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  • OffBalance
    At 65 I was diagnosed with MS.  After having the same vision issue 20 years after the first occurance I was sent for an MRI.  Hey, I thought it could be a brain tumor.  My physician sent me for an MRI on the recommendation of my opthamologist.  Came back to my physician and she told me that she felt I had MS.  Off to the neurologist for further MRI (C spine - i think) and he said - Yup, I have MS.  Was I upset - NO, was I frightened - NO, was I depressed - NO, was I releaved - YES!   

    For years I had so many symptoms that could not be explained except to say - You know if you lost 50 pounds this could be corrected.  My symptoms ranged from bowel issues for years, numbness in my feet and legs, falling due to balance issues, depression off and on for 15 years.  No it was not my obesity - Darn, I have MS.  Thank you.

    So at 65 I had an answer to many questions.  

    I was diagnosed in August 2011; started the internet research at once and went on Copaxone in October.  

    Am I the older person here to be diagnosed?
  • deefrom_jersey
    I was 47 when dx'ed 48 now and what a difference a year makes ...
  • sla1000
    good or bad?
     
  • msfish
    I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,
  • alexan613

    you can't be serious that you possibly would rather have had cancer. :(  i am now 49 years old and was diagnosed when i was blinded (for 6 months) and was 26 years old. i never over all of those years wished i would have had cancer instead, because people die when they have cancer. my husband had cancer at 1 year old and lost an eye to cancer. he has to still check for cancers every year at 41 years old. please do not think you would have rather have had cancer. i have had MS for about 23 years now. if i had had cancer, i may not have had those 23 years. i am sort of glad i was diagnosed with MS at a young age. it has made me a much stronger person than if i had had nothing all of my life. i think i would then be 49 and scared to have anything wrong. instead i have learned that MS hasn't killed me and i've lived a good life with MS, even when some things have gone wrong. I guess I can't understand your comment. What is it about MS, so far, that makes you wish you would have rather had cancer? I just don't get it. I have been through so many attacks of MS and I don't ever wish I would have had cancer instead. Can you please explain. Maybe I misunderstood you.

  • mstiffsc

    Oddly enough, because of my MS and the constant MRI I have, the doctors found a meningioma on my frontal lobe. I was 28 when I was diagnosed, and 9 years later they found the tumor.

    I had gamma knife surgery in 2012, and now because the tumor has not shrunk and disappeared as planned I have to have MRIs twice a year....

    If you cannot handle the shots, perhaps you should ask about the new oral medications. They are fabulous. My MS lesions have been stable for two years, and I have had no flares either even though I have had some of the most stressful times of my life...

  • arlenetiger
    I was diagnosed with MS in 2000 at the age of 40. I had just graduated from law school (my life-long dream) and passed the early bar exam.  I didn't let MS rule my life and practiced family law with an emphasis on child custody.  Of course my neurologist told me that family law was the worst field for me to practice as it was high stress.  I practiced until June of 2015, when my secondary progressive MS caused me to fall in the courtroom and my cognitive skills were impaired.

    However, the most difficult for me was when my oldest daughter was diagnosed with MS at the age of 30.  I lived in El Paso Texas fromm the age of 5 until 35.  My children were also born in El Paso.  A cluster study was done in El Paso years ago, but we never lived near the area studied.
  • Priscilla1992
    msfish wrote: I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,

     
  • Priscilla1992
    msfish wrote: I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,

