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Family and Friends

Frustrated about people not understanding.*

 My family and close friends try to help when they can and try to understand but they can't fully. It's easy for people to forget that there are every day struggles for us living with ms. My boyfriend forgets at times as well and we live together. We go about our days looking the same but underneath a lot is… Read More

My brother *

My brother has been my anchor the last year and a half. He's helped me when I was giving up hope. We typically get along fine... BUT (isn't there always one of those?) he simply cannot cope with the fact that I research stuff. He decided when I said I suspected I might have MS (I told him a little after… Read More

Personality changes*

Since my husband's MS diagnosis in 2014, he has gone from being compassionate and caring to abrasive and hurtful. He agrees that his personality has changed and he says that he chooses "to not filter" what he says.  When he gets wound up, I don't recognize the man I married. If his behaviour were due to lesions… Read More

Depression *

 My boyfriend was diagnosed in March of 2015 is RRMS and has been going through bouts of depression. For the last month, it seems as though he is in the stage of grieving. Since the end of June, he has talked about losing the meaning in life and recently, it has hit the spot to where he cannot get out of bed… Read More

Has anyone with MS done IVF?*

This is a bit of a long story and I apologize for that but feel I need to explain my whole situation (or maybe I'm trying to justify my decision...) I've wanted kids since I was a kid. I've always wanted to experience pregnancy, at least once, and being a mom is a huge dream of mine. So I worked with my… Read More

Understanding multiple sclerosis*

I'm getting alittle frustrated lately and I need to get some advice, or insist on this subject. I have been dealing with MS for almost 2 years now and I have been constantly told by people without MS or people who do not understand that it's a snowflake disease and no case is the same, "I know someone with MS… Read More

Diagnosed and in Denial*

My husband was diagnosed almost two years ago with PPMS. This is all very new for the both of us so I find it really hard to know what to say or what to do when I see hiim struggling. He has been in denial since he was diagnosed and at times angry. He has not reached the acceptance stage yet and unfortunalty, I… Read More

time with family*

Does the feeling of hurt, lonelyness, abandament and worthless ever get better.  When your family goes on vacatins or day trips without you?  Because they can't ever take you were there going. Read More

Where Are All My Friends???*

I use the word "friends" somewhat sarcastically, but ever since my MS took me out of the workplace all the people that used to call, email, invite me to functions, etc. seem to have all dried up.  Whats that all about?  I didnt think that just because I wasnt in the workplace that things would change to this… Read More

Passing on a faulty immune system?*

I am curious if any other parents on here with MS have little ones with immune system issues? My 7 year old has had issues with a very weak immune system, he cannot recieve his vaccinations because every time we try one he has terrible reactions: for example when he got the rotovirus vaccine after birth it… Read More

Family as caregiver?*

Hi. I'm new here and also newly diagnosed so forgive my bumbling around please :). My daughter just called and said she heard that family members can get paid to act s caregivers sometimes. But she had no idea how to look into that sort of thing. Since she's kind of in a weird personal spot right now and I'm… Read More


After my diagnosis in 2009, my husband and three young men were very worried & read a lot about MS, bought books, began cooking healthier foods etc, etc..... Now I have become a " Nuisance ". The reason we can't have fun outdoors, I take too long to get dressed, "Why are you depressed? You have everything… Read More


Feeling very alone. My family acts as if they do not care about my diagnosis or they are in complete denial. I do not really have any physical sings of the disease, but have had significant cognitive decline over the last couple years. Memory and language is becoming more difficult and they seem generally… Read More

Help Stay Positive? *

Hi Everyone- I am new here. This is my first post, but I am so happy to see that there are so many others out there that are willing to share their story. My husband was diagnosed with MS just last week. It started with blurry / double vision, a lack of balance, and numbness in his hands. About 6 weeks… Read More

Relationship advice *

My mother has had PP MS for around 28 years. I've just recently been diagnosed with RR MS and kind of find myself in uncharted territory at the age of 28. I've been dating this woman for 6 months now. Most people I've talked to know when they've found the one they're going to spend the rest of their lives with,… Read More