Ok so I guess I should start with some back info, about 4 years ago I had woke up and had no use of my left arm, I thought that it was due to sleeping on it the wrong way. I waited for 2 days before going to the doctor about it, then when I went for it they sent me for a CT scan and said that they "thought" it was a pinched nerve in my neck. A week after that my back was numb, again off to have another CT scan on the spine, and again " thought" it was a pinched herniated disk in the lower back. I started Physio on both for 2 months and I felt a little better.
A few months later I started having problems with pain in my back and hips on a regular basis, and then the doctor told me that I needed back surgery, I asked for a second opionion and thank god I did, because I didnt have a pinched nerve, nor did I have a herniated disk. I was told that I had Fibromyalgia, so for the last 3 years I have been treated for Fibromyalgia. I did all the research on it and changed a lot in my life to help cope with it.
Back in November I pulled a muscle in my hip well at work, I have been going through Physio for that ever since the end of Nov, and I was doing really well and coming along very well.
On to now, about a week and a half ago, it felt like my feet were wet, I was determined that they were wet and changed my socks about 15 times in the run of 2 hours. About 4 days after that my foot started going numb . Last Thursday I got up in the morning and put my feet on the floor, I felt fine until I stood up. When I stood up it was like my Left leg was not even there, and I feel to the floor. I didnt hurt myself but more startled myself, I got up and went to physio, I could only do half because my leg was going numb and I could not feel my toes. I just passed it off to the fall, but then on Friday I had no use of my leg or foot, and I couldnt walk on it, and all I could do was drag it.
Off to the hospital I went and they couldnt figure it out, they sent me to another hospital to have an CT Scan done and it came back clear, so they said that there was no pulled muscles or pinched nerve. They had trouble finding the paluse in behind the knee, and in the groin area. They are trying to get me in for an MRI right away, and to see a nerologist but after seeing 3 different doctors they have all told me that they are 98% sure that I have MS.
I was told that if the MRI comes back clear then it is MS, or if there is leassions then it is full ms, but the MRI is more to make sure there is no bleeding in the brain or in the spinal cord.
I am so confused, can someone please explaine it to me???/ I am so nervous about it all and I Dont have a clue on what to think. If you made it this far thank you for reading it all.
Thank you for sharing your story and I am so sorry to hear about your ordeals. I'll start with some background on my diagnosis first. I myself was diagnosed with MS in late July of 2017 after a brain MRI came back showing lots of MS lesions and a spinal tap came back positive for high amounts of elevated protein 'o' bands. Due to the amount of lesions & 'o' bands, my neurologist believes I'd actually had MS for quite some time. I think you definatley need the MRI of your brain, some bloodwork to rule out Lyme's disease for example and possibly even a spinal tap, but that's all up to your neurologist. Here's some info on what MS is exactly. Multiple sclerosis is an autoimmune disorder that affects the central nervous system (the brain and spinal cord). MS is a disease that occurs when the immune system attacks the myelin, or covering of the nerve fibers in the brain and spinal cord. As the myelin becomes compromised, the nerve signals grow abnormal and the clinical symptoms can manifest as sensory and motor dysfunctions. In the early stages of multiple sclerosis these dysfunctions may be similar symptomatically to other conditions. Signs and symptoms can include:
Signs and symptoms of MS can include:
Muscle weakness, stiffness or cramps
Tingling, numbness or pain in your body
Tremor (shaking) in your arms or legs
Loss of balance
Problems walking or moving your arms or legs
Fatigue (feeling tired all the time)
Bladder or bowel problems
Thinking and memory problems
Here also is a link of criteria/ guidelines for MS diagnosis to review Click for criteria tipsheet
The members of this site will always be here for you no matter what your diagnosis is. Feel free to reach out and connect with me and send me a message if you'd like. There are also MS support groups out there and perhaps you can find one local to you if need be. Again thank you for sharing your story with us all.
Not all wounds are visible. Walk gently in the lives of others. - anonymous
I'm sorry you are going through all this. I'm sorry they are not giving you answers. The first thing I suggest is going here https://www.nationalmssociety.org/
and checking it out. It might help you understand better.
I will tell you that at first I got an MRI for my symptoms to rule out anything serious. I had multiple after that to finally give me the diagnosis of MS. They found lesions on my brain and spinal cord. This was my experience but everyone's can be so different. Good luck!
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