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  • yelishia
    I have severe cognitive dysfunction.  I have 2 aides who work in 3 hr shifts because of it.  I have noticed severe confusion when shopping, I can't remember what I have bought, I am making bad judgements over how much money to spend.  Today I signed my personal directive so that if I am ever declared unable to manage my affairs my husband will be my agent.  He is the only person I trust in the entire scope of all this.  Does anyone else have this type of problem with thier cognitive to this degree?  I don't know if the USA had personal directives.

    Have a great day everyone
    Yelishia
  • LynneStein
    I have memory problems constantly, but when I look at my father and see how disconnected he can be (he has dementia that's worsening with age), I get scared, thinking I'm seeing my future.

    My boss has fought MS since long before I ever met her, and I remember seeing some of her worst days and being amazed that she even got anything done. I can't imagine living with that sense of disconnection. I'd feel so lost all the time!
  • Neuroexofficio
    It's a hard transition. There seems to be no "painless" way to say it. It appears to me that the more we used our cognitive functioning during our lives,  the harder the transistion will be.  I can't, specifically, quote any research, but I can attest to the fact that it took me several tries to log on to this board with log in data I've used for years. (If that's any consolation)  Dr. Terry Wahl's Paleo Diet has been beneficial to some degree, and  Dr. Danny Reich's NIH work with CoEnzyme Q10 looks very promising.
  • yelishia
    I forgot to mention that now I feel ashamed of how bad my cognitive is.  I am terrified even my aides will notice my bad judgement over things.  I was terrified that they might be asked to watch my money managment.  My hubby said if I need to he will start shopping with me again (so I won't have the aides  finding out or if I can't stay within a budget).  I feel like a little kid being monitered sometimes.

    Yelishia
  • maria1
    Her name is Dr Mary Newport and she is on You tube. you can even search coconut oil & dementia and you will find her.
  • maria1
    There is an article about virgin coconut oil being beneficial for memory problems. A woman I think a doctor has a husband with dimentia and she has been treating him with the pills(health food store carry it, as well as cocoanut oil) I am trying it so far for about two weeks and will continue 3000mg twice a day. I will see if I can find the article maybe on youtube and let you know.
  • maria1
    Before I knew I had ms I lost plenty of money and my family, in order for them to give me money to pay my taxes, made the stipulation that I attend meetings for spenders annomyous. There was a person who bought underwear that did not fit but had to buy it, like going to AA. Years, and I do mean years later I learned that if bought groceries for $18.00 I would give the clerk two twenties. Only once did I ever remember a clerk who gave me back a twenty and the rest of the change. Knowing it was ms, and maybe my eyes not registering the info to the brain was liberating. it was the disease and not me.  The worst was when i would break family heirlooms, before i learned i had problems with depth perception. I no longer drive, after two crack ups, one in the driveway and one in the garage. Nothing is ever where I put it and i spend hours looking for everything. i have everything i might need, but can never find it when I need it. I nolonger control money, except for ten or twenty dollars i sometime have in my wallet, for "independence". i use to edit math text book, now I can not add, even on paper. Instead I ask for help and find other things to do to make me feel good about myself. Remembering who I was is the worst curse, like being young and thin then looking in the mirror and seeing the horizontal spread. And, I do mourn all the losses as they occur, and wallow in self pity until I see how unhelpful it is, then I think happy thoughts because they feel better. I mourn no longer being able to ski, then I smile at that I did ski, and dance and walk. My first best friend, as a child, that was not a relative, could not walk, and never did, and I lived and did for both of us. She wrote a book, The Me in the mirror by Connie Panzarino. If you are feeling sorry for yourself and can't kick it, read what Connie's life was like, and how she became an advocate for the disabled. think happy thoughts. 
  • kellygrn
    I also have aides 34 hours a week.  I live alone.  I have turned my expenses to my son.  He pays everything except my rent. 

    You should see my kitchen.  I have taped pictures of what is inside each cabinet.  My pantry has a running list of what is inside.  Making a menu helps greatly.  It takes a lot of work to get it all done.

    I use the alarm on my computer to tell me when to take meds, eat meals & other things I need to do daily.

    Someone should put together a class of helpful hints for the cog problems.

    KK
  • Kimberly
    I am so sorry that you experience all of these symptoms and am praying for you!!! I too have cognitive issues very bad and have dyslexia. I wonder if you may be experiencing any of those symptoms as well. Just a suggestion. Happy Easter to you!! xoxoxoxxoox Please know that you are not alone!!
  • joynerthedad
    I also have aides 34 hours a week.  I live alone.  I have turned my expenses to my son.  He pays everything except my rent. 

    You should see my kitchen.  I have taped pictures of what is inside each cabinet.  My pantry has a running list of what is inside.  Making a menu helps greatly.  It takes a lot of work to get it all done.

    I use the alarm on my computer to tell me when to take meds, eat meals & other things I need to do daily.

    Someone should put together a class of helpful hints for the cog problems.

    KK
    Love the idea of menus.  The girls and I do this too.  We also keep a list of items in the fridge so we know what to shop for.  Great ideas!
  • kellygrn
    I grew up in the 50's.  Dyslexia wasn't even around back then.  I probably do but never been tested for it.  I have accepted that this is my life today.

    Thte first goal I have ever set was to live alone in my apartment as long as I possibily can.  So this is what I have to do today.

    KK
  • kellygrn
    Lynne, you change the way you live your life.  My best thinking is done early morning so most of my schedule is for morning.  About 1:00, all I am good for is watching tv or working simple puzzles.

    KK
  • tavor
    I am the same way. I try to get things done first thing in the morning. After lunch things start to become fuzzy, and I'm afraid to make any important decisions. Fortunately, my wife is very understanding, and takes care of our finances, and we discuss major decisions when I feel "clear". I think we just have to adjust our schedule to be available during the good hours
  • joynerthedad
    I have memory problems constantly, but when I look at my father and see how disconnected he can be (he has dementia that's worsening with age), I get scared, thinking I'm seeing my future.

    My boss has fought MS since long before I ever met her, and I remember seeing some of her worst days and being amazed that she even got anything done. I can't imagine living with that sense of disconnection. I'd feel so lost all the time!


    Hey Lynne.

    I have read a number of the posts.  I have been 'slowing' down a bit the last couple of years myself.  I bet it is difficult to see your father go through his changes...but you can not be seeing your future...none of us knows what our future will be.  Keep that in mind. 

    I do not mourn the loss of the person I once was...I am still that person.  There is SO much more to me than whether I can ski today or not.

    I adjust my lifestyle accordingly...and mornings are definitely best for me.

    You have a good evening...
    ...and look for those good times during the day...see if theer is a pattern.

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