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  • taibrown3
    Main navigation TAIBROWN3 Search Submit Mobile navigation DISCUSSIONS GROUPS SUPPORT BLOG taibrown3 taibrown3 VA 0 Appreciations Edit Profile About Me Gender Female Age 29 Relationship Single My Story 0 Appreciate this 2017 has been heavy on me. Especially recently in July I start having A TINGLING ELECTRIC SHOOTING FEELING THOUGHOUT MY BODY and EXTREME FATIGUE. I thought it was from missing my seizure meds until i was able to sign up for a program that mailed my meds for free.(The ER diagnosed me with VERTIGO) I was 175lbs in the beginning of 2017, I dropped to 133lbs by may or so, now its Nov im 150lbs. MY HUNGER INCREASED. OCTOBER I had another episode.. Same shooting feelings is how it starts, BLURRED VISION, TRIPPING OVER THINGS, HITTING MY HEAD ON CAR DOORS, BODY ACHES ODDLY, NUMBNESS, AND STUMBLING OVER WORDS OR THOUGHTS. (ER CHECKED FOR A PINCHED NERVE) nothing came back. TODAY November episode 3.. Same issues plus BOWEL PROBLEMS.. now IRRITATION because I don't feel well and it seems NO ONE IS DOING THE RIGHT TEST TO FIND OUT. It can't be me, im in pain even the odd shooting feelings hurt when I move or look around. I FALL ASLEEP IN CHURCH, OR JUST SITTING STILL.. I STAY SO SLEEPY.. Hard to sleep at night though. And I itch.. Im only 29.. I have 2 boys 4 and 2.. These symptoms exhaust me too.. But IM STARTING HERE..
  • maria1
    Listing all your symptoms as you have here is a good way to begin with the doc and if you are comfortable suggest that to you it sounds like ms, or is there something with with similar symptoms.
    Also check the side effects of the meds you are on.
    Has your spine alignment been checked?

    ​Some md's are afraid to say ms out loud to a patient, they think we cant handle the info or they cant? So dont give up asking questions until you are satisfied. best wishes.
  • awilliams84
    I would definitely bring it up. Listen to your body and be your own best advocate. Get some scans of your spine and brain and go from there. It c ou uld be something completely different but it helps to rule it out.
  • awilliams84
    I would definitely bring it up. Listen to your body and be your own best advocate. Get some scans of your spine and brain and go from there. It c ou uld be something completely different but it helps to rule it out.
  • ovi99
    Hey, I am a neurology resident at Duke and work alot in the MS clinic and have a few thoughts:
    First, it could definitely be MS.  MS can cause numbness/tingling, body aches, fatigue, and constipation. The only way to know for sure is to be examined by a neurologist and get an MRI of your brain. I would ask your PCP for a neurology referral.

    There are other possibilities other then MS.  It could be related to your seizure medications.  I am not sure what you are on, but many of them can cause numbness/tingling and can get be very sedating and make you feel off.  Topomax in particular also causes weight loss. It seems like you don't sleep well and are tired all day.  You could have a sleep disorder that is contributing to your symptoms, and may benefit from a sleep study.  A neurologist can help you with that as well. 

    If you are on anti-seizure meds, you may already have a neurologist that specializes in seizures, but it may be worth asking to see a neurologist who specializes in MS.  The "right test" is typically a brain MRI. 

    Bottom line, it is definitely okay to bring up MS to your doctor.  Patients really know their bodies well. Your doctor will not be offended if you have a suggestion.  It may not be MS, there are a long list of other conditions it could be, but getting a definitive answer either way I think would help you alot.

    I hope you feel better.