was doing something about it in a positive manner.  I am their father - maybe I can not do what I could do mentally at one time...but if teach them one thing that sticks with them...if you have a problem, face it.  Find a way to work through it in a positive manner.

    So true....it's amazing how something that can crush our spirits can turn into lessons for not only us, but our kids.  I have two myself, and my oldest is researching with me, learning what he can about MS.  We openly discuss treatments, possible side effects as well as the possiblity of all the unpleasant things that may come down the road.  You are doing a great job and doing your kids justice by involving them and teaching them.  Way to go Dad!  And the dry erase board is a great idea....I might have to steal it from you.   Post its tend to lose their stick after a while....

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