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  • Jeff_H_
    I was 39 when I began having symptoms in 2000, but I was 47 before I was officially dx in 2008...Doctors always treated the symptoms without looking for the cause. I've been on COPAXONE since 2008...talking with my Neuro about trying something else... **anyone out there who has tried Low Dose Naltrexone (LDN)?
  • Jbrataz
    I was diagnosed 5 years ago on Valentines Day- of all days-  I was 38 at the time-  They determined by the leasions and history- that it began- I contracted it- it developed- whatever term you want to use- back in 1988 when I was pregnant with my first son.  My husband and I at the time just thought I pulled a muscle in ballet again- LOL  I can actually pin point every leasion to what I thought was a pulled muscle or over exertion in sports.  My father had ALS- so watching the progression- I should have ? my syptoms more-  but I was, and still am very active- so didn't really think anything of it-  My diagnosis came after having fallen and shaqttering my right hand.  during the 9 month fight w/ Workers Comp-  they had me do a cervical MRI to see if I had broken anything further up-  They found the intial leasions on the C Spine then and sent me for brain MRI and spinal tap-  I started on copaxone and have it been on it ever since-  that relapse is the worst I have had, and none that I have really been aware of since- although I am developing more leasions each year- so the progression is happening-
  • Garth
    Hi OffBalance.  I have been diagnosed since 2002 when I was 16. I am 25 now and still living a somewhat normal life, and the MS hasent really started affecting me badly until lately. I have more flare-ups and symptoms than I ever had before.  Now the diese is starting to scare me more and more everyday.  I have done a lot of reading and studying about the diese now having it for almost 10 years.  These days I cant rely on anyone but myself for my diese progression and where it takes me.  This makes me really scared somethimes.  But a great attitude towards MS is all we need to stay stong and have a great future. 
  • tman15
    I was 27 when I was diagnosed with MS. I’m 100% positive that my symptoms started around the time I turned 18. I was on Copaxone, but switched to Tysabri when symptoms continued to worsen. My grandmother just passed due to parkinson-plus syndrome, and my mother has a worsening problem with rheumatoid arthritis. My father’s side well, is just as bad if not worse. My family doesn’t have the best genetics, but what we lack in health we make up for in heart and love for each other. As a family we will get through this we always do. I’m glad to share my story and look forward to reading a connecting with more people. 
  • mrosesledz
    I've had symptoms since the age of 14 but was not diagnosed until I was 18! I am now 26 and I have been living as close to normal as possible. I have been on Rebif, Copaxone, and am now on Tysabri. I have also switched to a Mediterranean diet (basically vegetarian but I eat fish occaionally) but I tried a plant based/vegan diet for about 7months. I feel great now but I switched about a year ago when I woke up and couldn't walk! I walk fine now but it was the worst flare up I've ever had and definitely scared me more than I had been before about this awful disease.
  • wendycurry
    tentatively diagnosed at 25, after second optic neuritis.  That as 1991.   But told to wait to try test for official diagnosis when the symptoms progressed, as preexisting conditions can effect what insurance might support.  25 years of random symptoms, it progressed to the level where i couldn't just 'live with it".  MRI was last week.  Confirmed.. I knew it all along, but it's nice to have the confirmation
  • SueG
    Hi OffBalance, I was/am 47 and dx'd - also with psoriasis/excema and my mom has leukopenia and other auto immune issues as well.  interesting to read the ages - thanks for posting
    SueG
  • Amber9
    Hi offbalance! I was 19 years old when I was diagnosed with optic neuritis which immediately made them start looking into possible MS. I was officially clinically diagnosed in August of 2009 at the age of 25. I was put on Avonex and did well with that for a while, I recently have been experiencing more and more symptoms of MS and I am having to really learn my limits... Which is very hard for me. I am learning slowly but surely.
  • scorpio19th
    I was diagnosed at age 53 but, with hindsight I know that I had symptoms like blurry vision and vasovagal fainting as far back as 12 years old.
  • randys438
    I was diagnonsed in July of 2008 at 45.  I had my first symptoms about a year before, numb hands.  At that time they thought I had Carpal tunnel.  I was tested and told that Carpal tunnel was negative.  No one else in my family has had MS, but my mother had Lupus. 
  • Gean_C
    Hey Offbalance, I turned 65 today and I have be dxd for about 13 years now.  It only took them 5 years to diagnose me so I feel pretty lucky. 

    Being older you never know if it is just old age symptoms or something not so serious like MS.  Exercise, diet, and the right attitude is the best help for MS other than the meds.  I have been on Avonex for 12 years and am going to be joining the Tysabri drip club in June.  Tysabri is another med.

    I am suggesting two groups to everyone:  Laughing With MS   and   NEVER GIVE UP!  I hope we can get a ton of people there....not just one person that weighs a ton.

    Anyway there are lots of groups to join and you will get support from every one of them..  You will never find a better group of people than at MS Connections.  God Luck
  • Michraf
     I was diagnosed 9 yrs ago when was 33. I had a feeling it was MS. My mom has MS which made me familar with it. So far, probably because of the meds available now and everyone reacting differently to the disease I am doing well. My first nuero was horrible. I only saw himonce and then switched. The ride into NYC isn't fun, but the nuero and pratice is great!
  • Michraf
    Ok, I know iam late to reply here. Iwas diagnosed in 2003. I was 36. Now 44. My mom has MS too. She is not in great shape, but she is here.  So far so good for me.
  • Lloyd
    I was 55 and I told the neuro he was wrong because I banged the base of my neck very bad the year before, then I became sick with what I thought was the flue only my left side went numb. The numbness never went away but I learner to deal with it until it became difficult to walk then I went back to the neuro who asked me why I did not follow up with treatment in Charlotte? I told him I did not believe his diagnosis until now when its hard to walk. Keep in mind now I have had the numbness for 3 years and still no treatment. I called CMC in Charlotte and everyone gave appointments three months out, so someone suggested I ask to be put on the cancellation list which I did and I received acall one week later to be there the next day. By that time I had been out of work for a month and applied for SSDI and was approved on the first request tell me that's not a miracle.
  • Kat1990
    I was diagnosed when I was 48. The symptoms started when I was 32.
  • omar
    I was diagnosed in December 2010 when i was 32
  • SARAH74
    Hi Offbalance! I was 34 (now 38) everyone that I have actually met were in their 30s I've heard of young people getting it but honestly I didn't know 65+ got it .Now I know age must not matter..
  • THERESAF
    SARAH, I WAS 29 AND ANGRY WHEN I LEARNED I HAD M.S, BUT LUCKY I DO NOT HAVE BRAIN TUMOR!
    NOW I'M 49 AND CAN''T WALK.
    WHAT LUCK?
  • kimberly963
    I am 51 now, and was dx 6 years ago. But my current neuro looked at past MRI's and was outraged, cause you could see the beginnings of lesions. He thinks I've had it about 15 years,
  • dabby4205
    I was 26 when i was diagnosed