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monica_dawn
monica_dawn joined the group
2 days ago
monica_dawn

monica_dawn

,
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aquadahlia
aquadahlia joined the group
4 days ago
aquadahlia

aquadahlia

Reno, NV
  • Gender Female
  • Age 30
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efischer37
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17 days ago
efischer37

efischer37

Jenkintown, PA
  • Gender Female
  • Age 53
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Meyersbaby
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18 days ago
Meyersbaby

Meyersbaby

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expressivereflection
expressivereflection joined the group
25 days ago
expressivereflection

expressivereflection

Dumfries,
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myrablee
myrablee joined the group
29 days ago
myrablee

myrablee

Alpharetta , GA
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irishjenn
irishjenn joined the group
1 month ago
irishjenn

irishjenn

, IN
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ssortiz
ssortiz joined the group
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ssortiz

ssortiz

, CO
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imfine
imfine joined the group
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imfine

imfine

,
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jakelabrake
jakelabrake joined the group
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jakelabrake

jakelabrake

Greenville, SC
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acooper6770
acooper6770 joined the group
1 month ago
acooper6770

acooper6770

Woodbridge, CT
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nina333
nina333 joined the group
2 months ago
nina333

nina333

, KS
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  • Age 52
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afiyamj
afiyamj joined the group
2 months ago
afiyamj

afiyamj

Washington, DC
  • Gender Female
  • Age 37
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amy7763
amy7763 joined the group
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amy7763

amy7763

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mserra1244
mserra1244 joined the group
2 months ago
mserra1244

mserra1244

Ronkonkoma, NY
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shaywilk2015
shaywilk2015 joined the group
2 months ago
shaywilk2015

shaywilk2015

Columbus , OH
  • Gender Female
  • Age 26
  • Relationship Single
  • Connection to MS
LPintora
LPintora replied to discussion RE:Mom has PPMS and has progressed very quickly
2 months ago
The Paleo diet will be helpful if she has inflammatory reactions to certain foods (gluten, casein, whey protein, nightshade vegetables...)My father has advanced MS, and two years ago (at 30) I suddenly found out that I have a long list of food allergies and intolerances directly correlated to auto-immune disease (which is rampant on his side of the family). I had my siblings get a food intolerance test (IgG?), and my sister has almost exactly the same intolerances.You and your sister may want to get this test done.Love to you and your family. 
LPintora
LPintora replied to discussion RE:Hello!
2 months ago
You aren't alone.It is so hard when your other parent is not able to be supportive. My parents divorced 12 years after my father's diagnosis, when I was 6 years old. Unfortunately my mother feels a tremendous amount of guilt, because she has essentially left me and my siblings to deal with the problem (though she will fly in sometimes when he is in the hospital). Try to have empathy for your father, even though he is not able to support you.My father, the one with very advanced MS is the parent who will not communicate (he has always been like this). I find this incredibly hurtful and frustrating... and even like I don't really know him as a person. I have started forcing him to open up... to be uncomfortable. It took me a long time to start doing this, and I can only manage it every once in a while. Luckily, I have my siblings who I can talk to... but sometimes that is hard as well. We are a very introverted family and have to make an effort to communicate the most difficult things.We will be in your situation soon. There have been many times when it looked like the end. I am so sorry and all I can say is that I understand... and you are not alone.
LPintora
LPintora replied to discussion RE:MS in multiple family members
2 months ago
You aren't a hypochondriac. Stay on top of this (without going nuts)!I would like to know the statistics as well! My father and his brother both have it. Two of their siblings, their mother, and my brother also have other auto-immune illnesses of varying degrees. On top of that, I have multiple food allergies that are directly correlated with auto-immune disease. In a nutshell... I'm trying not to panic.I don't know how much research has gone on about links within the family, but if you find anything, please share!
LPintora
LPintora replied to discussion RE:I don't know how to help my daughter
2 months ago
It sounds like she also may be in denial about her situation. From what my mother tells me, my father was in denial for years and as a result he did not take care of himself or de-stress his life. His condition rapidly declined within a period of three years. I still see markers of his denial to this day (40 years after he was diagnosed), which result in his poor health.I'm not sure what to tell you, except I would continue to do everything you can to show her love and support, even when she does not want it. Be there for her as much as you can, without compromising your own health, and help her de-stress her life. Going to therapy together might also be useful, if she is open to it.