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  • myabonita
    I was diagnosed with MS a year ago. Along with that a few months later I was diagnosed with Trigeminal Neuralgia. I have been suffer with this since before my diagnosis and did not know what it was. I feel like my goals that I want to achieve are so far fetched because of both illiness. I have my MBA and I had planned to teach at a Community College or on day be a Director or Dean of a college. With that being said I am in pain 24/7 and when I am not in pain I am hopefully but then it ia short lived. I am on copaxone and now nortriptyline for the TN. I have a liason on my spine and I have had numbness over 4 years and didn't know I had MS. My legs are worst now than they ever been and I can't stand for very long, sometimes I feel like I am going to fall. It's very hard to see my future as bright a d all that I have work for seems like all for nothing. I hate to complain and talk about it but it's the way I feel. I am married and have one son and I am not my old self. I was very outgoing and I loved doing the simple things in life but now I barely do anything and schedule myself around sleeping and pain. I have a full time job. I'm an admissions advisor but I want more, it just seem so far fetched.
  • Vlmurphy
    Hi, I was diagnosed with MS less than a year ago and understand how you feel.  I'm sorry to hear you are in pain a lot.  That is difficult. I find with MS my pain and numbness come and go.  At times, I feel like I will never walk without pain again, and then I have periods when I have no pain with walking.  It is quite an adjustment to figure out your stengths and limitations in a life with MS. I encourage you to not give up on a positive future, it just may be a different journey than you had planned. Good luck!
  • myabonita
    Thanks I appericate that. I am so stubborn at times and feel like I have to do it all. It's very hard for me not to. I just need to come to terms with it and figure out how to move on and do the best I can do.
  • bubbadog66
    I've had presenting symptoms of MS years before my diagnosis. I'm 51 yo with a 12 yo active daughter...my simple goals in life seem out of reach to me as well. Same leg/feet/hands issues...always in pain....my cognitive dysfunction scares me the most. Many people with poor physical health typically say, "At least I got my mind."....i can't honestly say that. Getting from "here to there" seems impossible...the progression of my particular MS seems very rapid and declining. The SSDI people claim i am capable of substantial work....i can't even envision such a thing given my current condition, especially in rural Maine. I had to give up driving late Dec 2016 before i hurt myself or God forbid someone else. Did wonders for my anxious depression. I struggle with keeping the faith that everything will be OK. The insidious "not knowing" what tomorrow might bring is the most uneasy feeling when contimplating what this "OK"or my new "normal" will even look like!! Goals are great, but being sooo new to this MS thing, yet not so new in my case given how long i experienced these MS difficulties, i haven't a clue what appropriate goals are. I know from past experiences if i keep my expectations in check and real i will suffer less disappointment when my goals/expectations do not come to fruition!! I feel your pains and wish you the best...thx for your discussion post. 
  • myabonita
    Thanks! I don't feel alone anymore. It took me a year to actually post something. Lol with spelling mistakes and all 😀 I was doing it from my phone and was at work at the time. It is very hard to talk to people especially when you are dealing with the unknowing. They believe you can do it or they want you to do everything their way. I am so happy you replied. Feel free to chat and let me know how you are doing.
  • jenc
    Hi there I was so relieved to see someone aroubnd my age going through similar problems and with a similar situation.  I have a son who is 11yrs and have suffered from ms for 4 years.  I have constant pain and my doctors don't help.  My neurologist won't even say what type of ms I have but I have never had a relapse, that's for sure.  I just joined this web support becauseI feel very alone and isolated...  
    =bubbadog66]I've had presenting symptoms of MS years before my diagnosis. I'm 51 yo with a 12 yo active daughter...my simple goals in life seem out of reach to me as well. Same leg/feet/hands issues...always in pain....my cognitive dysfunction scares me the most. Many people with poor physical health typically say, "At least I got my mind."....i can't honestly say that. Getting from "here to there" seems impossible...the progression of my particular MS seems very rapid and declining. The SSDI people claim i am capable of substantial work....i can't even envision such a thing given my current condition, especially in rural Maine. I had to give up driving late Dec 2016 before i hurt myself or God forbid someone else. Did wonders for my anxious depression. I struggle with keeping the faith that everything will be OK. The insidious "not knowing" what tomorrow might bring is the most uneasy feeling when contimplating what this "OK"or my new "normal" will even look like!! Goals are great, but being sooo new to this MS thing, yet not so new in my case given how long i experienced these MS difficulties, i haven't a clue what appropriate goals are. I know from past experiences if i keep my expectations in check and real i will suffer less disappointment when my goals/expectations do not come to fruition!! I feel your pains and wish you the best...thx for your discussion post. [/quote]
     
  • doglover700
    Hi. I just read through all the responses to this conversation and for the first time since my ms diagnosis over 2 years ago I don't feel completely alone with my ms experience! I am almost 43 and already thinking about not working.  I too am in pain and very stiff pretty much all the time. I long for the days my body felt energized, flexible, and free! I work full time and use fmla. I have thought about and even begun the application to teach at a community college, but am very hesitant to do so feeling so bad so much of the time. I try to stay positive but it does get hard sometimes. I agree it is so difficult to think about future goals with this illness. I have found some of the work of eckhart tolle to be helpful, the power of being in the moment. Thanks to all for talking about your experience, definitely helps to know I'm not alone. Peace
  • myabonita
    So glad you post. I also try to stay postive but pain gets the beat of me and it gets frustrating. My doctor did not send in my paperwork for FMLA so they denied me so I am trying to continue to ride his back about it. I am almost 35 years old and just start getting into my life, my prime and now I feel like I'm 70. But just keep hanging in there. Feel free to vent. It helps me relieve my thoughts.
  • myabonita
    So glad you post. I also try to stay postive but pain gets the beat of me and it gets frustrating. My doctor did not send in my paperwork for FMLA so they denied me so I am trying to continue to ride his back about it. I am almost 35 years old and just start getting into my life, my prime and now I feel like I'm 70. But just keep hanging in there. Feel free to vent. It helps me relieve my thoughts.
  • capitolcarol
    myabonita - 

    Hi, I am another one that is in constant pain.  I have two different pain killers that I take way too much.  It is such a different life than what I used to enjoy - my new normal.  You can and should always have long-term goals.  You have to have a reason to get out of bed each morning!  You can plan things or events and that will give you something to look forward to or something to take your mind off of your problems.  Exercise even though you are in pain is beneficial and also praying helps.  Don't give up on yourself or your goals, you have a future.  Be sure to keep in touch with us, it helps.  

     
  • myabonita
    Thanks! I needed that. Sometimes it's just so hard but yes my goals keep me driven. I feel if I just say forget it I will deteriorate. I look forward to the good days it gives me motivation....Painkillers are my middle name but I really don't take as much anymore because I was overloading them. I just suffer through the pain which I'm not sure that is a smart idea. Sometimes the pills help while other times they don't work. I hope you are doing well as to be expected. Definitely keep in touch. I am feeling a lot better knowing I'm not alone.