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  • MS_Navigators
    Pain is a common symptom of MS, but one that is commonly misunderstood. In one study, up to 55% of people with MS experienced clinically significant pain. Have you experienced pain related to your MS? Have you found strategies for managing pain? Share your questions, experiences and tips below.
  • cjtmn
    Definitely! My upper arm is the source of most of my pain. It is like I have torn a ligament or have just received several tetanus shots. Gapabentin does seem to be helping - I'm working my way up to higher doses to see if that's the case. I definitely notice the days when I skip a dose!

    Cheryl
  • oktobre67
    I have horrible pain in my hands and feet. Trying to do dishes is extreamly hard for me because I can't feel the outside of my hands. I would really be interested in finding out what a therapitic dose of gabepentin would be. I'm on 900mgs. but that isn't for my MS. 
  • cjtmn
    Hi ocktobre67 - I am working my way up to 1800 mg/day (600 mg, 3x per day). When I first wrote this, I was getting relief, but lately, it seems like nothing will slow up the arm pain. It's been awful!!
  • lmsquire
    I take Gabapentin and cymbalta.  I wasn't finding much difference with the Gabapentin so I started to lessen the dose (the dr was increasing it and it made me feel really high and brain dead).  Do you have any side effects from it?  Tired? How much do you take?
     
    Thank you for sharing!
  • sattlerangela
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  • capitolcarol
    Hi, I take 800 mg three times a day of Gabapentin and Pamelor at night and nothing seems to work, I still ache.   I've got an appointment with my neurologist in February and I'm going to ask him to increase my Gabapentin dosage or ask if there is something stronger that I could take instead.  
  • capitolcarol
    Hi, I take 800 mg three times a day of Gabapentin and Pamelor at night and nothing seems to work, I still ache.   I've got an appointment with my neurologist in February and I'm going to ask him to increase my Gabapentin dosage or ask if there is something stronger that I could take instead.  
  • incolor
    I experience excruciating left shoulder pain, which sometimes goes down my arm. I went up to 1800mg of Gralise (gabapentin) for a while, but it didn't work as well as I had hoped. When I dropped down to 300mg, I realized how much it actually was having some beneficial effect, so I went back up to 1200mg. Then, I also started ramping up on Tegretol XR, which had a dramatic effect. I now take 1200mg Gralise and 400mb of Tegretol XR, and the combination helps me accomplish things that I was never able to do before. I'm far from pain-free, but it's a significant leap forward from the Gralise alone. I'm so happy I can tolerate driving again.
  • dreaming1955
    cjtmn wrote: Definitely! My upper arm is the source of most of my pain. It is like I have torn a ligament or have just received several tetanus shots. Gapabentin does seem to be helping - I'm working my way up to higher doses to see if that's the case. I definitely notice the days when I skip a dose!

    Cheryl

     
  • jeol-mabel
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  • loveme2015
    I get a wide spread of pain all over body. Mostly now in legs and feet. Before it was lower back, spine, hip, leg and butt area. I am taking a lot of vitamins and supplements to help me along with muscle relaxers and pain meds. I also use otc meds such as Tylenol and advil. I use them in afternoon. Vicodin n morning and night along with Pamelor at night. If you can stand soft massages, they also help. Don't go to deep unless u don't have pain that day. My new pain was burning pain in my legs and feet. Omg, very achy make you cry pain. I laid in warm water which brought the hot burning to warm. Then cold compresses, meds and a gd night sleep. Most importantly we have to learn to rest and relax which can be very hard when u are in pain. Take deep breaths in and out and always keep positive thoughts in your head. Reminding yourself that this too shall pass. Everyone pain is different we just have to constantly and consistently find what works best for us. Much love everyoneā¯¤
  • Lissajohnson
    Omgs I just read your post. I too suffer from all over body pain, lately 
    It's been my shoulders and lower neck, always my legs. 
       I love it when I'm walking and the pain hits my legs and I scream out. I'm not a screamer but for those moments you just can't help it because it takes you by surprise. I'm taking bacloften for mines and it don't always work when the pain kicks in at a certain time of the day. I work with kids and sometime it makes me tired so I take it when I get home at night. I also do a muscle relaxer. 
      Yes, I get the crazy looks from people.  At least when it happens at work the kids will ask me if I'm ok and I laugh it off with them plus I don't want to scare them. I just tell them I'm getting old and they tell me no I'm not.  Got to love those kids lol
    i hope everyone will have some kind of relief durning the day. 
      I love hot water and it seems to help but my dr just told me that is brings on my constain pain even stronger, if I sweat, over heat, stress, or do too much.  Hello that's every thing I do. It's called living lol
  • caroleh17
    Oh my word, I am also experiencing pain everywhere. The latest pain is now in the souls of my feet, which is really unpleasant to walk. I have constant pain lower back, shoulders, neck, knees and arms. Migraines a lot of the time. I go to physio and get strapped twice a week which does help most of the time, however when it doesnt I use 2 x Ultracet twice a day. I also take deep breathes and work really hard at thinking positive thoughts, hoping that this too shall pass, I also go to a biokineticist twice a week to help strengthen my muscles, which has helped hugely, however when she works me hard then I have my MS pain as well as the exercise pain. I also find that if I switch on my hot blanket it helps with the pain. I have also recently been put on Copaxone, however been told wont take the symptoms away. Thank goodness I am seeing the neurologist in January. Thank you for sharing, it helps to know that there are people out there who understand.
  • sahsh9269
    I agree on the rest and breathing. There is really not much more that we can do but be positive and easy on ourselves. I always say 'Let Go Let God'. I certainly cannot change a thing. Pharmaceuticals and otc's are no guarantee yet either. Good Luck Everyone.
  • kjsdunn
    I also have widespread pain most days which is very difficult to stay positive and productive however, I try to remain up most days.  I am also on gabapentin which I am not sure how much its really helping.  In addition, I take baclofen and tizanidine in the evening and have yet to get a solid night sleep.  I also take vicodin when I can't stand the pain but try very hard to limit my use of prescripton pain med (I am trying to avoid this however, somedays I feel like this is the only medication that dulls the pain but it never goes away).  I really would like to feel more productive but until I can get a handle on my pain its very hard.
  • csennottaz
    I have a lot of pain in my legs and feet especially at night. I try not to take my Tramadol or Valium unliess it is unbearalbe. I hate when the pain just pops up and I give a small scream and people look at me when out. I also get a lot of pain in my joints which are bothersome. I am going to pt to help with the pain while walking. Hopefully that will help out with all the pain. I do take Lyrica and Baclofen and they help.
  • lizzybell
    Yes... It started about a week into my first flare. DEEP DEEP thigh  pain. Hip tightness. Baclofen  has been a blessing. Doesn't make me drowsy. Notice more pain at night. 
  • CowboysnAngels
    I also have leg pain at night. They jerk, spasm, and cramp. Very painful. Right now I also have left thigh pain, but not sure if it is MS or my hip osteopenia. My old lesions are growing I just found out. One is up to 5cm and my old symptoms are back. The pain is for real.
  • sahsh9269
    Do you sleep with sheets and blankets tucked in at end bed. Do not do this and let feet be free and uncontrolled. Tightness at end bed caused my foot and leg cramps.since I changed this have had no cramping. Also drinking 'Calm' tea with magnesium helps. Good Luck.