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  • 2bmsfree
    This is so timely!  I've begun to have this same experience.  I didn't realize the connection.  Every time I got more flustered, the harder it is for me to find it.  Then, yes, it's right in front of my eyes all along.   Thank you for sharing.
  • hburky
    You are definitely not alone with this. I am on Adderall as well with this. I have such a hard time concentrating and my therapist even tried to diagnose me with ADHD- even though I don't believe that was the problem. Have you found a solution yet?
  • love4leo
    I haven't been able to get any answers yet. It's really frustrating. I'm going to be bringing it up with my doctor again on the 11th.

  • mfitzgerald

    I was diagnosed in 2007 at the age of 27. Dealing with having MS myself versus watch those around me cope with it are completely seperate issues. The biggest hurdle for me has been to let others in to help me. I am that stubborn and bull-headed refusing to let my numbness and walking issues get in my way. My family and friends see my struggle and I have told them to be gruff and tell me point blank they are going help me, whether I like it or not.

    I take Cymbalta to help with the fatigue and muscle spasms.

  • mekmills34
    Im new to this as well im 35 yrs old and was diagnosed on Jan 8th of this year.
  • bbunes
    @mekmills34 - everything is going to be okay. Its a rough ride but we all learn to deal with it one way or another...
  • capitolcarol

    We will help you every step of the way.  Tell us how you are feeling, your symptoms, problems, issues, we will be there for you.  Carol

     

  • capitolcarol

    We will be here for you.  You are not going through this alone. Carol

  • pixie2536
    I was recently diagnosed and referred to the highly rated UTSW MS Clinic where I met with the clinic's director. I am an attorney and had spent my life being one of the smartest people in the room so adjusting to the confusion and fog caused by the MS has been devastating. The director gave me so much hope when he told me that often the fog that we experience is due in large part to the extreme tiredness we feel. It can be overcome. Keep hope and keep asking questions.
  • CowboysnAngels
    Welcome! I have found this to be the best site for all my concern's and meeting new friends. I was officially diagnosed in 2012 with relapsing-remitting ms, but had symptoms back in the 90's. My legs bother me the most. So glad you are here, and look forward to your posts!
  • mrsrobinson37
    I am also new to this I just found out I have MS on Friday and it was a bit much for me to take in I am 37 yrs old with two children my youngest is 14yrs old and she's a great help to me she keeps me in good spirits I'm trying to learn more about this disease and to better understand it my neurologist started me on pills and tomorrow I will be receiving a phone call for someone to come out to my home and show me how to inject myself with a needle which  I am so scared to do but you stay strong and keep your head up I tell myself everyday that I am not going to let this disease beat me.
  • michaelahastings
    I hope you haven't had a falling injurie or falling at all that would be really bad i have seen my papa go though it and falling almost every single day its sad to see that in someone you love and care about go to the docter and them say its in you head and your are just feeling things that arent acually there.
  • cinnaya
    Im starting to have the same problems. I would contact your doctor.let your doctor know your new systems. I made my appointment for the 19th .Ill let you know how he tells me to deal with or handle it.
  • annevenita
    My live in Mother In Law has had MS for over 25 years now. She is 74 and by the grace of God is still with us. She has a great disposition most of the time, but occassionally gets depressed. Eating right is key to her success and trusting in God helps her through the rough times. Don't give up hope and talk with others with MS as much as possible. I will pray for you!
  • cdicapua

    Hi Love4leo. I am 61 yrs old , I am on disability so my situation is different. I was diagnosed 9/06/13. I am new to all of this as well. I do know about the fog, dizzyness, lack of concentration, etc. I see a psychiatrist for my issues with breast cancer , she put me on ridilan, it works well for me. It even helps with the heaviness I feel in my feet. I would seek counseling or a life coach to get you through this. It is usually covered by insurance. It really helps with the fatigue also. I take a low dose of prozac and an anti depressant called olanzapine. I was so against all of these drugs but they have gotten me through all of this. I refused to take them and I wasn't coping or living. I gave in after 3 mos and my attitude is so much better.

