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MS vs. Airport Assistance

Blog Summary

After our last holiday to Nashville, Tennessee, I had to do something about how I navigate the airport. I could not be ill on this holiday. Not like last time.
 
I had never heard of “airport assistance” until I came across it on an MS group on social media...

The Adequation Complex

Blog Summary

“One of the most important things to someone with a chronic illness is to be treated as an equal. Having MS does not make me any different than someone who does not.” This was something I used to tell myself every single day since my diagnosis—it got me through the hard times and inspired me to live my highest quality of life. But as I get older and the 4 year anniversary of my diagnosis approaches, I find myself questioning if this is really the case...  

Lessons for My Children

Blog Summary

I still check on my boys every night—I don’t think they will ever be too old for me to peek in while they sleep, marveling at these gifts I have been given.   They’re growing up so fast, and some nights I can’t help but worry. That the world won’t be kind to them. That life won’t treat them fairly. That I won’t always be there to protect them...

Rise Up

Blog Summary

Resilience is the capacity to recover from difficulties and finding your strength within. Where do I begin? I’m 39 years old and have been through my share of difficulties. If I’ve learned anything, it’s that no matter what happens, you have to get back up and fight all the curve balls that this life throws you...

MS, Climate Change and Kiribati

Blog Summary

The date was October 24, 2007. It was my second year at the University of Pittsburg’s Anthropology Ph.D. program when MS hit. Within minutes of arriving at the school’s Halloween festival, I lost my vision, ability to talk and walk. Rushed to the hospital, I was diagnosed with MS and placed on a disease-modifying therapy, Avonex, within hours.​..

Life as We Know It

Blog Summary

I recently walked our two boys to town to get pizza, and I ran into another mother from the neighborhood. She was alone and bringing pizza home for her kids because she and her husband were going out for a much-needed date night.     "It's so important to make time to do that, you know?" she said to me, looking for relatability as I tried to wrestle a handful of napkins from my three-year-old before he tore them into confetti in the restaurant...

How a Shirt Can Make All the Difference

Blog Summary

So, this is one of those blogs you may or may not completely agree with.   Now, don’t get me wrong—I know a shirt or pair of sneakers won’t exactly cure your MS, but it can certainly make a difference...

When Fatherhood Meets MS

Blog Summary

It bothers me. I want to do more. Be part of more. See more. And I think, for any father, the “more” is what truly matters. It’s being there for them and, as a result, your children knowing that you are there for them… always...

Is This MS?

Blog Summary

There was one thing to always look forward to on sick days when I was a child, other than staying home from school. It was watching The Price is Right. A box of Kleenex, some cough medicine, plain toast and that beloved game show were sick day staples. I’m not even sure why I enjoyed the show so much as a kid—I had no real sense of money and the numbers that the contestants shouted out just seemed arbitrary. I’d still play along, though...

You Are Not Alone: MS and Incontinence

Blog Summary

Because MS affects the central nervous system, it’s difficult to predict what symptoms each person will have. MS can cause complications with vision, muscle control, balance and other basic functions. One of the most common, and to be honest, often embarrassing symptoms is incontinence...

“Because She’s Sick”

Blog Summary

Have you ever experienced someone else’s ignorance or intolerance about your MS? Have you ever had someone make you feel different or isolated from the rest of the world? Well you are not! You have MS but MS does not have you; never let someone feel like less than you are. This is my wake-up call and message to those who feel this disease defines who we are:...