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  • Kimberly
    I just wondered if anyone else out there has any other Autoimmune diseases like Psoriasis or Lupus, or Scleroderma, ect..with Multiple Sclerosis? I know that I have a few and am wondering if they are genetic or just unknown? 
  • Kimberly
    Immunologic
    It is now generally accepted that MS involves an autoimmune process—an abnormal response of the body’s immune system that is directed against the myelin (the fatty sheath that surrounds and insulates the nerve fibers) in the central nervous system (CNS—the brain, spinal cord and optic nerves). The exact antigen, or target that the immune cells are sensitized to attack, remains unknown. In recent years, however, researchers have been able to identify which immune cells are mounting the attack, some of the factors that cause them to attack, and some of the sites, or receptors, on the attacking cells that appear to be attracted to the myelin to begin the destructive process. Ongoing efforts to learn more about the autoimmune process in MS—what sets it in motion, how it works, and how to slow or stop it—are bringing us closer to understanding the cause of MS.
     
  • suziq113
    Hello, I question the medical diagnosis of Auto-immune disease with M.S. Not one doctor can tell us what caused M.S. therefore I believe and new research is showing that the immune system is simply reacting to the REAL culpuret maybe iron from whiteblood cells not being pumped from brain!  Just a  thought.  Vein problems are hereditary and if they occur all over why not in the major veins in neck and chest.  This could be hard to detect interior veins may be hard to see until we open the eyes of nerologist's.  Go to CCSVI.org
  • maria1
    Maybe the Human Gnome project will be the place where the answers will be found, or the research on the brain. Maybe it is simply that the roadways in the brain get washed out by little traumas or little poisions in the air that we all breathe. Someone I met, believed that it was the polio vaccine we got in the fifties. Maybe it is emotional trauma at a young age coupled with all of the above. Random? Do we all have parents who smoked? My mother chain smoked five packs of cigarettes a day, my father two, I had pneumonia at 6mos. Genetic oddities not with standing, there must be a link with environmental influences, like all the kids today who are obese and the effects on the automobile on our culture.
  • JenLou12
    I was actually a part of a study quite a while ago trying to find the connection between ms and type 1 diabetes hah I know it sounds awful but I can't remember what it is (obviously..).  But I do know there definitely is one they've now documented
  • Julie-Holland
    Hi, do you have both MS and type 1 diabetes? I have had MS for 9 years and been diabetic since I was 5. I would be really interested to hear how you get on with both. I think we are a pretty rare breed! Julie
  • MSVee2011
    Hi Kimberly, my first diagnosis was Fybromialgia 7 years ago. 11 months ago MS and I have had positive ANA test and my rheumotologist informed me during an appointment that my Lupus test where positive and then when I returned for a follow up he stated that it was okay... That I did not have Lupus and that although my ANA blood test where positive... It was because of the MS not the LUPUS.... Correct me if I'm wrong but I read a lot and since the diagnosis I have been reading a lot about auto immune and... I believe the MS test and the lupus test are very different. I have a very close friend that has Lupus and Schleroderma. One of the members of the MS group I attend has MS and psoriasis... I read that having multiple auto immune diseases is not as rare as people think....
  • Kimberly
    They also say that these Autoimmune diseases are related and are genetic, and I believe that! For example, I have like 7 Autoimmune diseases, my mom has Sjogren's, Lupus, Leukopenia, CREST syndrome, Hashimoto's, MS and Scleroderma. My sister has Raynauds, Pernicious Anemia as well as Lupus. My brother has Excema, and RA. I also believe that there needs to be more research and more knowledge about all of these diseases. It would save money for all of us on unnecessary tests, invasive procedures as well as healthcare costs. Again, the Pharmaceutical companys don't want to loose any money so they like things just the way that they are, which is non beneficial to us, the patient. Then again, there is this site, and there is Social Media and with all of us MSer's, (Family) we could all spread the word, right? I sure hope we can all make a big difference in how the way we are treated by our team of healthcare providers as well as our health Insurance and Pharmaceutical's as well. I know I would be happy. 
    Wishing you a sunshine day!! xoxoxoxo
  • Kimberly
    Hi MSVee,
     Thanks for your response as I appreciate all feedback about this subject. I am an advocate for www.aarda.org and they are all about Autoimmune if you would like to give them a visit. I just find it amazing that all of these diseases are somehow related. I myself have MS, Lupus, Psoriasis, Sarcoidosis, and Scleritis just to name a few. I hope not to get anymore!! lol. Seriously though, I just wish there were more research. Talk soon. xoxo
  • Lisa_Emrich
    Hi MSVee2011,