  • fankstr2000
    I am a male and i was diagnosed at the age of 14 back in 2004 I am now 24 and im at a lost of words in the sence that Im so scared at this momment in time for my future. I mean im still walking and what not but the stories I have read, my heart goes out to each and everyone of you. I am taking tecfideria if I spelled it right, I was on many medications be for hand, but now my doctor saud there isn't any meds that can work for me, was going to do tysbri but I have the jc virus and the lvl is 1.49 so that was out of the question, my question to everyone is what's next what does someone do in my shoes, everyone hear sounds so strong and that you all seem to have your ms in control how did you all cope with it how did u all manage to accept it and live with it.
  • msfighter

    fankstr2000 wrote: I am a male and i was diagnosed at the age of 14 back in 2004 I am now 24 and im at a lost of words in the sence that Im so scared at this momment in time for my future. I mean im still walking and what not but the stories I have read, my heart goes out to each and everyone of you. I am taking tecfideria if I spelled it right, I was on many medications be for hand, but now my doctor saud there isn't any meds that can work for me, was going to do tysbri but I have the jc virus and the lvl is 1.49 so that was out of the question, my question to everyone is what's next what does someone do in my shoes, everyone hear sounds so strong and that you all seem to have your ms in control how did you all cope with it how did u all manage to accept it and live with it.

     

    Hi There. I have advanced MS and ran out of medication options. My Nuerologist started me on the chemotherapy med Novantron. You can only take so many doses, but it worked great for me. It's a hard treatment to go through but I would do it again in a heartbeat. Best of luck to you. Blessings. 

  • beaglemeow

    I am just newly diagnosed in June I think. I'm 55. And I am happy to at least know what is wrong with me.  It is good they found out while you are young so they can slow the progress from the get go.  A lot of us do not find out till we have lost so much like talking, balance cognition and or other stuff.  I just started Tecfidera and am thankful that they have med to help us. Some of us have the Lord to lean on and our family in and out of the church.  If you have people who love you no matter what and stand by you it makes it easier. I have just found out there is a MS groug in my area that i am going to join so I can talk to people are going throw the same sort of stuff as me. Reach out to all the help that is out there. A book called MS for dummies. There is a number you can call and they will send you all kinds of information. If you are doing well keep taking the meds and keep in touch with your Dr and you maybe in you 50's 70's or 90's or never before you get like us. Debbie

  • ps98107

    Hi love4leo,

    Welcome! I'm new here too. The fact you are here is your first step in coping. First of all, know that MS is not a "death sentance". I know people who have lived with it for 30 years and are still going strong. For what it's worth, I'm going on 55 years old,  was diagnosed in 2002 and have had great success via changing my diet (mainy getting off of beef, pork and cows milk), limiting my animal protein intake to 5% or less per serving, and exercise. No human being is without the potential of getting MS, cancer, or any other disease, but with any disease, there has to be a catalyst for it to manifest itself and with all the un-natural combination of chemicals in processed foods, there are many potential catalysts. Don't get me wrong, everybody is different but every body has a basic set of natural chemicals (through natural diet) it needs to be healthy. When I was diagnosed, the first thing I did was not give up on doing the things I love, no matter how hard it became (I'm a musician. Please see my profile), secondly, I chose not to medicate and  instead, did a lot of objective research on MS and diet and the most important thing was to watch a documentary on Netflix called Forks Over Knives. That one made total sense to me. Good luck on your jouney with this.

     

    Phil

     

  • Woods

    I am new on this site, and I think it is so important to have community around this unbearable disease.  Was diagnosed in 1993 and was basically able bodied for the next 14 years, then I started falling, losing balance, falling off my bike, feet feeling like huge weights, and then went to using a cane, then scooters, and now a power chair.  I resisted mightily to not have a chair, but gave in when I realized that it gave me more safety, mobility, and independence.  No, I don't like having to be in a wheelchair and invisible.  It has, and I suppose continues to be, been a little bit of a mind game.  I beleive part of it is that I never knew anyone in a wheelchair when I was growing up, and assumed that "those people" were really bad off, non-communicative, and social rejects.  Well, sometimes I think it is our age group (I'm 60) and openness that allows us to deal with this much more healthily than before.  I think part of my job is to make wheelchair occupants more user-friendly and outgoing!!   I'm not dead yet, and I still want to live a full life.   Funny to think that I'm here singing the praises of wheelchairs  when it was but a horrible dream only a few years ago.  I guess we change, because we have to!

    LWW

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