I was diagnosed with RRMS in Sep of 2015, So i'm still learning the roaps, lingo, meds, does and donts, all that good stuff.
I've had 2 MRI's the first proving I in fact had MS although I was not knowledgful to what MS actually was at the time I was first informed of the news because it was not from a neurologist.
Then when seeing the neurologist and being informed of what I was actually dealing with I never thought to ask how many lesions I had or if I was told I forgot.
My second MRI proved I had 2 new small lesions in comparison to my first. Didn't stress too much finding that out because I mean, I've already got it right? So, lets change meds and fight this!
After 2 months of being in between medicine and joining this website and learning a little more than I knew before I was curious to know "How many lesions did I actually have to begin with?"
I call my neuro and ask the nurse and get told "Why would you wanna know that?" "Uh, because I'd just like to know for my own piece of mind and to keep my primary care dr up to date." "Well we will send your charts to your primary care dr"
Primary care dr calls and says "your chart states that in comparison to you first MRI it says you have 2 new extremely small lesions."
BIG HELP RIGHT?
So I call the radiologist office that did the MRI and ask the question. The radiologist asks why I want it and I explain I've been given the run around and would just like it for my own piece of mind and he was baffeld I had such trouble getting the answer and then more shocked looking at my MRI. Before answering my question He stopped and asked. "How are you mam?" I told him I was fine and if he didn't know me personally he wouldnt know I had it unless I told him and I was greatful for that. He said "wow, I need a minute because there are really too many to count.." That caught me off gaurd thinking what? 20? He said "Mam there are roughly 100 lesions in this MRI and it is one of the more serious ones i've done Im so glad to hear how well youre doing and I wish you well."
I'm a little shocked my neuro never mentioned 100 lesions ... I most definetly would have remembered that.
So shocked that between that, his rude staff and being in between medicine for 2 months (for the lack of me being taken seriously with my symptoms) Im concidering switching neuros?