     
  • stookey5757
    Free Copaxone for anybody who wants it they sent me one by mistake and won't take it back
  • Excadet
    I completely understand why you wondered if cancer was better! I hear about people who beat cancer but not MS. Now I realize that cancer, even when "cured" can still leave people with lifelong problems. But at the time, my mom had been struggling with MS since my freshman year in college and it was no picnic. There were still no treatments when I was Dx. People should not be judgmental; MS is a *****. 
  • jenc
    I was diagnosed at 45 yrs after not being able to work anymore (no matter what my "attitude" was!!!) and having no balance, almost being in a wheelchair from weakness, in constant pain, bad bladder and bowel function, etc etc...I can see why you said what you said.  I have suffered every day constantly for 4 and a half years, and I don't understand these people who do well with MS saying we can control it!  We can't help the damage our disease is causing.  Take care and I am on your side❤❤❤❤
  • lauried
    I have been monitored for MS since 2005 when a few small lesions showed without very many symptoms. Diagnosis was confirmed last year at age 63.  I also have Rhuematoid/Osteoarthritis, Fibromyalgia, Parathesia, Dyesthesia, Barrett's Esophagus, GERD, and Colitis, all auto-immune related.
  • warriorpoet
    I was 27 years old when I was diagnosed but think I have had it sice I was 20.I'm 45 now and my health has never been better and improving daily,Thank God!Alot of lifstyle changes made the difference.I'm winning my battle with ms but I don't truly win until we all do!I think we have to be our own advocates and each others if and when we can.    William Milligan
  • ambrocious

    Just from curiousity, had any of your doctors had you try and type of special diets? My kids and I have some weird stuff too and we're on our way to allergists and dermatologists to investigate possible reactions from different types of foods.

    My friend's mom has several different odd autoimmune problems also, and she completely changed her diet and that has nearly killed her symptoms. She even only eats wheat that comes from somewhere in Europe because it's not refined the way that the US does. 

    My neurologist says there's no concrete evidence of diet having a major contribution in any of our autoimmune stuff, but I do fully believe that something we're eating is at least partly to blame. Who knows... pesticides, intolerance, allergy, etc.?

  • DKLH
    I was diagnosed in August 2011 at age 38 via my symptoms and an MRI.  However, my first episode was in 2005.  I do not take any medications. I am very particular about what I eat and the vitamins I take. I have to say after the MRI I also had a very SMALL feeling of relief that it was not a brain tumor.
  • sbeeson1972
    DKLH wrote: I was diagnosed in August 2011 at age 38 via my symptoms and an MRI.  However, my first episode was in 2005.  I do not take any medications. I am very particular about what I eat and the vitamins I take. I have to say after the MRI I also had a very SMALL feeling of relief that it was not a brain tumor.


  • omana
    Hello, what diet do you take? Specially what all do you avoid? Rachel
  • Dericis2tired
    Hi, I was diagnosed last year. March 10. I had just lost the first job I had, had in about a year and a half. I was fired because I fell asleep on the job. But I understand what you mean when you write that it was a relief. A lot of the things that I was scared about were from the MS. It wasn't  something more serious.  It was a big relief/death knell. I remember I cried for about two weeks after my diagnosis. I had a 3 year old daughter, and 2 year old son at the time. I thought I wouldn't be able to teach my son how to play sports. Apparently my psychological side effects are much worse than I ever realized. So now I can't see my kids. But I still have hope.
  • Kitten
    Dear Offbalance:
            I was diagnosed last year 4 days after my 29th birthday, and had started having symptoms roughly a year earlier when my legs went numb. It went back to normal after a week so I decided I was pushing my body to hard (doing the work of 2 at work + full school load) or hadn't spent enought time in the gym (because of school). But then the right side of my face went numb. That worried me more because it made me think of strokes so hospital I went.
             The ER Dr. said they were admitting me for further tests to rule out stroke abd possibly MS. When he said that I whispered to my BF that MS was what my mother has. The ER Dr picked up on that like a wolf on steak. SO the testing began and a few days later I recieved the offical Diganoses.
              I cried. I shrank into  myself. I threw myself at school harder. I pushed forward like I was going to out run it.
              I couldn't have MS. No. Not me.
              But then.....my left leg went numb.
              I was forced to look at how I was going about things and SLOW DOWN. By avoiding the subject I was making my health WORSE. So since last dec/jan I havn't had a relaspe, and now I am facing my 1 year anniversary of living with MS. Hoping to turn it into a joyus day instead of one of sorrow.