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  • Melly
    Hi everyone. Has anybody had seizures with their MS? I went through a short period of time when I would get twitchy...like I could imagine sparks coming off of my back, and I could watch my whole leg (Just 1 leg) twitch badly. I never zoned out, I was always aware of what was going on. And it was always after I went to bed, before I fell asleep. When I told my neurologist she kind of just brushed it off like it wasn't important. Just 1 of the things lately that make me go hmmm.
  • robslatt4567
    Greetings...the twitching in the evening sounds like a condition known as restless leg. You may also be having a spastic leg from ms. Or some combination of both. Myself I get a combination of both. The good news s is that it doesn't last to long. My spastic legs is like a flinch involuntarily every 45 seconds Or so. Usually occurs in evening. Best to you
  • Melly
    Hi there. Does what you experience feel electric? What I'm trying to describe wasnt just my leg, I felt it in my head and back too.
  • maachah
    I would like to thank you for sharing your dreadful experience with us. This experience will help us to stay sharp about this. If you could give an experience on how to write my paper now, I would love it.
  • cantstopwontstop
    Hello there, 

    Not saying you are wrong, but this sounds more like twitching / spasms especially if you are watching and knowing what was going on and which leg etc. There are specific types of seizures, most people do not remember going into a seizure and also wake up postitctal not knowing what happened. when you say you are aware of what you were doing that also makes me think it was not a seizure.

    EEG would also need to be done if you had a seizure, have you had one of those done?

    I have been healthy my entire life and I actually had two unprovoked grand Mal seizures while traveling and that’s what led to my diagnoses of MS within the last six months. A very small amount of people with MS have seizures now that I have done a lot of research after diagnosis.

    If you truly believe you are having seizures you need to be strict with your neuro about finding out an answer or find someone else.

    I wish you luck in figuring it out. I am going on six months seizure free with anti seizure meds.