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  • scott3j
    I'm partially concerned about the heat issue arriving soon. Because I'm pretty new to this, I was wondering what kinds of things others have done to stay cool or at least to help reduce relapses.
  • Edenpr
    I use "frogg toggs coollng chilly pad towels".  You just wet the towel with cold water and squeeze the majority (but not all) of the excess water out.  The towel remains very damp and VERY COOL for the entire day - NOT like a regular towel that dries out and you have to constantly re-wet.  I usually will put it behind my neck and sometimes just rub it along my arms, legs, back, or stomach as needed.  It saved me during the week we went to Disney World a couple of weeks ago.  I did not expect it to be as hot as it got that week, but I took the towel just in case.  Thank God!!  It made a HUGE difference. I think I re-wet it one time during the entire day, just to make it a little cooler.  I would have pooped out and had to have gone back to the hotel early if it were not for my chilly pad towel! I think I paid $12 or maybe $15 for it.  I bought mine at Big Lots, but I'm sure they have them at places like Sports Authority, Dicks, Academy Sports, or maybe even Wal-Mart or Target.  I have not checked the prices there, but I may have paid a little less since it was at Big Lots (at least I better have, lol!)  Nevertheless, it is well worth the money and reusable!  When you are done with the towel for the day, you can just hang it up, or you can stick it back in the little container and rinse it out again at home, then hang it to dry.  I saw a few other people walking around with these as well!  Also, although I've never personally used one, you can try those little battery operated bottles with fans that you fill with water.  You can either just use the fan portion, or mist with water and fan at the same time.  I saw a lot of people with those at Disney.
  • Grenebie
    I go camping for 2 weeks in northwestern PA at the end of July every year, and it can get surprisingly UP THERE in heat and humidity, like high 90's and 100% humidity.  This is my first year going after having been diagnosed in December 2015.  Thank you for this suggestion, I will definitely check that towel out.  I have tried the cooling towels before while working outside, but they didn't really seem to work.  
  • beaurylancambria
    I love summer,laying out and waterparks! Last summer was my first summer, and I thought I would have to give it all up. Turns out for me, heat isnt an issue. Yesterday I went to six flags. It was in the 80's. Not only did that not bother me, we stayed intil it closed! Dont let it stop you, just be a little more aware.
  • Avatar
    I love summer more than winter, I think garden is the best place to get fresh and cool air. If you need more information switch to https://fidgetsguide.com/best-bounce-house/ site. Thanks for sharing your thoughts, I highly appreciate them.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • pattymac1223
    I use a cooling vest.  Some are a bit pricey, but there are groups that help with the cost for lower income patients.
  • MS_Navigator_Ashley

    Hi Scott3j, There are quite a few cooling products on the market, if yo uwould like information on the vendors we suggest as well as insurance codes to see if your health insurance will help with the cost, please email us at contactusnmss@nmss.org for this information.  In the meantime, i have provided below a couple links to information on managing MS related heat sensitivity.

     http://www.nationalmssociety.org/Living-Well-With-MS/Health-Wellness/Heat-Temperature-Sensitivity

    http://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/You-CAN!/Beat-the-Heat

    I hope this information is helpful! 

    MS Navigator Ashleu 

  • ysteele
    This I found extremely helpful, I have spent my past few summers in the house. I tend to more issues in the summer heat.... increase In fatigue, tremmors, and other symptoms.... sun sensitivity on my skin.... and the inability to control my body temperature.... this as all been a nightmare.... any tips I can get is very much appreciated... I live in Michigan and welcome the winter weather
  • snow_leopard
    I'm not quite low income, but can't afford a cooling vest. It gets 87 in our bedroom and I use Chill-Its cooling towel and is under $10 on Amazon.
  • KariAnn
    Thanks, snow_leopard.  I'm going to look for those.  I can't stand the heat and even air conditioning isn't enough to really cool my body temperature.
  • snow_leopard
    You're welcome. I have tried to post on this before but to no avall. I also drink coffee with ice in it. Actually it's mostly ice, but for me I prefer it to water. We just make regular coffee and put ice in it from our freezer. This finally posted sorry it took so long.
  • maria1
    The neuro I saw yesterday at U/MO hospital said 16 oz of cold water and/or half water and half gatorade to replae the electrolytes will cool the brain from the heat.

    Also, anyone with ms should be taking:

    Vit D  2000-5000 units daily

    B Complex 100mg two days a week

    Vit E  400 units daily

    Vit C 500 mg daily