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jakelabrake
jakelabrake joined the group
7 days ago
jakelabrake

jakelabrake

Greenville, SC
  • Gender N/A
  • Age 31
  • Relationship Married
  • Connection to MS
acooper6770
acooper6770 joined the group
23 days ago
acooper6770

acooper6770

Woodbridge, CT
  • Gender N/A
  • Age 45
  • Relationship Married
  • Connection to MS
nina333
nina333 joined the group
1 month ago
nina333

nina333

, KS
  • Gender N/A
  • Age 52
  • Relationship Married
  • Connection to MS
afiyamj
afiyamj joined the group
1 month ago
afiyamj

afiyamj

Washington, DC
  • Gender Female
  • Age 37
  • Relationship Married
  • Connection to MS
amy7763
amy7763 joined the group
1 month ago
amy7763

amy7763

,
  • Gender N/A
  • Age N/A
  • Relationship Married
  • Connection to MS Spouse has MS
mserra1244
mserra1244 joined the group
1 month ago
mserra1244

mserra1244

Ronkonkoma, NY
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
shaywilk2015
shaywilk2015 joined the group
1 month ago
shaywilk2015

shaywilk2015

Columbus , OH
  • Gender Female
  • Age 26
  • Relationship Single
  • Connection to MS
LPintora
LPintora replied to discussion RE:Mom has PPMS and has progressed very quickly
1 month ago
The Paleo diet will be helpful if she has inflammatory reactions to certain foods (gluten, casein, whey protein, nightshade vegetables...)My father has advanced MS, and two years ago (at 30) I suddenly found out that I have a long list of food allergies and intolerances directly correlated to auto-immune disease (which is rampant on his side of the family). I had my siblings get a food intolerance test (IgG?), and my sister has almost exactly the same intolerances.You and your sister may want to get this test done.Love to you and your family. 
LPintora
LPintora replied to discussion RE:Hello!
1 month ago
You aren't alone.It is so hard when your other parent is not able to be supportive. My parents divorced 12 years after my father's diagnosis, when I was 6 years old. Unfortunately my mother feels a tremendous amount of guilt, because she has essentially left me and my siblings to deal with the problem (though she will fly in sometimes when he is in the hospital). Try to have empathy for your father, even though he is not able to support you.My father, the one with very advanced MS is the parent who will not communicate (he has always been like this). I find this incredibly hurtful and frustrating... and even like I don't really know him as a person. I have started forcing him to open up... to be uncomfortable. It took me a long time to start doing this, and I can only manage it every once in a while. Luckily, I have my siblings who I can talk to... but sometimes that is hard as well. We are a very introverted family and have to make an effort to communicate the most difficult things.We will be in your situation soon. There have been many times when it looked like the end. I am so sorry and all I can say is that I understand... and you are not alone.
LPintora
LPintora replied to discussion RE:MS in multiple family members
1 month ago
You aren't a hypochondriac. Stay on top of this (without going nuts)!I would like to know the statistics as well! My father and his brother both have it. Two of their siblings, their mother, and my brother also have other auto-immune illnesses of varying degrees. On top of that, I have multiple food allergies that are directly correlated with auto-immune disease. In a nutshell... I'm trying not to panic.I don't know how much research has gone on about links within the family, but if you find anything, please share!
LPintora
LPintora replied to discussion RE:I don't know how to help my daughter
1 month ago
It sounds like she also may be in denial about her situation. From what my mother tells me, my father was in denial for years and as a result he did not take care of himself or de-stress his life. His condition rapidly declined within a period of three years. I still see markers of his denial to this day (40 years after he was diagnosed), which result in his poor health.I'm not sure what to tell you, except I would continue to do everything you can to show her love and support, even when she does not want it. Be there for her as much as you can, without compromising your own health, and help her de-stress her life. Going to therapy together might also be useful, if she is open to it.
LPintora
LPintora joined the group
1 month ago
LPintora

