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diagnosed today*

Hello to everyone who reads this..I have been having symptoms for 3yrs(tingling in hands..feet..burning and sticking feeling..numbness..I guess my drs was all in my.head..finally I was referred to a neurologists..she had 3mri s performed..which.I closed in..been going back to… Read More

Having no one to talk to *

Hello everyone ūüėä I am new to this site so I hope I am posting this in the right place. I am 28 and have been recently diagnosed with multiple sclerosis back in March 2014. The thing I am finding the most difficult is that I don't know anyone personally with the disease, all my family and friends don't… Read More

Riding a motorcycle *

I have had MS for over 20 years and I've learned to adapt to try to keep doing the things that I enjoy. ¬†I haven't been on a motorcycle since before I was diagnosed and now I have a new friend that I would very much like to go riding with. I am just concerned that certain symptoms will make it a challenge… Read More

Handicap in the Bathroom *

My mother has been living with MS for almost thirty years. The last five have been the worst. She can no longer walk and uses an electric chair. The biggest issue we face at the moment is her inability to get on and off the toilet on her own. My father is able to assist but works M - F so isn't there all the… Read More

Physical Therapy *

Hello, My name is Cynthia, my Mom has had MS for 15 years, she lives in Freeport, NY,¬†I need assistance to try to find programs that will offer free or low cost Physical Therapy, she is on Medicare, so she is only allowed 20 therapy sessions per year, and let me tell you that is not enough. Any help would be… Read More


This is a link to part 4 on my story with PPMS. I call this section "Looking for Balance" because of the wide spectrum of responses we get from others concerning our disease. Hopefully this video and others will help educate those close to us about what kind of reactions we appreciate from them. https… Read More

MS and herpes *

‚ąęJust wondering if any of you have genital or oral herpes with MS. Has it posed additional problems? I was reading that getting a herpes outbreak can send off crazy signals that trigger an MS flareup. Just wondering what others' experiences with this have been. I'm not sure if you can private message me if… Read More

MS and Yoga*

Looking for input and a Yoga connection in the San Jose, Los Gatos areas. Any ideas are welcome, as are your experience and input with using yoga to support your physical wellness. Thank you! Read More


hey everyone I just started copaxone only three shots in and can't help but think I should have gotten something else I wanna stop this dead in its tracks nurse said this could take 3-6 months to start working which I personally think is nuts.. But then again I don't know anything about other medicines has… Read More

primary progressive

i would love to hear from any one who has been dignosied with primary progressive. ¬†I am 56 ¬†been around the block with a new ¬†guy who say it is rare and can not believe he has seen two in two days. ¬†he spent 45 ¬†minutes telling me the ¬†radiologist and primary was wrong. ¬†Now I know they can not dignosis,on a… Read More


Me...again! My mom had a doctor's appt. the other day that went horrible! We got awful news and I am looking to help her in anyway I can. She has had MS since '93 and has been in a wheelchair since '96. Looking at a better diet for her. Does anyone have a food regimine they use? foods that help/dont help… Read More

MS and essential oils *

Hey all- New to the site. My Mom has been battling MS since '93 and has been in a wheelchair for most of that time. I am 30 and feel absolutely helpless. I have heard a lot about essential oils and have dabbled in them a little bit myself. I was wondering if anyone has used them? Have they had any affect… Read More


So, I am new to MS. Diagnosed right at thanksgiving. ¬†Nothing says happy holidays like MS! Turns out, I have had MS for like a decade and was chasing symptoms instead of the cause.anyway, has anyone else gone through several combinations of muscle relaxer and nerve pain medications? I am on my fifth one… Read More

East Coast Hotels

Hello, I travel twice a year on US East Coast. Do you know of suitable hotels, not only with roll-in shower rooms, but also that provide fit adult commode-shower chairs with wheels. I am having difficulty finding such hotels. Thanks. Read More

Moral support needed.....

Hello all! I havent been on this site in quite awhile...I moved away from Indiana 1 1/2 years ago to move to ohio in with the man I love. Right now it seems as though we are 2 separate people? He says that he supports me and that my MS doesnt matter...yet...2 yrs ago he wanted to marry me...he proposed and… Read More