Activity

hantelmanne
hantelmanne joined the group
5 days ago
hantelmanne

hantelmanne

Altoona, IA
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS Partner or Spouse of a person with MS
acajharris
acajharris joined the group
6 days ago
acajharris

acajharris

Puyallup, WA
  • Gender Female
  • Age 45
  • Relationship Married
  • Connection to MS I am living with MS
jenks15
jenks15 joined the group
6 days ago
jenks15

jenks15

Kokomo, IN
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
wvblueize
wvblueize joined the group
11 days ago
wvblueize

wvblueize

Morgantown , WV
  • Gender N/A
  • Age 39
  • Relationship Married
  • Connection to MS Partner or Spouse of a person with MS
kaos09
kaos09 joined the group
11 days ago
kaos09

kaos09

San Bernardino, CA
  • Gender N/A
  • Age N/A
  • Relationship Married
  • Connection to MS Caregiver of a person with MS, Partner or Spouse of a person with MS, Sibling of a person with MS
iammelissamartin
iammelissamartin joined the group
12 days ago
iammelissamartin

iammelissamartin

Kansas City, MO
  • Gender Female
  • Age 31
  • Relationship Married
  • Connection to MS Caregiver of a person with MS, Child of a person with MS
yourhairpro
yourhairpro joined the group
13 days ago
yourhairpro

yourhairpro

Harlingen, TX
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Caregiver of a person with MS, Partner or Spouse of a person with MS
nmdunham
nmdunham joined the group
13 days ago
nmdunham

nmdunham

San Jose, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Caregiver of a person with MS, Partner or Spouse of a person with MS
lilsagkim
lilsagkim joined the group
18 days ago
lilsagkim

lilsagkim

Jeffersonville, IN
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Parent of person with MS
Chuck58
Chuck58 joined the group
26 days ago
Chuck58

Chuck58

Apex, NC
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Partner or Spouse of a person with MS
sharon-peer
sharon-peer joined the group
28 days ago
sharon-peer

sharon-peer

Redondo Beach, CA
  • Gender N/A
  • Age 61
  • Relationship N/A
  • Connection to MS Parent of person with MS
ilaria
ilaria joined the group
1 month ago
ilaria

ilaria

Catawissa, PA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Caregiver of a person with MS, Partner or Spouse of a person with MS
cassandra2
cassandra2 created discussion MS in multiple family members
1 month ago

Hi everyone,

I can't find any statistics but I'm wondering if anyone knows where I can...

 

I'm wondering what the chance of getting MS is for myself...  My mom and my brother both have it.  All I can find is that it is a 2 to 5% chance if you have one family member with it.  

 

Also, I have symptoms that overlap fibromyalgia. My MRI showed no lesions a year ago and the lumbar puncture was okay as well.     

I feel like my doctor thinks I'm a hypochondriac but I'm really just trying to stay on top of this!  After my mom's missed diagnosis for a couple of decades, I want to make sure I'm on top of it.  If I have it, I want to know so I can start treatment.    

cassandra2
cassandra2 joined the group
1 month ago
cassandra2

cassandra2

San Marcos, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I may have MS (undiagnosed), Child of a person with MS, Sibling of a person with MS
tricia_sau
tricia_sau joined the group
1 month ago
tricia_sau

tricia_sau

Fort Smith, AR
  • Gender Female
  • Age 38
  • Relationship Single
  • Connection to MS Sibling of a person with MS
kld16
kld16 joined the group
1 month ago
kld16

kld16

Saint Paul, MN
  • Gender Female
  • Age 30
  • Relationship N/A
  • Connection to MS Child of a person with MS
Kirby1252
Kirby1252 joined the group
1 month ago
Kirby1252

Kirby1252

, SC
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Child of a person with MS
swimmom09
swimmom09 joined the group
1 month ago
swimmom09

swimmom09

Ware, MA
  • Gender Female
  • Age 38
  • Relationship N/A
  • Connection to MS Caregiver of a person with MS, Child of a person with MS, Other relative of a person with MS, Sibling of a person with MS
ivyrose
ivyrose joined the group
1 month ago
ivyrose

ivyrose

Carson, WA
  • Gender Female
  • Age 48
  • Relationship Single
  • Connection to MS I am living with MS
dlshell
dlshell replied to discussion RE:Support
1 month ago

My husband was diagnosed four years ago and has the same main symptoms as your husband, compounded with memory issues and depression, sometimes sever.  At this point he's hardly left the house in the past 5 months unless to go to work and has cut contact with the majority of his friends and family.  It's devastating to me.  He's on anti-depressents, along with all the other pain management meds.  And it is exhausting to hear how bad he feels, etc.. multiiple times a week. 

Because of his pain and fatigue he works four days a week, about 30 hours a week.  I work two jobs, a full time office job and waiting tables on the weekends to make ends meet.  And that's exhausting too.  I know he works as much as he can, and would love to do more.  But it's so hard to not get resentful and think that there is more he could do. 

To help with the negative feelings, I take time for myself, as much as possible.  I go to dinner with friends once a week, sometimes twice, and always take time at night for myself, usually watching tv after he's gone to bed, even if it's just for 30 minutes.  I know it's not much guidance but it does help to be able to vent to friends about what is going on.  And sometimes I vent to my husband.  I try to keep it in check, because it tends to spiral him into depression, but he also has to understand that we are going through this together, he's not alone in this. 

I have just joined this site and it's the first time i've connected with others who have partners/spouses with MS.  Over the past few months it has become more and more obvious that i need to contact more people in my situation and join some support groups to help me through this.  Contact me anytime you want to chat or vent!