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I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More

pets helps us

I have a situation, my daughter gave me a lithe and beutiful mini sznauzzer 10 pounds for emotional help and belive , that beutiful dog change my day making me laugh, smile and very happy.  The administration of the complex request me a letther  that  explain that i need a dog because im a multiple sclerosis… Read More

Fear of Losing Mobility*

Good morning, I woke up in the middle of the night, again, so I decided to start this string in order to get some fedback from people that struggled with the same isse as me. Fear of losing my mobility! I have been living with MS for almost 16 years.  Like most of you, I deal with numerous crazy  symptoms… Read More

How do you cope with a foggy head?

Wow, this foggy head of mine seems to be unrelenting.  Just wondering if others here take any meds that have helped with this issue or have suggestions other than rest?  My biggest issue seems to be a wall that goes up in my brain that keeps me from solving problems, adding numbers, remembering details from… Read More


Alright guys so in a few weeks, if my nurse calls me this week,like my Doctor said she would then it will be set up for me to start taken tysabri. I'm wondering if I can drive afterwards? I'm not planning to go alone the first few times but I'm just wondering if anyone can answer me please? I've went to all my… Read More

Trying to get my family to get it

How do you get your family ( kids and husband) to be interested in finding out what I'm going through ? I don't doubt their love and care but I'm trying to share things about symptoms, ms info, etc and they won't reciprocate interest! They don't get how hard it is to work full time, I can hardly walk and talk… Read More


My husband and I have been trying to get pregnant for 3 months now. My MS is getting worse like endless fatigue, walking trouble, cognitive problems, pain, lack of sleep and bladder problems. I keep trying to talk to my Neurologist about these problems but he says he cannot give me anything because I am trying… Read More

Do you talk to your brain?*

There is the part of my brain that tells me how I feel emotionally about something. good, bad, happy, sad etc. Sometimes my brain has been tricked into thinking emotionally a certain way, by parental controls, dont touch the stove you will get burnt, dont go in the street a car will hit you. But most of the… Read More


Hey all, I got diagnosed This April and at first it was hard. But anytime you feel down and upset just remember you’re breathing and you have a bright future with the technology and medicine we have today. I know it’s just the beginning for me but sometimes just a hello or have a good day is all you need. Even… Read More


In Dec 2016 my neurologist met with me and told me I had PPMS based on the MRI results she was showing me. Since then through now i have "ran" with this "diagnosis". It is VERY apparent that i have MS, has been that way for me for even a year plus before my diagnosis when nobody knew what my difficulties were… Read More


As Turkey Day approaches we are reminded to be thankful for what we do have and can still do. November is often referred to as Gratitude month...which is great advice to focus on everyday but extremely helpful as we kick off the dreaded end of the year holiday season.  For years in times of "trouble" and… Read More

Negative Experiences*

As I go through this site and discussions I always see and contribute to ways to stay positive and have a good outlook. We all know though that there are plenty of downs while navigating through life with MS. I am just wondering what some of your negative experiences have been. I feel a bit fish out of water… Read More


Have been on Copaxone since 1/15/13. Struck with MS disease 11/1/12.  Very beneficial effect, could feel beneficial effect with first dose.  Lessens or eliminates beestings all over, confusion, headache all day, unsteady gait, emotional instability.  Have some bleed through itching in hands when I wake up, hand… Read More

Why ?*

I haven't posted a photo of myself on my profile because I cannot figure out how, so maybe someone can help me with that. TY I haven' t posted my story , I am not feeling up to it. Its long, painful ,and depresses me , I will one day but not tonight. I was dignosed 2 yrs ago, im a retired NYPD police officer, I… Read More