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  • TrishSue
    Hello all!
    I havent been on this site in quite awhile...I moved away from Indiana 1 1/2 years ago to move to ohio in with the man I love.
    Right now it seems as though we are 2 separate people? He says that he supports me and that my MS doesnt matter...yet...2 yrs ago he wanted to marry me...he proposed and put a ring on my hand...I had a MRI done which showed the MS hasnt grown...yet I have to take copaxone shots daily and sometimes things he says makes me feel sooo much of a burden... :(
    I have no friends here in ohio...I do not know anyone...
    I attend the Y a couple days a week to get out from the house...I am severely depressed.
    The shoulder to lean on I thought that I had...seems to be in another world...unless he wants some....special time that is...LOL!
    I receive Soc Sec income and its not much...I will begin substituting Aug 22nd which I do part time...right now I am kinda dependent upon him and he knows I cannot go wnywhere. The verbal abuse is so sad some days the way he says things makes me have an anxiety attack and I cry so much....I am depressed and feel so alone. :(
    Is there any organizations you could refer me to that might be able to help me find a place to move to? Assited Living perhaps? I dont know what to do right now.
    Any help appreciated : )
    Thanks and God Bless
    Trish Sue
  • grannymel2009
    Be very careful. lived in Ohio for nine and 1/2 years and my ex was very abusive, both phys and mentally. I called the police and the "good old boy sys" would pick him up and keep him and then let him out. I don't know where exactly you are but just be careful. I wish I had some sage wisdom to tell you or some magic answer but I don't. But know this....I am her for you too.
    We just met but we are sisters of the abuse wars and we will fight together. I swore never to cross the Mason Dixion Line ever again but for you gf I will if I have to. 
    Be strong and keep your head up, you have nothing to feel sad or bad about.
    On a side note, has he always been this way or is this something that has come on gradually or suddenly? I have warning bells going off in my head (besides the ones from the MS) he may have a chem inbalance or some other neuro thingie going on. Just a thought that popped here.
    GOOD LUCK TO YOU and keep us posted on your stats ok?
  • MS_Navigator_Brian
    Hello TrishSue,
    I looks like you are getting a lot of good feedback.
    I am listing the support group and professional counseling resources in Hamilton,OH below. I hope that this is helpful. Brian.
    (You may feel free to discuss your situation with National Domestic Violence Hotline:http://www.thehotline.org/get-educated/what-is-domestic-violence/  ).

    Butler County Support Group:  Contact Betty 513-863-5239, meets at Knights of Columbus Hall; meets 3rd Tues, 7-9 pm Office is wheelchair accessible.

    PROFESSIONAL COUNSELORS:
    Tri-County Christian Counseling Services
    9900 Princeton Glendale Rd R Cincinnati OH  513-860-2333    CONTACT: CAROL WILLIAMS   
    Downey, Jas B. 780 Nilles Rd Fairfield OH 513-858-3777     ACCEPTING NEW PATIENTS
    Clark, Brett     513-759-8300

    The National MS Society contact information is 1-800-344-4867, opt. #1, 7-5pm MST, if you choose to speak with us directly.



  • Katrina-Renee

    I live right in hamilton but dont always have transportations. It would me alot to me to find a way to particapate.

