My memory is probably my worst symptom. Having so many App choices, is there one that MS folks have found especially helpful in remininding them of either important meetings, to-do lists, dealing with their MS, etc?
sil, We all agree that the calendar works for most reminders, along with post it notes. Routine and simplicity help too. If it's monday this must be..... The more independence and autonomy we utilize the stronger our wills. Having others be our memory weakens our self image so even if we forget things it is better than the old, mother please i'd rather do it myself. Since my sleep patterns are erratic I lose track of the calendar for my shot doses, so the calendar is on the frig and i still miss shots.
Putting things in the same place ALL the time doesn't always help either because nothing is ever where i put it.
Being aware that we have deja vu and jamais vu experiences all the time helps dispel the frustration. Most often for me, dealing with the emotional side of ms is a lot of work. Not expecting anything to be 'normal' helps the mind cope. Every day being a surprise party, not the one we want, makes it easier to adapt. Once the mind gets the practice of nothing ever being the same, like today i cant think, today i have difficulty walking, today my hands let go of everything, today i cant see so good etc. then all the disappointments drift away and i amuse myself, watching myself, to see what i am doing. Once in the routine that nothing is routine there becomes a norm of sorts that we can cope with. It takes practice, like every day not getting upset with ourselves for what we are doing or what we are not able to do.
Writing stuff down helps a lot. Using a wall like a tic tac toe board with categories, job, home, car, self, family, uncle sam. There is the KISS rule, keep it simple stupid, another rule i learned from my friend Elaine, whom i thank every day---I am a very lazy person, i find the fastest easiest way to get the job done.!!!! good luk. maria