I am 47 years old have been struggling with MS related fatigue and cognitive impairment since Dec 2013 and went on disability back then. I miss working and feel deflated about not contributing to society. I have contacted the local state Vocational Rehab office to help me maybe land a part-time job. I am scared that I will never be able to work anymore given my cruel fatigue and cognitive issues. I would be afraid of losing my disability benefits in case I fail at reentering the workforce effectively. What are your experiences with returning to work and/or maintaning a job given all your symptoms like fatigue etc.?
I recently had to start Adderall to help with my fatigue. I wasn't getting anything at work done and had to take numerous breaks. It got to the point where i could barely force myself up to use the restroom. You can try natural way. I make the turmeric ginger lemonade with added vitamin c powder that gives me a nice boost of energy, I dont like to take too many Adderall but it is nice to have for those really dificult days.
I have been exactly there. After one flare, I refused to apply for SSDI. I went back, but failed.
Try part time. Also, familiarize yourself with the "Ticket to Work" within SSDI. You can work within those parameters and not lose SSDI.
If you want to contribute, look into volunteer activites. They can be fulfilling and even therapeutic without taxing limited energy resources.
Perhaps with those, you can build up your stamina again and feel confident about what you can do.
I know how hard it is to suddenly not be able to work because of our MS. I have all these obstacles and sometimes, unfortunately, too many years have gone by and I just wasn't able to work. But, it was only volunteer work that I was able to help out during their crunch times. I wish I could or rather would be able to handle my MS and chronic back problems and be able to work some part-time. I feel so guilty not being able to help out financially. Hope you are able to find some kind of work. Good luck and get back to us.
Worst part about job is the fatigue especially in the afternoon, disaster and poor sleep make the fatigue worse
I tried to take sick leave from time to time to keep myself on track