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  • lovescks8

    I am newly 25yrs old, my mother had MS , and in my constant research I have found there may be possible links between MS and epilepsy, migraines, bipolar disorder, and scoliosis, all of which I have been diagnosed with as a child, except for my scoliosis was diagnosed directly before my epidural for thw birth of my 2nd child. Also as a child I sustained quite a bit of head trauma. Given all these factors I am beginning to wonder if I should begin testing for MS?

  • MS_Navigator_Robin
    Hi there,

    You have a lot on your plate!  MS is not something that can be predicted with any sort of diagnostic test, it is primarily diagnosed through assessment of health history and evidence of disease activity as shown on MRI (learn more about the diagnostic process here). 

    If you are having concerning symptoms, I encourage you discuss them with your healthcare providers.  If you do not already receive care from a neurologist you may be referred to one for further discussion and testing.  Be sure to tell them that your mother has MS, as having a close family member with this diagnosis does increase your chance of getting MS.

    Take good care of yourself,
    Robin
  • alcurtis17
    Hello, My name is Amanda and I grew up with my father having MS. He has been living with it for 22 years therefore I do know a lot about it myself. On January 24, 2014 I lost my right eye sight and after eye testing and an MRI I was told that I have MS. I did not tell the eye doctor or the Emergency room doctors that my father has MS so after they gave me the news I then told them about my father. There are a lot of conflict about MS being genetic or not. I am still in the process of waiting for my appointment with a local MS Center to see a MS Neurologist to really be diagnosed and take me next steps. I am also trying to find out more information about genetic in MS. In my opinion if you feel like you are experiencing symptoms and feel that something may be off then go with your gut and get a neurologist. Now I wish that I went with my gut and got tested before my attack. Best of luck to you and your family.
  • christinesangel0208

    alcurtis17 wrote: Hello, My name is Amanda and I grew up with my father having MS. He has been living with it for 22 years therefore I do know a lot about it myself. On January 24, 2014 I lost my right eye sight and after eye testing and an MRI I was told that I have MS. I did not tell the eye doctor or the Emergency room doctors that my father has MS so after they gave me the news I then told them about my father. There are a lot of conflict about MS being genetic or not. I am still in the process of waiting for my appointment with a local MS Center to see a MS Neurologist to really be diagnosed and take me next steps. I am also trying to find out more information about genetic in MS. In my opinion if you feel like you are experiencing symptoms and feel that something may be off then go with your gut and get a neurologist. Now I wish that I went with my gut and got tested before my attack. Best of luck to you and your family.

     

  • christinesangel0208

    alcurtis17 wrote: Hello, My name is Amanda and I grew up with my father having MS. He has been living with it for 22 years therefore I do know a lot about it myself. On January 24, 2014 I lost my right eye sight and after eye testing and an MRI I was told that I have MS. I did not tell the eye doctor or the Emergency room doctors that my father has MS so after they gave me the news I then told them about my father. There are a lot of conflict about MS being genetic or not. I am still in the process of waiting for my appointment with a local MS Center to see a MS Neurologist to really be diagnosed and take me next steps. I am also trying to find out more information about genetic in MS. In my opinion if you feel like you are experiencing symptoms and feel that something may be off then go with your gut and get a neurologist. Now I wish that I went with my gut and got tested before my attack. Best of luck to you and your family.

     

  • looneybiz
    It is my understanding, that the chance of getting the disease MS is not related to previous trauma someone might have suffered to the nervous system. Although the exact cause of MS is not known, most believe it to be some sort of an auto immune disorder and not related to structural damage. But I'm still learning all this stuff too. I would talk to your doctor about the symptoms you described and see if they feel like that would be enough to start the sometimes long and drawn out process of diagnosing MS.
  • allykat72
    You really have been dealt some challenges eh? Hope you are coping with things ok xx My mum found out she had MS when she was 42.. and here I am just getting over Optic Neuritis at 41, having cognitive difficulties.. fatigue... and Uhthoff's Phenomenon is the best one ..haaa! anyway .. 2 MRI's showed up MS related lesions on the brain/spine... and I am still not officially diagnosed lol.. .. but my neurologist is seeing me again this week.. So is there a relationship/connection that is still being worked out??!! .. But it is true there are no tests (as yet).. just MRIs.. good luck with everthing you poor bug xx
  • andyhenrik
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  • anywhereoutofthisworld
    I myself always have had very bad headaches, and while I don't have a history of epilepsy and no one in my family has had MS, I did always struggle badly with depression and I had seizures as a baby up until age 5. I was diagnosed with Multiple sclerosis in late July of this year after a brain MRI came back showing lots of MS lesions and a spinal tap came back positive for high amounts of elevated protein 'o' bands. Click to See Link For Guidelines See this link to view guidelines for MS diagnosis. I would suggest you speak to a neurologist and bring with you a list of any symptoms you currently are experiencing you think could be MS related. He may suggest a brain MRI, possibly blood work to rule out other stuff like Lymes disease and if enough suspicion is perceived by him he may order a spinal tap. That is how it was for me, I also prior to the spinal tap, had a c-spine MRI, which ended up leading me to finding out I have Cervical Spinal Stenosis, on top of MS. For the stenosis, I see a neurosurgeon & I attend physical therapy. Here is a some common & not so common symptoms to look for when you suspect MS.

