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KitMinden
Fundraising

Hi Folks! Trying an online fundraiser. If I can make it work, then others can, too, and we can see our way to treatments that might vanquish MS. You will find ome of my poetry and prose in  the updates section, too. Please read, donate if you can, and pass it on. Thanks, ヅ Kit Minden http://youcaring.com… Read More

MStrong
trembling

Since last post in March this year my right hand has become almost a totally separate part of my body. Neuro has me taking one Primidone in morning and two at night for the tremors. I have appt early December with neuro but seriously this is becoming a way of life that I need any advice on what others have… Read More

Avatar
scientific breakthrough

my name is  tina polit and ive had ms for 14 years and have relaping/remitting ms. I was on rebif, flexiril, neurotin, vicodin, phernaghan, celexa, a and none of these drugs were helping m e feel better. I was at a point in my life were i didnt want to live. Especially when my last relapse caused my to have… Read More

Flora
Dear Friend

I have a childhood friend who has been like a sister to me.  She is in an ongoing challenge with MS and has been for a number of years.  I pray that there will be a cure soon!  Wheeler Read More

A_J_
water exercise

Water arobics is the best, don't have to worry about falling and there are so many things we can do in the water that we can't do on land. I go 5x a week, and also take a stretch and balance class 3x. Not lucky to have ms, but exercising hbas kept me out of a wheelchair. Let me know what you are doing to stay… Read More

Lisa_Renae
HELP . . . I know nothing

I am joining in support of a friend that has recently moved back to the DFW, TX area. Her MS has either excellerated, or she is having a sever exacerbation. I know NOTHING about MS and am only 1 of the 3 people she will let in right now ~ so I am overwhelmed and don't have a clue where to look for help. She is… Read More

GONA_DO_IT
HOW DO I EXPLAIN

IAM A SINGLE MOM AND LIVING WITH M.S. SINCE 08. TO PUT MY 'TOPIC'IN A NUT SHELL, I DO NOT TAKE ANY MEDS.I WAS ON SO MUCH STUFF I STOPPED. I HAVE A FEAR OF SIDE AFFECTS DUE TO THE DRUGS. IAM BEGINNING TO WORRY MORE AND MOREI HAVE THE NORMAL ISSUES WITH THE TINGLING AND PAIN BT I IGNORE IT. ITS BEEN 2.5 YEARS… Read More

Sparky10
Give what you can, except "UP"

"Give me your hand. Take my hand. Don't you let go. Don't let go... *Reach!*".  Samwise Gamgee said that to Frodo in Lord of the Rings: The Return of the Kings. Some people may ask how we live with MS.  You either do or you don't.  Sometimes the "how" is too personal to be explained.  Sometimes it's too… Read More

Rich1007
How have you adapted your environment?

Seems like we all need ideas and suggestions.  How about if we use this thread to list some of the creative adaptations and brilliant ideas we have had that have enabled us to accomplish doing everyday things once again in a new way.  Here's some cateories to get us started.  We're all brilliant and… Read More

Tracy_A_Todd

Giving Back with Words..Our Stories - Our Struggles - Our Fight! By Tracy A Todd  Thursday, August 23, 2012 11:56:22 'We Write for the Fight' is a writer's group that will collectively produce an anthology that we will publish as our 'Do It Yourself' fundraiser for the NMSS. All members of the MS Community… Read More

starburst

I've done a great deal of research on my own besides the doctors research as well and still no answers...My doctors say my symptoms are all over the place.. One Brain MRI report said left cerebral thalamic lesion 5mm A-typical Ms and others to be considered. Second Brain cervical and thoracic with and with-out… Read More

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Want to start a new self help group*

What does it take to get the support of the MS Society behind me for starting a new self help support group?  I want to begin one that focuses on healthy living, diet, exercise and alternative medicine along with conventional medicine.  I want to get positive support from other members. Would the MS… Read More

Kweller
Help from across the pond

In Novmber 2011 I was diagnosed with MS And in March Completed my first Walk MS - San Antonio. My mum took the news hard being so far away. But when her Friends at worked asked if they could run the Reading Marathon in My name and in Aid of MS (UK) she feels better knowing that just driving them to the event… Read More

cst
Why I donate

I share this because my youngest son, a nephew and a niece along with several friends whose family members do have MS. All of them have the kind that 80% have and none of these people are disabled, in wheelchairs or afflicted like some can be. Praise God! Our youngest son has had it for 8 years. He had lost his… Read More

Beth
Multi-day Walk for MS

The National MS Society has a multi-day-walk like the komen/avon/breast-cancer organizations - called the Challenge Walk. It's 30-50 miles in two-three days, held in ten locations around the states. I've done the one in Southern California twice before and am planning for it again this September. It's a big… Read More

LauraK
Researchmatch site

Please take the time to register at researchmatch.org.  this is a cooperative group among some of the finest universities in the U.S.  to compile a data base of people who are willing to help with research.  There inquiries might not always be about MS. A sampling of what i have been asked about include… Read More