    I agree that having multiple autoimmune diseases is not as rare as people think.  See my comment below regarding the females in my family.  Hope you are doing well.
  • Lisa_Emrich
    Hi Kimberly,

    I'm also a person who double-dipped into the autoimmune bucket.  I have multiple sclerosis and rheumatoid arthritis.  See my blog Brass and Ivory: Life with MS and RA.

    My mother has lupus, scleroderma, and mixed connective tissue disease.  My aunt has lupus.  My cousin has rheumatoid arthritis,  My grandmother had insulin-dependent diabetes, heart disease, and probably undiagnosed lupus.  My great grandmother has rheumatoid arthritis.  All the females in this family line have some sort of autoimmune disease.

    I also wish that there was more research into comorbidities.  One thing I've learned from blogging over the years and meeting so many people online is that having MS and RA is much more common than the published literature indicated years ago.

    How are you doing with each of your diseases?  What treatment approaches have you taken to try to keep them each under control?

  • evestarr1
    I know it's been a couple of years since your post, but I just want to weigh in. I have been Dx with: Psoriatic Arthritis, fibromyalgia, Sjoegrens syndrome and now MS. It makes me think of that fable about the blind man and the elephant. Depending on which part of the elephant it is, you can get a dozen Dx's and yet all of them are parts of the same whole.
  • MSVee2011
    Hi Kimberly, thank you for the website I signed up to receive updates... I read a lot of the info that is provided... A very interesting site...
  • Kimberly
    Hi Lisa,
    Thats a great question and I would love to answer that question, but this is what bothers me the most about the medications for all of these diseases. I will try my best to break it down.
    1. You have Scleroderma & you take Tyvasco.
    2. You have Psoriasis & you take Enbrel.
    3. You have MS & you take Gilenya.
    These are just 3 examples of meds that are for speciffic diseases but how do you take them all? Wouldn't you think that they would interact with each other at some point? They make a drug for just about every disease symptom and to try to control these symptoms, right?
    I think that if they could find a medication just for the immune system, it may solve a lot of problems for a lot of people. It would be great!! BUT, then again, with all of these SINGULAR disease names like, MS, LUPUS, Scleroderma, Sjogren's & more... there is no one group of Autoimmune.. other than www.aarda.org...but there are foundations, and with foundations come.. Pharmaceutical's..and the Pharmaceutical companys would loose money if they had to make a drug speciffically for "Autoimmune.. like all the other singular disease's as I have mentioned above. Because I think if they found a cure for one disease, it could be the cure for many of them. I went to a MS seminar not to long ago and I asked the Drug company who was sponsering the event....which was Gilenya..."What are the side affects of Gilenya when taking meds for Psoraisis, Sarcoidosis, and Scleritis as well as Scleroderma?  The young man said.." I really could not tell you about this medication and how it would affect all of your other diseases".  Well how about that? Makes me wonder why  you don't ever see a Pharmacy shutting down in todays economy? So I wish I could tell you what I take for my Autoimmune & MS as right now, I don't take anything. I was on Rebif, I had all the side effects and ended up in the ER. The same happened with me when I changed to Copaxone. So I decided that I needed to do something about it. So here I am, I am an advocate for www.aarda.org as well as Scleroderma and many more. I have a support group here in Warren Mich, probably the first Autoimune Support Group in Michigan. And with the help of AARDA, it is important for all of us to know the truth about all of these diseases. Its very important that all the Professionals learn as well so they can not dismiss a symptom as it all being in your head. Go to my profile and read my story and then you will understand why I feel the way I do. Its also posted under "Copeing with MS.
    I hope I have answered your question in the best way I know how, by self taught experience. Have a wonderful day!! I wish you well...xoxoxooxxoxoxo.
  • Kimberly
    Hi MSVee,
     Thats a great question and I would love to answer that question, but this is what bothers me the most about the medications for all of these diseases. I will try my best to break it down.
    1. You have Scleroderma & you take Tyvasco.
    2. You have Psoriasis & you take Enbrel.
    3. You have MS & you take Gilenya.
    These are just 3 examples of meds that are for speciffic diseases but how do you take them all? Wouldn't you think that they would interact with each other at some point? They make a drug for just about every disease symptom and to try to control these symptoms, right?
     I think that if they could find a medication just for the immune system, it may solve a lot of problems for a lot of people. It would be great!! BUT, then again, with all of these SINGULAR disease names like, MS, LUPUS, Scleroderma, Sjogren's & more... there is no one group of Autoimmune.. other than www.aarda.org...but there are foundations, and with foundations come.. Pharmaceutical's..and the Pharmaceutical companys would loose money if they had to make a drug speciffically for "Autoimmune.. like all the other singular disease's as I have mentioned above. Because I think if they found a cure for one disease, it could be the cure for many of them. I went to a MS seminar not to long ago and I asked the Drug company who was sponsering the event....which was Gilenya..."What are the side affects of Gilenya when taking meds for Psoraisis, Sarcoidosis, and Scleritis as well as Scleroderma?  The young man said.." I really could not tell you about this medication and how it would affect all of your other diseases".  Well how about that? Makes me wonder why  you don't ever see a Pharmacy shutting down in todays economy? So I wish I could tell you what I take for my Autoimmune & MS as right now, I don't take anything. I was on Rebif, I had all the side effects and ended up in the ER. The same happened with me when I changed to Copaxone. So I decided that I needed to do something about it. So here I am, I am an advocate for www.aarda.org as well as Scleroderma and many more. I have a support group here in Warren Mich, probably the first Autoimune Support Group in Michigan. And with the help of AARDA, it is important for all of us to know the truth about all of these diseases. Its very important that all the Professionals learn as well so they can not dismiss a symptom as it all being in your head. Go to my profile and read my story and then you will understand why I feel the way I do. Its also posted under "Copeing with MS.
    I hope I have answered your question in the best way I know how, by self taught experience. Have a wonderful day!! I wish you well...xoxoxooxxoxoxo. 