  • midget
    Hi Girly,
      Jennifer here! I am 37 years old and I have had M.S. for 16 years. I couldn't help but think I was reading a post I would of put up 10 years ago.  I have been thru every bit of what you are experiencing for almost the entire time I have had this disease. I wanted to start out by saying you are not alone, and what you are feeling is par for the course with M.S. I have been thru every possible senerio you can imagine! I really don't even know where to start, so I will let you start with: venting to me, asking me "ANYTHING"  and I mean "ANYTHING"!    Nothing is a sensitve subject to me. Actually, seeing your post and knowing that I might possiblyhelp somebody out is therapy for me also. So lets start a new friendship that will hopefully last our lifetime. I beleive that people can say they understand, but after a while you feel like they are aknowleding you but feel they are hearing the same ole complaints as we always have. You can have a partner that is 100%  supportive of your disease, but supportive doesnt always mean they unaderstand hun. Another thing I want to urge you to check into if you are having as many problems with CoPaxon as I did. The pain of the daily shots was alomost to much and overwhelming for me most days! I strongly suggest that you try Avonex! It is a weekly shot, not daily. I am going to strongly suggest you ask your neurologist to start you on it if you are having as many issues with it as I had! If you would like to text me or call me, it seems it would be way faster to do that on the days you think the end of the world is coming and you have no one that relates to your mental state of mind. Please, call anytime if you need to. I am considering myself as your "sponser" until you tell me different sweety! Look foward to hearing from you.....! My number is 913-514-4231-Kansas  Best Wishes Jenn
  • IntheDark
    SSIONS GROUPS SUPPORT BLOG IntheDark IntheDark MI 0 Appreciations Edit My Profile My Account Please complete your profile Add to your profile for a more personalized experience. Birthday Only your age will appear on your profile Make my age private to other users Activity Feed What's on your mind? Post Sort Activity Hi I'm new here not sure what I'm doing. Can someone help me my EEG says I have a right brain lesion is this a sign of MULTIPLE SCLEROSIS? I pasted the results please help thank you! The background activity consists of 9 hertz low to moderate voltage bilateral occipital alpha activity which is more developed over the left hemisphere. Intermittent periods of drowsiness are seen in the record. Muscle artifact are seen in the anterior head regions. There are no definite epileptiform discharges seen in the record.ACTIVATION PROCEDURES: Hyperventilation and photic stimulation do not induce any abnormal changes.INTERPRETATION: Abnormal, due to the presence of asymmetrical alpha activity. CLINICAL CORRELATION: This is consistent with a possibility of right hemispheric lesion or dysfunction.
  • rikicat
    Hi Jenn, reading your reply made me want to reach out to you. How would you handle my situation? I'm 47 years old. I care for my 90 year old mother, who I moved to AZ from OH, with my father to care for them six years ago. My father passed 4 years ago. My siblings love in Ohio and are no support. My husband of 9 years, is an alcoholic narcissist. I quit working, when I moved my parents in with us, as they were helping financially. My mother can't help that much anymore, as her single benefits are limited. My father-in-law died a year ago, leaving my husband a large chuck of money. He's squirreled it away, so I couldn't touch it in a divorce. I never dreamed of having MS, but I was having so many problems, I started seeing an orthopedic surgeon. A spine MRI found the first legion a couple months ago. Then the follow up brain MRI found two inactive legions in my frontal lobe. First visit with my neurologist on 8/2/17, between physical, talking and MRI results dx' d the MS. After years of being called fat and lazy by my husband, he still couldn't apologize. He immediately lost it about how my disease was going to bankrupt is and he would have to go back to work until he dies, until I can get on Medicare. He doesn't help me at home. He's isolated me to where I have no friends I can talk to. And I have two dogs and three cat's that are my life. None of which I originally wanted. He wanted the animals and now everything's on me. I could never leave them, because they pretty much wants nothing to do with them. I only loves me for what I do for him. I'm in so much pain and have so much fatigue, I couldn't even imagine going back to work. I'm pretty much screwed huh?
  • manda103180
    So very sorry your going through this keep your head up
  • msfish
    You have got to get your mind on something else. That was me  last week I was so depressed. I am currently working and my job pays for 6 free visits to a shrink. So I started going. Last week on my 2nd visit  I was sitting there crying. 

    Shrink, '" Do yall have any ms support groups you can attend " Me. "No I havent been able to find one in my city"  No sooner than I got that out of my mouth the light bulb went off in my poor brain. lol

    I am going to start one. So  I now have a contact in the nmss and I have  2 months  rooms reserved for meetings. I have a new goal and something to take my mind off this awful disease.

    You can do it to girl.

    Lori
  • maria1
    Trish Sue
    Solving Problems begins with communicating. You have begun very well. The proof is in the pudding! Military info is alien to me. When I was old enough to enlist they did not want women so you ladies are mavericks. What I can tell you is that many of our firends are retired or disabled military and the va has been their best resource. Besides that, last year my neuro quit because the military made him an offer he could not refuse, six months later my gp quit to go work for the va. From the outside looking in = now is the time to take advantage of all the resources the va is offering = because soon they will, like everybody else, run out of money. Make an appointment without delay, please.

    Also, when i ran into an issue that I kept saying yes, no, yes, no..etc. I learned to flip a coin to get me off the fence, and if i did not like the answer i could always change my mind. have a hug for fun anf giggle too,
  • leesa
    I am so sorry. Your areawsome for recognizing the situation. Your intelligent. Start a list smooze him while you sock some money away and make your plans! I have faith in you.
  • leesa
    Praying for you always a one room studio alone is better than abuse! I had my first job as a traveling photographer in ohio. Ohioans are the kindest, warmest people i have ever met in the U.S. i almost never stayed in a hotel. I was always invited into peoples homes. Go Thru the storm and you will come out the otherside to see the sun. Dont blame your friend if we struggle with ms imagine how scary it is for him. HE LOVES YOU he hates MS. If you love him then you can understand..... we are all here for you . You have to pull yourself together and do what you need to do. I know you can.
  • pop
    TrishSue -  on your profile you say that you are a veteran -it might not be much help, but go to the Veterans Administration web site and see what benefits you are entitled to - this might be a starting point,  There is a lot of information there.
  • THERESAF
    I need Magic!
  • maria1
    O k, now you know, you have to stand tall all by yourself. You can not lean on him. You can lean on no one. U are prepared to be independent. Work around the idea that you are alone. Separate yourself and stand in a place some place where you see the sunlight coming through a window but not the view and feel the strength of independence. All around you is the power of you.

