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  • Excadet
    I was almost 31 when Dx, and realized that I had had symptoms going back to the age of 21. MY mom had MS, too! It really sucks. I'm sorry you've had to deal with this. The only other person in my extended family with any autoimmune issues was my mom's cousin, who had disabling rheumatoid arthritis. Now, my mom, me, my older sister and one of my younger sisters have all been Dx with MS. It makes me feel like some kind of freak at times. Just this week, my younger sister found out that she likely has RA, on top of MS. I am worried about my own daughters and I think we all worry about all the nieces and nephews. I hope you are doing well. Feel free to contact me if you ever need an empathetic ear. 
  • Excadet
    I was almost 31 when Dx, and realized that I had had symptoms going back to the age of 21. MY mom had MS, too! It really sucks. I'm sorry you've had to deal with this. The only other person in my extended family with any autoimmune issues was my mom's cousin, who had disabling rheumatoid arthritis. Now, my mom, me, my older sister and one of my younger sisters have all been Dx with MS. It makes me feel like some kind of freak at times. Just this week, my younger sister found out that she likely has RA, on top of MS. I am worried about my own daughters and I think we all worry about all the nieces and nephews. I hope you are doing well. Feel free to contact me if you ever need an empathetic ear. 
  • kara_w
    I was dx in 2010, when I was 34. But like some of the other posters, I know that I've had it for much longer. Knowing that ms is a genetic disease reinforces these thoughts. But nobody will know for sure until the researchers find out what triggers it.

    The doctors started testing me for Lupus before I was ten years old. I was always sick, and periodically I would have outbreaks of a skin disease called Anuloma Granulare and other sun sensitive rashes. The doctors couldn't figure out was wrong and called the rashes "hives." The Anulomas we attributed to an issue with my immune system, but that's all they could say about it. I started exhibiting classic symptoms in my twenties. When I suddenly lost control of my tongue and my ability speak in my early thirties, I was extremely lucky to be seen by a P.A. that recognized the symptoms right away and got me into an MRI machine. She had me in to see a brilliant neuro within the week. I count myself as extremely lucky.


  • alexan613

    MS is not a genetic disease. I have an identical twin who's been tested and also I've asked and researched. There is hardly even a slight percentage raised in someone who has a family member with MS. It is not considered genetic from what I know and I have had MS for 23 years.

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  • A_J_
    Was 52, am 58 now, on SS disabbility, exercise everyday!
  • Constance56

    I , too, am 58, exercise daily, but I also changed the way I eat. I managed to get on SSDI this year. Everything I eat must be healthy (meaning an antioxidant, gluten-free, low to no dairy, low sugar and lots of green veggies) so that I can feel like I'm fighting back.

  • weirdeb
    I was diagnosed on 14 August 2014 at 59.  Drs thought I was just depressed! There were lots of strange symptoms that were hard to explain including falling while exercising. Have been on Gilenya (not working) so now about to start on Lemtrada.
    Is there anyone out there on Lemtrada?
    I continue to the gym & work with a personal trainer.
  • Renee_Blessed
    I can so relate to your post. I was diagnosed at 43 yrs. in Feb. I blamed my symptoms on acid reflux, PMS, corporal tunnel, vertigo, diabetes, obesese. Finally when things came to a head and I could not walk nor remember what day it was I was finally diagnosed ( took 4mths). I think I've had MS for at least a decade or so. But I thank God I am now emotionally and fiancially ready to deal with the diagnosis. My oldest is in college and my youngest is 11. I don't have any little babies and my family helps me tremendously.I've been married for 21 yrs and working in teaching the same time. I know I'm blessed! God said Hebrew 3:5," Never will I leave you, Never will I forsake you". I know God's got this!
  • jennifer_m
    I'm glad I found a post in which God's hand is acknowledged with an M.S. diagnosis. I was diagnosed last December at age 35, but according to my neurologist I actually had my first episode 9 years ago at work. All the strength went out of my legs and it was chalked up to stress. I was scared initially that it was cancer, but suspected M.S. for a year before the formal diagnosis was given to me. There was a certain relief and also gratitude that now the problems with my body had a name. So many prayers have gone up for me from dear friends and family. I've also developed a new sense of determination and strength, even though I still have my off days (with this illness, don't we all?) I'm still a bit sad that I have such a challenge, but I can't deny that Heavenly Father wouldn't give me such a challenge if there wasn't something good to come of it. Keep the faith!
  • beadyeyes
    I was diagnosed 11 years ago at age 53 I started on Copaxone back then and have continued with that all along. I'd gone about 6 years without a major flare until this past several monts. My last MRI showed new activity. I have a neuro appointment after Easter to discuss where to go from here.

    Funny, but I was also relieved to find that I had MS...I was thinking brain tumor or some other grave illness.

  • THERESAF
    I was thinking I had a brain tumor when i was admitted to a psych hospital and found out that I have MS!
    So...I'm not dyeing...
    This was in 1993, when I was 29.
  • Nana_or
    You have company. At 30, I was a maybe MS. The next episod was at 60. I was finally dx 5 weeks ago at age 69. O will begin Copaxon this week. It is a relief to know that all the weird things that happen is not just mystery symptoms.
  • jandj400
    I was 20 when diagnosed
  • Jess
    I was 23 or 24 when I was diagnosed.  I also had vision problems - optic neuritis.  I went to an opthomologist and then next I believe it was the neuro opthomologist (I'm not 100% sure though)  Then I was referred to a neurologist and had a sinal tap to check my spinal fluids  and was diagnosed shortly after that.  I will never forget the spinal headache tht followed the next day!!!  :os
  • kimberlysj
    I too had a huge headache after my spinal tap. It lasted for days. The neurologist who did the procedure had said his patients never get a headache. Well that so wasn't true.!!!!
  • pmsart
    I'm 63 now but was diagnosed at age 42 but I'm sure I had symptoms years earlier with inner ear infections (virtago or dizziness). I've had ms for 20 yrs now and doing okay. I have more pain now than I did years ago. I quit using my chair and use my walker even tho I'm slow. I'm retired and painting. taking a spanish class, etc. Just stay involved. Enjoy those grandchildren. Just keep on keeping on.  Be grateful to GOD for all that you DO have. 

    Hey, did you  notice it's almost a political advantage to have MS or have family with MS?
    Ann Romney never dramatized her's though. But did you notice how Michelle Obama talked about how pitiful her Dad or Grandad was and how he had to lift one leg and then the other to get in and out was it a car?" She was practicallyl crying.  Give me a break, I don't want pity, do you?  I'm just me - I'm not my ms.
    I'm glad though that MS is getting noticed and maybe that will turn into more awareness with hopefully more donations for more research.
  • Chickadee
    I was 50 when I got my diagnosis, but had had it seven years before that. By the time I got the diagnosis I was relieved to hear that the problem had a name. The problems started in my feet with numbness and tingling. It moved up my legs, and affected my balance. I went from walking fine, to using a cane, to using a walker, and am now full time in a wheelchair. I tell many people," I have MS, but MS does not have me!" every day when we get out of bed, we get to choose how were going to be. I choose joy, happiness, fun, laughter, and love.