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  • Mydadneedshelp

    My dad is 64 and cannot live alone.  He has MS and in Florida but I live in NJ.  Any ideas about assisted living facilities for those with MS in either state, I am willing to move him?  He is too young to live in the general AL's and too ill to be at home.  Suggestions welcome.

  • MS_Navigator_Ashley
    Hi Mydadneedshelp,

    Thanks for posting your question.  Planning for the care of a family member that hasn't reached the average age of living in an Assisted Living or Skilled Nursing Facility can be difficult.  However, there are facilities that have younger populations and some facilities in the United States that have a more MS specific programming.  The Information Resource Center has a database of referrals for Assisted Living and Skilled Nursing Facilities in both Florida and New Jersey, please feel free to call us at 1-800-344-4867 or email us at contactusnmss@nmss.org to obtain information on these listings.

    Another great resource to access is "A Place for Mom." Please don't let the name decieve you as this resource services are available to all adults, but targeted towards those 55 and up. They provide a free referral service to help family members determine which senior living options will fit each client's needs.  They can be reached by calling 1-877-666-3239 or on their website at http://www.aplaceformom.com/search/.

    I would also encourage you to read through the information on our website about Questions to Ask when Seeking Services for family members.  The below link will take you to this information:
    http://www.nationalmssociety.org/about-multiple-sclerosis/living-with-advanced-ms/questions-for-services-and-support/index.aspx

    I hope this information is helpful!  Please keep posting as new questions come up!

    MS Navigator Ashley
  • Sky_Guy
    My dad is 64 and cannot live alone.  He has MS and in Florida but I live in NJ.  Any ideas about assisted living facilities for those with MS in either state, I am willing to move him?  He is too young to live in the general AL's and too ill to be at home.  Suggestions welcome.
    There is a facility in NJ run by the MS Soc. of America.  It is in Cherry Hill.  Try looking into that first.  Then perhaps you can move your father to a subsidized apartment closer to your home but in a nice area - try the HUD website and click on privately subsidized housing.  Privately subsidized tends to be a bit nicer with more funds for upkeep. 
    The next step is to set up home care and the MS Society in Manhatten or NJ can help with that.  He may qualify for Personal Care Assistance as well through insurance.  That way he can hire his own people through a pool of caretakers rather than depend on an agency.

    I can hear that this is overwhelming.  Take the process one step at a time.  You may also need to ask your dad for power of attorney if that is necessary.  It may be less of a burden for him. 

    Most importantly, ask your dad what his wishes are and meet with a social worker to explore all options other than a nursing home. 

    I agree your dad is too young to enter a nursing home.  Nursing homes are the last resort and not a good resort at that!

    Good luck!
  • Mydadneedshelp
    Thank you for your reply.  I am a Social Worker, in geriatric care management, and have done research but all arrows point toward to Assisted Living facilities for his needs.

    I obtained guardianship- however Kershaw Commons (as I believe you are referring to) has income guidelines, he exceeds that. 

    My specific question is more so, where are people with MS who are young but need 12+ hours of care currently residing?  I know there are people in the world with MS, where do they live when they are young but require so much help?
  • sameer23
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