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clarkee85
clarkee85 joined the group
27 days ago
clarkee85

clarkee85

Ossining, NY
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS
cpond51
cpond51 joined the group
1 month ago
cpond51

cpond51

, NH
  • Gender Female
  • Age 33
  • Relationship Married
  • Connection to MS
ebrowning16
ebrowning16 replied to discussion RE:Medical Insurance and Care
1 month ago
Hi caligirl82! My mom is going through this same issue and is trying to receive help for my dad at home as she continues to work full time to care for my dad. Have you had any luck? 
ebrowning16
ebrowning16 joined the group
1 month ago
ebrowning16

ebrowning16

chicago, IL
  • Gender Female
  • Age 25
  • Relationship Married
  • Connection to MS
bournehaus
bournehaus joined the group
1 month ago
bournehaus

bournehaus

Springfield, MO
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
teamkobe
teamkobe joined the group
1 month ago
teamkobe

teamkobe

Bryan, TX
  • Gender Male
  • Age 24
  • Relationship N/A
  • Connection to MS
jaded_crystal
jaded_crystal replied to discussion RE:Mom diagnosed yesterday.
2 months ago
My mom suffers from not only MS, but Mitochondrial Disease and developed optic nuritus. These health problems will take time to effect them, but we'll have them around and be able to comfort each other. Find the good parts, and down drown in misery, that's the last thing our moms want to see
jaded_crystal
jaded_crystal replied to discussion RE:Mom diagnosed yesterday.
2 months ago
Ever since I was young, my mom has been affected with MS. Seeing her suffer, yet persevere every day is difficult. Some day will be gut wrenching, some will be breathtakingly fun with them. I've been told to look a the positive, and it's very difficult to do when all I see is the negatives, but our mothers are still here with us, still supporting us, and we can be there for them. It's not easy, especially alone. Don't get into the habit I'm currently trying to escape of burying​ our feelings about this.
jaded_crystal
jaded_crystal joined the group
2 months ago
jaded_crystal

jaded_crystal

CHERRY HILL, NJ
  • Gender Male
  • Age 18
  • Relationship N/A
  • Connection to MS
lmoody
lmoody joined the group
2 months ago
lmoody

lmoody

Titusville, FL
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
COUNTRYAPPLE7
COUNTRYAPPLE7 joined the group
2 months ago
COUNTRYAPPLE7

COUNTRYAPPLE7

Garden City, NY
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I have MS
vgales1284
vgales1284 created discussion Mom diagnosed yesterday.
2 months ago
Hi.  My name is Vicki.  My mom, who is one of my best friends in the world, was diagnosed yesterday with MS.  I really don't know how to feel about this.  I am relieved that it wasn't one of the 10,000 other horrific things I had conjured up in my mind to cause her inability to walk without a cane, her concentration and memory issues, her extreme fatigue, and her falling spells, but I'm also scared to death.  I don't know, yet, what this will mean for her future or mine and how this will affect my family.  I don't know whether I have to worry that I will develop MS.  I don't know if there are treaments that will help her regain her ability to walk and control her fatigue and give her back some quality of life.  The neurologist was not yet able to determine what type of MS she has, as he feels that, despite the severity of her symptoms, she is still in the early phases of the disease.  That terrifies me - as severe as her symptoms are now, she is early in the disease?  Does that mean that this will only get a great deal worse?  I'm terrified that she'll develop lesions elsewhere and will lose her inability to see, speak, swallow, etc.  I'm just...terrified.  I just had to tell someone because I'm having to be strong for her and the rest of my family right now and don't want to burden them with my terror.  I'm staying positive for her, but inside, I feel only anxiety and sadness.  I just needed to reach out to someone that understands what I'm going through.Thank you for listening/reading and I will pray for your families as they deal with this disease too.
vgales1284
vgales1284 joined the group
2 months ago
vgales1284

vgales1284

Weatherford, TX
  • Gender Female
  • Age 32
  • Relationship Married
  • Connection to MS
kwiederhold
kwiederhold joined the group
3 months ago
kwiederhold

kwiederhold

, MI
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS
Monica_A
Monica_A joined the group
3 months ago
Monica_A

Monica_A

Parker, CO
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Friend has MS
Monica_A
Monica_A replied to discussion RE:Medical Insurance and Care
3 months ago
Hi Caligirl 82, Have you called an MS Navigator?  One of our Navigators could be very helpful in navigating the complex world of assistance.  It would be good to make sure all options have been exhausted.  You can reach them M-F 9-7 ET at 1-800-344-4867, press option 1.  I hope that helps!Monica
caligirl82
caligirl82 created discussion Medical Insurance and Care
3 months ago
Has anyone had any issues with receiving care for your parent or loved one? My mother was told that she makes too much money to receive government assistance, but not enough for 24/7 care from a caregiver. How is that? Are there any other resources out there? Very frustrating!
caligirl82
caligirl82 replied to discussion RE:Daughters Frustration...
3 months ago
I completely understand where you are coming from. I'm in the same boat as you are in. I sometimes wish my mother would acknowledge that we are just trying to help. WIth MS, if you do not take care of yourself, you only get worse. She doesnt understand that or is too stubborn to do anything about it. There have been times where I felt like giving up, because I can only give advise to her, its up to her to run with it. Now my mom is in a state where she cannot take care of herself and caretakers are involved. It is getting to the point where she might have to go live in a board and care facility. My brother and I cannot care for her daily needs like an around the clock care provider can. It is frustrating to say the least.
caligirl82
caligirl82 joined the group
3 months ago
caligirl82

caligirl82

Melbourne, FL
  • Gender Female
  • Age 34
  • Relationship Single
  • Connection to MS
dragonflymum
dragonflymum joined the group
3 months ago
dragonflymum

dragonflymum

Clermont, FL
  • Gender Female
  • Age 49
  • Relationship Married
  • Connection to MS I have MS