  • MSVee2011
    Hi Lisa, wow! Interesting I seem to be the only one with this particular madness. Except for my mom that has grays disease.. She was diagnosed in her very late 50's...But she has been well... I have always had a very low immune system... Growing up I was always sick with some kind of infection... in my family the worry has always been cancer... I'm working on trying to think positive and learn that I must accept some adjustments... I hope your doing good as well.
  • MERCADIES25
    I have ms, hypothyroidism, ra, and fibromyalgia and have been tested for lupus and thank goodness neg.  Interesting though.
  • lmsquire

    Hi Kimberly,

    Yes.  I have lichen sclerosis and vitiligo along with my ms.  My neurologist said that it isn't abnormal to have more than one autoimmune disease.  Do you have lumus or scleroderma?

  • research_hunter

    My wife has lichen sclerosus(LS) and MS. She has had interstitial cystitis(i.e. spasms in the bladder) symptoms in the past, but that seems to have cleared up for now. She also has athlete's foot. She uses a steroid cream for the LS called clobetasol. A recent study showed that clobetasol and miconazole (i.e. Monistat) were effective in treating mice with MS symptoms. Apparently, these drugs were able to remyelinate nerve tissue. Here's an article link: http://www.medscape.com/viewarticle/844076

    What's interesting to me is that clobetasol can be used to treat psoriasis. One of the newer drugs on the market to treat MS, Tecfidera (i.e. dimethyl fumarate) has been used in Germany to treat psoriasis for many years.

     

     

  • cctulip
    I was diagnosed with type 1 diabetes as a kid and just diagnosed with ms.