Activity

meganjtooheystrezishar
meganjtooheystrezishar replied to discussion RE:Support
21 days ago

you are not alone. My husband was diagnosed in 2008 when our son was 3. He went from running marathons with me to requiring a cane, multiple experimental surgeries and partial paralysis (he too suffers from the spasms only he sleeps through them - they keep me awake)  It's just hard. There is no way around it. We have spent the last 3yrs at a standstill trying to keep my husband alive and functioning. We were very lucky - he is able to continue to work at this time and even occassionally ride his bike (though its not pretty watching him try to do it) Our son has suffered the most during this and I now find myself almost burnt out.  I spent 3 yrs trying to juggle the needs of both and feel I let both down. This support group will help. It reminds us that everyone is going through something and on days where I am frustrated, angry or depressed - I just remember that it could be worse. I could be widowed. I hope things get better for you. I do understand, empathize and validate your feelings. It's hard to be the one that suffers but its also hard to watch someone you love suffer and feel helpless. Hang in there

meganjtooheystrezishar
meganjtooheystrezishar joined the group
21 days ago
meganjtooheystrezishar

meganjtooheystrezishar

San Antonio, TX
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Caregiver of a person with MS
bevanmd
bevanmd joined the group
25 days ago
bevanmd

bevanmd

Seattle, WA
  • Gender Female
  • Age 21
  • Relationship N/A
  • Connection to MS Child of a person with MS
jennymae
jennymae joined the group
1 month ago
jennymae

jennymae

Mounds View, MN
  • Gender Female
  • Age 38
  • Relationship Married
  • Connection to MS Caregiver of a person with MS, Partner or Spouse of a person with MS
lioness85
lioness85 joined the group
1 month ago
lioness85

lioness85

Roeland Park, KS
  • Gender Female
  • Age 29
  • Relationship Single
  • Connection to MS Sibling of a person with MS
pfleck2432
pfleck2432 created discussion Support
1 month ago

My husband has MS and has had it for 8 years now. He's main symptoms are fatigue, leg/arm weakness, and really bad leg spasms at night which leads to all his fatigue. I love him immensely and feel bad of how horrible he feels when he comes home from work. As a wife I try to be so supportive, but I'm noticing changes in myself now. Hearing how badly he feels multiple times in the week kind of brings me down and is making me start to think negatively and almost depressed. 

Does abyone have advice on how to not let that rub off into me? It sounds horrible to complain about when I know he is feeling way worse- I just need some guidance.

 

Thanks

pfleck2432
pfleck2432 joined the group
1 month ago
pfleck2432

pfleck2432

, ID
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Partner or Spouse of a person with MS
cgalligate
cgalligate joined the group
1 month ago
cgalligate

cgalligate

,
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Partner or Spouse of a person with MS
sandi1
sandi1 joined the group
2 months ago
sandi1

sandi1

,
  • Gender Female
  • Age 44
  • Relationship Partners
  • Connection to MS Caregiver of a person with MS
roblo
roblo created discussion Dont Miss Out On This Fascinating Story
2 months ago

Hello 
See how one MS patient is thriving and enjoying a better quality of life with the help of this community
If anyone in the group can you could help us by sharing this on your web page and anyone else that you think would find interest in this? Thank you in advance.
 
http://www.castingnewlives.com/2014/09/stillpoint-life-inside-zen-community-penny-peyser
 

roblo
roblo joined the group
2 months ago
roblo

roblo

,
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Friend of a person with MS
mouza-alhassani
mouza-alhassani joined the group
2 months ago
mouza-alhassani

mouza-alhassani

Al Ain,
  • Gender Female
  • Age 27
  • Relationship N/A
  • Connection to MS Other relative of a person with MS
towgirl470
towgirl470 joined the group
2 months ago
towgirl470

towgirl470

Eugene, OR
  • Gender N/A
  • Age 37
  • Relationship Married
  • Connection to MS I may have MS (undiagnosed)
Deneecy
Deneecy replied to discussion RE:Daughter Newly Diagnosed
2 months ago

Hello. My son was diagnosed just yesterday. I know how you are feeling right now. I too am so scared and heartbroken. I need Also to remember this is about him, not me. But as a parent seeing your child dealing with this is heartwrenching. I too need a support group. Maybe with both of us looking we will find one. Until then we can help and support eachother.

Deneecy
Deneecy joined the group
2 months ago
Deneecy

Deneecy

Monroe Twp, PA
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS Parent of person with MS, Sibling of a person with MS
jenniferg222
jenniferg222 joined the group
2 months ago
jenniferg222

jenniferg222

Akron, OH
  • Gender Female
  • Age 29
  • Relationship N/A
  • Connection to MS Child of a person with MS
tkrstulovich
tkrstulovich joined the group
3 months ago
tkrstulovich

tkrstulovich

Springfield, IL
  • Gender Female
  • Age 28
  • Relationship Single
  • Connection to MS Parent of person with MS
mslois
mslois joined the group
3 months ago
mslois

mslois

Concord, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS I am living with MS
sarahangellynn
sarahangellynn joined the group
3 months ago
sarahangellynn

sarahangellynn

Atascadero, CA
  • Gender Female
  • Age 32
  • Relationship Married
  • Connection to MS I am living with MS
ashleysprouse
ashleysprouse created discussion My mom has begun a rapid deterioration in the last 8 months...
3 months ago

My mom has had MS for about 7 years. She would have an episode maybe 2 times a year tops, until January 2014. Suddenly she seemed to just deteriorate right before everyone's eyes! I think that I am still digesting all that comes with MS and trying to understand it. Now we are onto the JS virus and her test results came in last week... Her T score was 2.97. I am told that this is really rare and unheard of. Has anyone else been in this situation or has any kind of input??