Let me start by saying I know that only a doctor can make a diagnosis, I’m just scared and curious and looking for stories similar to my own. I am a 36 yo female who has recently had an influx of symptoms after getting a flu vaccine, and have really started analyzing some random and weird things that I have experienced over the last 18 months. Roughly four months ago I experienced a scintillating scatoma that effected the vision in both of my eyes. This freaked me out totally but my optometrist reassured me it was only an ocular migraine without the actual migraine. I get headaches regularly but I wouldn’t call them migraines. Around the same time, I can’t remember if it was before or after the scatoma, I had a weird feeling in both of my calves. Like there was warm water being poured on them from the inside of my body. That went away and I never really gave it much thought again. If I go even further back I remember several random episodes of my lips going completely numb, I have raynauds in my fingers and toes, and more recently have noticed bilateral arm/elbow/hand tingling that I attributed to tendinitis or epicondylitis. I have never been particularly graceful, I don’t fall often but I trip and stagger a lot and have more recently noticed I am dropping things more frequently. I have also noticed an increase in cognitive issues, like forgetting words, losing words, and struggling to remain on topic if I’m telling a story or talking to someone. Sometimes I forget mid sentence what I was going to say or wanted to say. The more recent symptoms have popped up since I received my flu vaccine at my place of employment. I’ve never had much of a reaction in prior years. The day after I got the shot I felt crappy. I was super tired, had a headache, felt kind of nauseated and lightheaded. I have been feeling this way on and off since the beginning of November. The dizziness isn’t like vertigo it’s more like being off center or unbalanced, I have a headache and feel nauseous most days. I’ve also noticed random rushes of internal hotness that I assume feels similar to a hot flash and have become extremely sensitive to heat. Any insight or symptom comparison would be greatly appreciated.
Have you seen a neurologist yet to discuss your symptoms or have any testing done? If you are considering a diagnosis of MS, I would encourage you to make an appointment. You can search for MS care providers at this link.
You can also call us at 1.800.344.4867 (M-F 7am-5pm MST) for a list of neurologists.
You may also want to view the following information about possible MS and the diagnositic process:
I want to note that in the link about possible MS you will find information about employment concerns at the bottom of the webpage.
MS Navigator Stephanie