I've been diagnosed with CIS with a high liklihood it will progress to MS in the next 4 years.
My doctor explained all of the drugs available and said Copaxone is the safest out there based on side effects.
I'm also considering Texfidera, but I'm terrible at taking pills.
Anyone that has tried both?
I am 36, very active and healthy, already on a low inflammation diet, don't drink or smoke, so my lifestyle can't change much more.
It seems like treatment is a good idea to stop from progressing.
Any advice? Thank you
I have CIS and I am on Tecfidera. This is the first and only drug I have been on. I was diagnosed in July 2015 and have been on it ever since. To date, I have not had any relapses, no new lesions, no active lesions and my bloodwork is stable. So far, its been a good option for me.
There is a good likelyhood I will progress to MS at some point since I have approximately 30 lesions in my brain - the doctors say that I have had this for "quite a while" and I have been lucky that I did not have symptoms before my first relapse. This is why I agreed to start medication right away.
As for choosing a medication, the MS Society has information on all of the available drugs and their side effects. Make a list of pros and cons for each one and then make your choice. All of the drugs have side effects and all of them affect each person differently. If you are not good with pills, then maybe try one of the injectables or infusions. I have no issues with pills, so for me, I was more than willing to take a pill 2X/day - it seemed to be the most convenient option with "livable" side effects. I had a rough start with stomach issues, but my doctor adjusted the titration and all was well. Now I do not have any side effects other than the occasional random flushing and slightly thinner hair. For me, these are a small price to pay for 2.5 years with no progression to MS.
My advice is to read the information and discuss it with your doctor. Find a neurologist and/or specialist you are comfortable with who will answer your questions to your satisfaction. I have both a local neurologist and an MS specialist. Also, if you try a medicine and it doesn't suit you for one reason or another, don't be afraid to change it. The first one is not always the right one for everyone. Oh, and the book "MS for Dummies" was a huge help in understanding MS.
If you want to talk more, feel free to contact me. Best of luck in your journey! K