My name is Hailey, I’m only 18 years old, and I live in San Diego, CA. I’ve been experincing a lot of problems and I’m starting to wonder if it could possibly be beginnings of MS.
It started with a headache, 24/7 for what has been two months now. With it, I started to notice blurred vision in my left eye, as well as occasional double vision when looking left. While the vision issues have mainly resolved, the headache has not.
In addition, over the past month I have been noticing the following symptoms which all seem to be pointing towards MS...
“MS hug”/pressure around ribs, tingling in hands/feet, severe itchiness (usually in my legs. I’ll scratch and scratch and scratch and it doesn’t seem to go away, but starts to burn instead), pain (joints, muscles, etc), foot drop, feeling of muscle weakness, muscle spasms (mainly in legs at night), dizziness when standing, swaying (Romberg test), blurred vision (as mentioned, in left eye), sensitivity to sound and light, trouble focusing, slow information processing, very mild confusion, depression, mood swings, anxiety, increased frequency urinating, extreme fatigue, restless leg syndrome, issues regulating temperature (hot flashes usually, sometimes chills), heat sensitivity.
That’s a lot. I don’t mean to be only trusting Dr. Google, so I thought I would come here to get opinions. Due to my age, I am often dismissed by doctors as being dramatic. I also have been diagnosed with RA and fibromyalgia, for which I take Cymbalta and Gabapentin.
Any thoughts would be greatly appreciated,
Hello Hailey, Have you checked the side effects of the cymbalta and gamapentin? They may be adding to some of the symptoms you are experiencing. I took both, most recently hte gamapentin and did not like the way it made me feel, it was worse than what i was taking it for.
itching could be a sign of allergic reaction to the drugs, so definitely check the side effects before anything else, then when you are comfortable you are not having side effects from the drugs, look for a doctor who will listen. We have all, like you, been ignored by some doctors, just dont give up looking for answers.
Have you been to a neurologist?
Also, have you thought about some alternative solutions to medication, like vitamins, or minerals, or other supplentents for relief?
I truly do appreciate your quick response. I have not looked into itching as a side effect of either medication, however I have been taking Gabapentin for over a year at that dose, and Cymbalta for about 4 months, at the dose I am at, all without side effects until many of the symptoms appeared in the past month. This is why I do not feel that the itching is a possible side effect at this point in time.
As for vitamins/supplements, I honestly do not know where to begin to help relieve all of my symptoms. I currently take an iron supplement as I am iron-deficient anemic, but that is it.
Again, I just wanted to reach out to those who really do understand MS to seek advice before I end up at a doctor who will simply write me off.
We can't give medical advice here, but I'm glad you found us, and we are here to support you. MS symptoms vary greatly and MS can't be diagnosed on symptoms alone. If you're suspecting MS, it's best to see a neurologist.
I don't think you're alone in this experience - many people have felt that their doctors aren't taking them seriously. Maybe some of these tips can help you to prepare for your next appointment?
Hang in there and let us know how you are doing!
*MS Navigator Carla
I have to agree with Maria, I would go see a nerologist they can better diagonose your symptoms then the google machine. I agree that many doctors are quick to dignose, like for example before i got diagnosed the doctors said i had lime diaease, a stroke, i was even accused of faking my symptoms unitl i saw a nerologist who after many test he said i had MS. OS i would recommand seeing one. Good luck
Hailey, Attitude matters. When you see a doctor: WHAT DO YOU WANT TO HAPPEN? Thinking things sometimes makes it so, thinking they will write you off before you get to the office is a sure way to fail. You want answers. But, when you do go to a doctor do not mention ms, simply mention the list of symptoms and let the md find the answer, there are otehr things besides ms that may cause some of the symptoms.
Also, somebody diagnosed the fibro and ra, so therefore, someone listened and heard what you said.
MRI is the best answer then check the results with neurologist