    Right now you are working on being free, a new place with no hindrance, no interference, and nothing holding you back, from being as big as you can be. Like the bird pushed out of the nest, It is your time to fly.

    Stand alone in the place where you live. If necessary communciate with your room mate,
     keep the ring to cash in later. You are not a victim unless you allow yourself to be victimized. Get tough. Put a shield around yourself, a shield that will allow you to ignore verbal communication that is unhelpful, Only collect helpful information. Throw the rest of the stuff out. Who you are is ready to explode into creative activity that is important to you. Focus on you and what makes you happy. Forget about everything else.

    I know the place where you are, and have been there, and can promise you that you can succeed to enjoy your life, if you tell yourself that you refuse to be a victim. And that it is not being done to you. It is a movie being played by someone else and it has nothing to do with you; If you own the misery you will live with it a very long time. It does not belong to you. Let it go and get on with your life.

    Build a strategy, follow through with finding housing. If desperate go to a house of worship and speak to someone asking if they know of available housing for a less able individual who must move right away. This way they are a reference for you and for them and a good bet for safety. Think safety. And that you do not want to be a victim. No matter what they throw at you. We all will if nothing else give you emotional support where you can verbalize frustrations.  .maria
  • Michellle
    Perfectly Put Maria!!!!   It works for ALL of us!!!
  • wendybrown775
    I was reading your advise to TrishSue and I thought it was very inspirational.  I too needed some inspiration.  My struggle with MS has left me very dependant on others.  My husband doesn't complain, but I feel like he is bothered sometimes.  For instance, we used to get out more together.  Now he mostly goes alone.  It leaves me feeling lonely and I can't help but think my inability to keep up is the problem.  He doesn't want to talk about things.  Maybe I make too big of a deal about it. 
       I see God is my only refuge.  I pray a lot!  It really helps to know he is always there for us.  Sometimes it just does good to reach out to someone who understands what you're going through that can give you advise.  The only people that can help are victims of MS.
        Thanks for the insipiration!!
    Wendy
  • maria1
    I just googled hamilton ohio ymca, they have a program where you can fill out an application for assistance for membership at the Y, can't get any better than that!
  • joynerthedad
    Hello all!
    I havent been on this site in quite awhile...I moved away from Indiana 1 1/2 years ago to move to ohio in with the man I love.
    Right now it seems as though we are 2 separate people? He says that he supports me and that my MS doesnt matter...yet...2 yrs ago he wanted to marry me...he proposed and put a ring on my hand...I had a MRI done which showed the MS hasnt grown...yet I have to take copaxone shots daily and sometimes things he says makes me feel sooo much of a burden... :(
    I have no friends here in ohio...I do not know anyone...
    I attend the Y a couple days a week to get out from the house...I am severely depressed.
    The shoulder to lean on I thought that I had...seems to be in another world...unless he wants some....special time that is...LOL!
    I receive Soc Sec income and its not much...I will begin substituting Aug 22nd which I do part time...right now I am kinda dependent upon him and he knows I cannot go wnywhere. The verbal abuse is so sad some days the way he says things makes me have an anxiety attack and I cry so much....I am depressed and feel so alone. :(
    Is there any organizations you could refer me to that might be able to help me find a place to move to? Assited Living perhaps? I dont know what to do right now.
    Any help appreciated : )
    Thanks and God Bless
    Trish Sue
    Good evening TrishSue.

    I can tell you that you are not alone.  Keep checking around and asking people here for support...you made a great first step!

    You just hang in there and if it is moral support you need...
    ...you can definitely find it here.

  • aggie04girl
    ::BIG HUGE HUG::

    If I knew the answers I would give them to you sweetie!  Do you not want to be with him or be with him, but be more independent?

    Maybe apply for section 8 or some kind of assisted living program?  Try 211.org they list all sorts of programs by city and state.  I know there are some assisted living places or listings for cheap places to live.  I know that even navigating all the beaurocracy is stressful enough to almost trigger an episode with me, but it might make things better.