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Not ______ Enough

Blog Summary

I will never forget the first time I felt “less than.”

I was onstage and in costume, ready to perform for the very first time at the local Greek festival. Our dance troupe director was welcoming the audience and explaining the origin of our opening number. The girl standing next to me in line started to ask the dancers in the immediate area “how much Greek” they were. She went down the line...

Appreciating Myself and All That I Am

Blog Summary

I don’t know if anyone else experienced this, but after my diagnosis, I felt like half a person. I felt like everyone around me could see that I was “incomplete” because of the way I walked, slurred my speech or lost my ability to write my name. Bouncing back from this initial shock wasn’t easy. Through my journey with MS, I’ve struggled to accept that I will not be able to do certain things all the time. Sometimes my friends want to go hiking on the weekend and my body just says “No!” There are days where I want to accomplish so many things and I have to face the reality that I’m celebrating the fact that I even got out of bed that day. This is reality.

Can't Stand Ya

Blog Summary

I can’t stand. That’s the entire sentence—not an abridged version or a double entendre. I really have a difficult time standing in place...

Repairing Myelin to Restore Function

Blog Summary

There were many talks about some really interesting and promising research at the 2018 ACTRIMS Forum. What’s great is that you can browse the online abstracts (scientific summaries) of the ACTRIMS Forum presentations and posters to see for yourself.   One of the most interesting and exciting talks I heard was presented by the latest winner of the Barancik Prize for Innovation in MS Research, Dr. Robin Franklin from Cambridge University. This is the first time that the Barancik Prize has been presented at the ACTRIMS Forum, and he gave a great lecture (here’s a video that introduces Dr. Franklin, in case you’re interested)...

Did You Know?

Blog Summary

Greetings from the ACTRIMS Forum 2018! This 3-day meeting brings together almost 1,000 MS-focused health care professionals, such as researchers and neurologists, and lets them share their latest research findings. I wanted to share with you a few of the amazing things I’ve learned so far at this inspiring meeting.   There are plenty of lectures from experts who were invited to review the latest research on specific topics. Then there are also presentations by investigators who submitted summaries of their results to the meeting organizers, for possible acceptance as either lectures or as posters. I happen to love poster sessions. Kind of like a science fair, you can go up to researchers and their posters and talk to them about their work...

Little Engine that Could

Blog Summary

I hope to have grandchildren someday, but before I do, I have been gaining valuable experience from my niece’s daughter who is four and a half. Wow! Does this little one have energy! When I found out my niece and her family will stay at our home for a weekend, I looked around our home to see if we had any age-appropriate toys and books to keep her occupied...

The Endless Possibilities

Blog Summary

The beginning of the New Year brings endless, powerful emotions. Emotions that make you want to become your best self and conquer all of the things that have tried to stop you in the past.   2018 does not just come with new goals for my nutrition, fitness, life experiences, or career; I am going to make 2018 my year where I finally feel more in control of my MS. I know, this is an incredibly bold statement to make, as relapsing remitting MS is an extremely unpredictable disease. But through close monitoring, adhering to my medication and constantly striving to become my healthiest self, I will become stronger than MS!...

Employment and MS

Blog Summary

For many of us, our careers define a large part of our identities. Conversely, an MS diagnosis can put a wrench in how we view and think of ourselves in the workforce. As an unpredictable disease, MS can have varying effects on a person’s ability to work—whether an individual can continue to do the same kind of work, or even work at all. Most people are diagnosed with MS between the ages of 20 and 50—their prime career years. At this age, many people have already completed their advanced training and education, and they’ve been working and moving up the career ladder...

My Resolution

Blog Summary

The holidays can be a difficult time for those living with MS. Some of us struggle with travel, or with the reminder that relationship dynamics change, and having to work double time to keep symptoms in check during flu and party seasons.   So with the start of the new year, it’s the perfect time for reflection, to gather ourselves and to perhaps  make some New Year’s resolutions...

I Found a Penny

Blog Summary

It wouldn’t be a life changing event for most people – nothing like winning the lottery. No, just one cent. I found what is one one-hundredth of a dollar on the ground while camping, yet this brought a smile to my face. ‚Äč Let me explain. I had found a penny on the ground 15 years ago, too. I was in a shopping mall, just wasting nervous energy while waiting for my neurology appointment. I’d been diagnosed with MS a few weeks before, and since this disease initially affected my vision, I had taken a leave of absence from my job as an RN in the operating room. I was waiting for the okay to go back to work...
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