Activity

maria1
maria1 replied to discussion RE:Daughters Frustration...
19 hours ago
I have a friend who just turned 90, and it is driving him crazy that his son is telling him what he can do and not do.​Your mother is olld enough to know how to take care of herself and what works for her, so please allow her to make her own mistakes. Losing autononmy is the worst hell for any adult. To put it rudely, mind your own business. Your mother made it this far, she must be doing something right.​We msers have instances where things do not go into our memory, it is like words bypass the memory cells. We say yes to doing something but never know we have made plans. It is more pronounced when we are more fatigues. We try to do what we use to do, so we over work all the nerves and our mind does not forget things, it is that the mind never knew, it is just the mouth speaking.​If i had children, I would want them to live their own lives, to enjoy their lives, and to live their lives to the fullest. They are separate, no longer attached, be strong, be independent, pay attention to your family, enjoy them, love them, and let me live my life.​We each have our own self, to be who we want to be, no matter what. Just because we have ms, gives you no right to interfere with how i live my life. Share with me your concerns, because you would be remiss if you did not, and then you have met your oblgation. My life is up to me.​[because i have ms, it makes me sorta angry about being careful about my life, what could be worse? So when i was 61 i got on a horse, even though everyone was scared (not me), there was a grand time for me, no doctors, no babysitters, nobody trelling me anything, me and the horse, i even did some low level jumping, because i wanted the thrill, and of course there were times when i fell off the horse and that was grand too, because i wanted that experience. Things that make me feel good about myself seem to be all i need to have a good life, living with ms. It is unlike anything i have ever known in my life, and as it gets worse, i want my independence more. Be kind to yourself and recognize that your mom is an adult, responsible for herself, and you are not responsible for her, she IS old enough to make her own mistakes.
jacikhouser
jacikhouser created discussion Daughters Frustration...
23 hours ago
My mother has known about her MS for almost 9 years now, she has good days and bad but mostly bad lately. I feel guilty beacuse lately I've been so frustrated with her, lying about MRI results, ignoring symptoms, not taking care of herself like we all think she should. I try my best to help her where I can but I have a two year old daughter and a husband at home who require my love and attention as well. It's straining my marriage and my relationship with her, especially with a new symptom shes developed. She has moments when she blurts out the most rude and hurtful things to me and others around her and then has no recollection of what she has said later. I know she cannot help it but its extremely frustrating along with the other things going on. The guilt is killing me and I just wish someone understood. 
jacikhouser
jacikhouser joined the group
23 hours ago
jacikhouser

jacikhouser

,
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
Anne87
Anne87 joined the group
29 days ago
Anne87

Anne87

,
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
sawyers4
sawyers4 joined the group
1 month ago
sawyers4

sawyers4

Henderson, NV
  • Gender Female
  • Age 49
  • Relationship Married
  • Connection to MS I have MS
thesmyelinkiblets
thesmyelinkiblets joined the group
2 months ago
thesmyelinkiblets

thesmyelinkiblets

Denver, CO
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
khoward003
khoward003 joined the group
2 months ago
khoward003

khoward003

Southport, NC
  • Gender Female
  • Age 30
  • Relationship Single
  • Connection to MS I have MS
juliemhirsch
juliemhirsch joined the group
2 months ago
juliemhirsch

juliemhirsch

West Bloomfield, MI
  • Gender Female
  • Age 45
  • Relationship Married
  • Connection to MS
mumofone
mumofone joined the group
3 months ago
mumofone

mumofone

Alberta,
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
Kim
Kim created discussion FREE AARP Online Family Caregiving Fair, Thursday, November 17th
3 months ago
You’re invited to join The National MS Society at  AARP’s Online Family Caregiving Fair, Thursday, November 17th. It’s a free, live online event you can participate in from your own home!  Connect with fellow family caregivers and get helpful tips, resources and more.By registering today, you’ll be able to connect and get family caregiving resources from The National MS Society, AARP, and nearly 20 non-profit and government organizations including the Administration on Aging, the Alzheimer’s Association, the American Cancer Society, SAGE, the U.S. Veteran’s Administration and Zeta Phi Beta.  Plus, you’ll even have the chance to ask actress and advocate Holly Robinson Peete a question during a live webinar “A Cast of Caregivers” hosted by author and national caregiving expert Sherri Snelling! Register nowCan’t make it on November 17th? You can still register and get access to unique content after the Online Family Caregiving Fair ends! 
tiffanytphilips
tiffanytphilips joined the group
3 months ago
tiffanytphilips

tiffanytphilips

Waldorf, MD
  • Gender Female
  • Age 36
  • Relationship N/A
  • Connection to MS
stephosue
stephosue joined the group
3 months ago
stephosue

stephosue

, OR
  • Gender Female
  • Age 30
  • Relationship Single
  • Connection to MS
kevcorn
kevcorn joined the group
3 months ago
kevcorn

kevcorn

Hillsborough, CA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
ballen517
ballen517 joined the group
3 months ago
ballen517

ballen517

, PA
  • Gender Male
  • Age 58
  • Relationship Married
  • Connection to MS
paulslilmama
paulslilmama joined the group
3 months ago
paulslilmama

paulslilmama

Tehachapi,
  • Gender Female
  • Age 41
  • Relationship Married
  • Connection to MS I have MS
dhiggins99
dhiggins99 joined the group
3 months ago
dhiggins99

dhiggins99

Bristol, RI
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
mimicor
mimicor joined the group
4 months ago
mimicor

mimicor

San Angelo, TX
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS Child has MS
maria1
maria1 replied to discussion RE:Stable MRI but getting worse
4 months ago
Meg, Guilt is usually a sign of wrong doing. Are you showing your children you love them? By giving them good reasons to feel self respect and self worth. Are you spending quality time with them? Watching their actions and instructing them about what they are doing correctly. Are you paying attention when they speak with you? Hearing what they are saying and seeing what they are feeling. Are you teaching them the values you hold dear? Showing them by example, how to treat others, their persons, personal belongings as well as others. ​Being the mom you want to be, has nothing to do with being a good mom. Treasured moments, memories of a lifetime are those minutes spent being the center of someone's world, filled with happiness and love. All children want and need is love. If you are showing them they are wanted and loved then you are being a mom I wish I had had. maria 
Meg-Jaxx
Meg-Jaxx created discussion Stable MRI but getting worse
4 months ago
Several issues have been getting worse, but there is nothing new on my MRI, which I don't understand.I have 2 teenagers and I have so much mom guilt for not being able to be the mom I want to be
Meg-Jaxx
Meg-Jaxx created discussion Stable MRI but getting worse
4 months ago
Several issues have been getting worse, but there is nothing new on my MRI, which I don't understand.I have 2 teenagers and I have so much mom guilt for not being able to be the mom I want to be