Search Discussions

Main Content

Daily Life

Don't know what i don't know*

The old saying, "I didn't know what i didn't know." has been a hard pill to swallow while navigating my one unpredictable moments at a time during this first year of being newly diagnosed. All my previous 50 some odd years of life experience has surely not prepared me for this. I've read and heard about how… Read More

Dating or finding a spouse with MS *

I would very much like to remarry. I have been divorced for over 3 years, but with fatigue it is difficult to get out and actually be in places where my Knight in Shining Armor might be. I work a full time job and still have to do the day to day stuff that has to be done to maintain my dwelling place and me. I… Read More

I want to DO things...but then MS*

I want to go to every support group, meeting, gathering... but then MS.   Pick a symptom and I will show you a roadblock: transportation is barely tolerable or on time, I’m tired, in pain, numb, can’t speak clearly and barely walk. Then ANXIETY..oh the biggest monster of all.  It steals thought, makes me SO… Read More


Hi all,  just curious what everyones everyday symptoms are being in their 20's. I had always imagined only getting everyday sympoms as I got older until about 6 months ago started to get tingling in my right foot and has never really gone completely away and still wondering i it will ever go completely away.  Read More

Just another NEW MS'er

In a nutshell, I am 32, and just diagnosed with MS. The text book symptoms..I had facial numbness and now pretty much my whole right side of my body is numb. I did have some vision ON problems and just finished my 5th day of IV steroids...I FEEL HORRIBLE. NO TAPER, I am really sick of feeling numb and crappy… Read More

Newly diagnosed with MS*

Was wandering if anyone else have a feeling of your head feeling cloudy or maybe feeling as if your high. With this feeling you can still have a productive day but maybe coworkers ask if you tired all the time. I could feel fine but my face or eyes says something different. Just wandering if anyone else share… Read More

Moral support needed.....

Hello all! I havent been on this site in quite awhile...I moved away from Indiana 1 1/2 years ago to move to ohio in with the man I love. Right now it seems as though we are 2 separate people? He says that he supports me and that my MS doesnt matter...yet...2 yrs ago he wanted to marry me...he proposed and… Read More

Feel so down..*

I have been feeling so down lately and don't know what to do. My doctor took me off my medicine so the pain is horrible. My bills are pilling up and get more expensive, I'm working over 80 hours every two weeks. I can't get back in school because of my medical bills. How can I pay these bills off? Read More


My name is Dave, diagnosed in 2009, feeling the effects of inadequate excercise and physical activity.  I wondered how others are doing with using a bike to get around on a daily basis, for trips to store etc.  Long ago, I was able to manage a bike pretty well; a bike keeps itself balanced pretty well if in… Read More

Career, What now?

Well, My goal was to become an RN, I was a CNA for 7 yrs. The past 6 yrs I was a CNA at the hospital and it was a big floor, so constant running.  The beginning of 2012, I was developing fatigue, for 5-6 months I didnt know why I was getting to "tired", "Exhausted". So OBVIOUSLY I have a Heat tolerance. So I… Read More

Care partner*

Hello everyone! My name is Michelle and my girlfriend was recently diagnosed with RR when it comes to conversation sake but on paper it is considered secondary. I was just hoping that anyone in a similar situation can share their stories with me. I am striving to learn more and more not just about the disease… Read More


Sorry for the long post but I need to rant.Haven't posted in awhile, but I have been working and taking care of my kids 4 and12.Well gave been treated for three flares this year, my 4 year old was diagnosed with ADHD and PTSD and adjustment disorder also developmental delay. Have been running around like a… Read More

MS is a lonely disease*

Hi everybody, I am new to this site, so thank you for reading this. I am struggling very hard with the fact that my family refuses to acknowledge my MS. My mother told me I didn't have it and any time I try to bring up anything about it they literally ignore me. It has been 6 years since my diagnosis and… Read More

Anybody have trouble getting stuck?*

I feel embarrassed by this but i have trouble knowing what i need to do and then doing it. I end up doing nothing but sitting and crying. It's like i hit an invisible wall. Someone can tell me what i need to do, but as soon as i am on my own, it all seems like i cant get there from here. I dont know how to… Read More


   This current attack is not responding to steroids or neuropthy meds. I've been using a walker but can't go far or carry anything. I find out about a wheel chair, hopefully, next week. If I'm only approved for a heavy one it won't help. I don't know how to do things with a wheelchair but I can go further and… Read More


My husband and I are currently looking to downsize to a new home. He's looking at it from what size works for a couple in their 30's with no kids and no interest in kids. I'm looking at it from the angle that stairs make my legs feel like cement bricks. I know logically that if I keep walking the stairs I'll… Read More