    Speech and voice disorders
    ----------------------------------------
    Up to 40% of people with MS experience problems with their voice or speech.
    One possible problem is dysarthria, a motor speech problem that manifests as slurring, poor articulation of words, and speaking too loudly or too softly. Another possibility is dysphonia, a change in voice quality, such as sounding hoarse or nasal.

    Fatigue
    ----------------------------------------
    Some 80% of people with MS will experience fatigue at one point or another, but fatigue can have many causes. Some people experience “MS lassitude,” a very severe fatigue that occurs daily that tends to get worse as the day wears on.

    Numbness
    ---------------------------
    (or a lack of sensation in various parts of the body) is often one of the first symptoms to bring a person with MS to the doctor. Numbness can occur in the face, the body, or the arms and legs, and can interfere with walking, holding on to objects, and even chewing, if the numbness affects the face.
    Sometimes the feeling—or lack thereof—progresses over hours or days, but it usually subsides on its own.

    Vision problems
    ---------------------------------
    Like numbness, vision problems are one of the most common early symptoms prompting a person to visit the doctor. The problem can manifest as double vision, eye pain, blurred vision, or a scotoma (it looks like a hole in your vision).


    Bladder Dysfunction
    -------------------------------
    Bladder problems in people with MS can manifest in two, seemingly opposite ways. Some people have difficulty emptying their bladder. That means urine stays too long in the bladder, leading to infection, discomfort, and a distended bladder. Others can't keep the urine in, resulting in leakage and urgent frequent bathroom trips.

    Constipation/ IBS
    --------------------------------
    The most common bowel problem related to MS is constipation or also irritable bowel syndrome.

    Dizziness and Vertigo
    --------------------------
    The good news is that the symptoms of dizziness and vertigo often do go away and, for others, common drugs used to treat dizziness and vertigo in otherwise healthy people can be effective.

    Sexual Dysfunction
    ----------------------------
    There are three types of sexual problems related to MS, and the first is direct neurological damage to the nervous system. For women, that means loss of sensation, loss of vaginal lubrication, and an inability to achieve orgasm. For men, it can mean sensory changes as well as difficulty getting and maintaining an erection and difficulty reaching orgasm.
    In addition, people with MS might feel reticent about sex because they’re tired or are worried about bladder control. Some MS medications can also affect sexual function.

    Depression
    --------------------------
    Not surprisingly, depression is common among people with MS. Changes in the immune system can contribute to depression, as can biochemical changes in the brain.

    Cognitive Dysfunction
    --------------------------------------
    Cognitive dysfunction affects upwards of 60% of people with MS. The good news is that only specific areas are affected. This could be recent or “working” memory or the speed at which a person is able to process information. Or a person may have trouble focusing or multi-tasking. Once these problems start, they often don’t go away, but they do progress slowly.

    Anxiety
    --------------------------------
    This is the poor second cousin to depression. That’s because depression gets all the attention, though anxiety can be equally debilitating. Not only are there organic changes in the brain that result in anxiety, but the ongoing, uncertain nature of MS can be nerve-wracking.
    MS can also involve mood swings and irritability, although the irritability may be a consequence of depression.

    Emotional changes
    -------------------------------
    About 10% of people with MS may experience “pseudobulbar affect” (PBA), a neurologic change that usually occurs in tandem with cognitive changes. Here, the expression of a mood or feeling is disconnected from how a person’s actually feeling so a person may have uncontrolled bouts of crying when they’re not actually sad or they may laugh hysterically at inappropriate times.

    Pain
    ----------------------------------------
    The pain is often the direct result of nerves damaged by the disease. If this is the case, the person may feel severe burning sensations in their legs, feet or hands, or might imagine a knife is stabbing the side of his or her face because the nerves on that side are inflamed.

    Spasticity
    ---------------------
    Spasticity can involve both stiffness as well as involuntary muscle contractions. As a symptom of MS, it’s most common in the legs and may manifest as a mild feeling of tightness in the muscles or as more severe pain.

    Balance/ Coordination Problems
    --------------------------------
    People may report they feel suddenly weak in one limb or they may find objects slipping easily out of their hands. If there’s damage to the cerebellum, the part of the brain that controls balance, people might also be unsteady on their feet and prone to falling.

    Tingling
    --------------------------
    Tingling is related to numbness and may feel like your arm, fingers, or toes are falling asleep, yet never quite waking up. Like other MS symptoms, this is a result of damaged nerves sending mixed signals to the different parts of the body. People may also experience something called the “MS hug.” It feels like somebody is grabbing them very tightly around the midsection, but it’s not muscular.

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