LPintora

Long Island City, NY
  • Gender Female
  • Age 32
  • Relationship N/A
  • Connection to MS
missarose
missarose joined the group
1 month ago
missarose

missarose

, CT
  • Gender Female
  • Age 37
  • Relationship Married
  • Connection to MS Spouse has MS
dmaskal1
dmaskal1 created discussion My Mind, My Memory & My Family & Friends
1 month ago
My Mind, My Memory & My Family & Friends I started college in Sept. ’75 and earned my BS in Biochemistry in Nov. ’78.  Between Dec. ’78 and Aug. 79 I worked in a hospital analytical lab to be close to my high school sweetheart during the end of her junior year in college.  I started graduate school Sept. ’79, married my high school sweet heart May 24, 1980, and earned my PhD in Protein Chemistry in 1984 after which I immediately started working in biotechnology product development at a large pharmaceutical company.  Three years later, in 1987, I was diagnosed with progressive multiple sclerosis, but, I continued to work diligently and received a promotion, until in 1999 I couldn’t answer a simple question in my yearly seminar about my work.  I then told my upper management I had progressive multiple sclerosis which had been reducing my ability to remember and to solve complex problems quickly.  So, I was asked to take long term disability leave which I have been on ever since 2000.   My wife is an angel since she, though we were never blessed with children, has stuck by my side and dealt with my condition, including my nano second short term memory, my stumbling walk, my double vision, and three grand mal seizures.  All my physical problems associated with MS are under control now with medicine, physical therapy, prism lenses, and more medicine, and, with my wife’s never ending patience, support, and love since we were married in 1980.  My wife even tried to help me start a technology transfer business and I have been trying my best to help her care for her parents who are living with us now.  I also act as a host to greet people who are members of the symphony fan club she runs at events she schedules to meet guest musicians and members of the symphony.  My wife is treasurer and I am secretary for the local chapter of the alumni association for the school I attended as an undergraduate. So even though I have been dealing with the effects of progressive MS since 1987, and, I only started receiving medication to treat releasing remitting MS, in 2000, my wife and I with our symphony and alumni friends have continued to find ways to enjoy and contribute to our lives and to the lives of others. David G. Maskalick, PhDdmaskal1@yahoo.com 
dmaskal1
dmaskal1 joined the group
1 month ago
dmaskal1

dmaskal1

Wexford, PA
  • Gender N/A
  • Age 58
  • Relationship Married
  • Connection to MS I have MS
emilycc
emilycc joined the group
2 months ago
emilycc

emilycc

,
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
nancy-in-ny
nancy-in-ny joined the group
2 months ago
nancy-in-ny

nancy-in-ny

, NY
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS Spouse has MS
leaoverus
leaoverus joined the group
2 months ago
leaoverus

leaoverus

Tallinn,
  • Gender Female
  • Age 21
  • Relationship Partners
  • Connection to MS I have MS
kweisenburger
kweisenburger joined the group
2 months ago
kweisenburger

kweisenburger

,
  • Gender N/A
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  • Connection to MS
newme
newme created discussion I don't know how to help my daughter
2 months ago
My daughter was diagnosed about two years ago, and I'm very concerned about her. She's in her 40's, has RRMS, and hasn't worked since before DX. She has been an alcoholic in the past, and I believe she is using pain meds that are addicting and possibly has already become addicted. She believes that her friends and family have abandoned her because of the MS. First, this isn't true and second, her behavior is very difficult to deal with. So she is pushing some people away.I can't tell if the MS is affecting her brain so much that she really believes certain things and that's the cause of her poor behavior or if it's the result of drug abuse. I'm very concerned that her MS might be getting worse and she could end up in assisted living sooner rather than later. She won't allow us to go to appointments with her or really help her much. She's been very secretive about her illness. I've educated myself as much as I can for now, but know I will need to continue my education.Has anyone else seen this in their child or other family member? Do you have any suggestions for me?