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  • manne
    Hi. I was on Copaxone for 2 years and started having bad reactions to the medication.  The doctor is switching me to Tecfidera.  I had to go off of Copaxone approx. 6 weeks ago. Believe it or not, it has been taking some time thanks to insurance and othe situations.  After reviewing the side effects, I am nervous to start this just before hosting Thanksgiving.  I'm wonder if it would be okay to start after? That would mean I have not been on any medication for a total of 3 to 4 months.  

    Has anyone else done this before without getting relapses in that time?  My ms has been stabalized for two years.  I am also eating healthier and staying active.

    Any advice is much appreciated. Thank you!

     
  • MS_Navigators
    Hello manne,

    I would encourage you to talk to your doctor about waiting or reaching out to Tecfidera's patient support program, AboveMS. Their phone number is 1.800.456.2255 and their website is www.abovems.com.

    I hope you have a great Thanksgiving!
    MS Navigator Stephanie
  • beaurylancambria
    I had been on copaxone for 7 months and hated it. Originally, I planned on switching to gilenya. It also took me forever, due to insurance. I decided I couldn't inject one more time, so I stopped. It took about 2 months for the approval and pre testing for the new med. I couldn't help but notice how much better I felt. I decided I would go a year and see how it went. I had an MRI, no new lesions and no progression. That was two years ago. I am not advocating for you to go med free, just telling you my experience. I had no adverse effects from stopping.
  • manne
    Wow! That's great. I'm happy for you. I'm not sure that I am brave enough to go a year but I would like to wait until the Holiday season is over. I hope I'll do as well as you. 

    I'm curious about wether or not you changed to a healthier life style and if you think that helped you?
     
  • bubbadog66
    I started Tecfidera back in Feb. It was a rather rugged adjustment for ME, i had just turned 51 so i had typical aging stuff as well, i have GI issues. For me the timing of dead of winter was ideal, not much socializing and it snowed a ton my first 30 days on it. I had to use over the counter bailout meds a few times to battle side effects (Tums and the like). I take one baby aspirin a day in the am, had to double up at night a few times due to flushing during first 30 days. But, everyone is different. From about right around my 30 day point it became very tolerable given the big picture of things. I've had two MRI's since and had no additional legions or damage. A big surprise since my baseline took a huge decline last winter & summer, and the cane & wheelchair are my best friends that my ego and pridefulness hate!! Fortunately and unfortunately it is doing its job. I've had MS for at least a decade, quite possibly two, according to my neurologist. I've been diagnosed since last Dec and trust my neurologist, we partner very well...gonna see him next Weds matter of fact...trying additional courses of treatment for loss of mobility & fatigue ...kinda a Tecfidera supplement....lol.

    Tough call about turkey day and hosting...don't know what i'd do. I've hosted in the past and only went into the kitchen to eat or carry heavy pans of good food...oh yeah, can't forget the "countless" and extra trash runs from inside to outside. Best of luck in that decision....remember, it's purely a luxury problem, MS hasn't totally robbed you of a choice like that TODAY!!
  • beaurylancambria
    Nobody that knows me, would use my name and healthy lifestyle in the same sentence. Lol I believe controlling my stress, is the secret of my success. When you learn you can't control what happens to you, only how you react to it, that is where your power is.

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