Is it possible to look presentable with MS?
Being young and having MS comes with a lot of challenges. One of which is the ability to be trendy/well-presented whilst battling weak limbs, pain or hands that don’t always work...
Menzies. That time of the month. Aunt Flo’s visit, whatever you want to call it. For some reason, talking about this seems to be a taboo subject.
It affects half of the population every month, so why do we not talk about it more?..
Sometimes it can be difficult to live with those pesky MS symptoms that get in the way of the things you actually want to do. It makes it harder that no one else can see or understand the illness too, right?
The thing that makes symptoms even harder to deal with is when a loved one or a friend starts to put their ailments onto you. You know what I’m talking about. When someone tells you they are also exhausted, they also “didn’t sleep well” and they also “have terrible back pain.” Am I right in saying your first thought is, “well it’s not as bad as mine?”...
Invisible illness comes with many ups and downs along the journey. When you’re first diagnosed and suddenly find yourself living in a hospital, it can come as a bit of a shock. You may have to have tests you’ve only ever seen on Grey’s Anatomy, or even start on a medication that involves something you’re not used to. For me it was my first injectable treatment—I just couldn’t get on with it. I remember having panic attack after panic attack.
When I was first diagnosed 6 years ago, I was petrified of needles. Blood tests, I found, were always really difficult for me. I’d be sitting in the waiting room, palms sweating, heart beating like crazy, I couldn't breathe. Constantly thinking to myself, “I can’t do this...”
I had huge plans for when I left university. I was going to start my new career as an illustrator! I had big dreams of everyone owning something with one of my designs on it. I managed to find an agent to represent me at major trade shows, and I even had a book deal while I was still at university! I was so excited. All I needed to do was to finish university.
But life never quite goes as you expect it to go, does it?...
“I can’t do that I have MS”
“I would never manage it”
“I’d love to do it but I just couldn’t”
“I’m too tired to exercise”
This is what I used to say to myself for at least 5 years after my diagnosis...
In my opinion, the number one most annoying thing about life? Cleaning.
I used to love cleaning. I remember when I got my first apartment at 19, I’d get up early every Saturday morning to clean and scrub every inch! I’d feel ridiculously house-proud and like a proper “adult” for the first time in my life...
I think it’s time I tell you about the secret that helps keeps me going.
She’s my one constant that I can count on. Just seeing her can change my whole day from bad to good, in an instant...
Isn't it amazing how a piece of card with your picture on can be the biggest help, yet the biggest hindrance at the same time?
From the perspective of a 20-something-year old who doesn't need a wheelchair, but still has a disabled permit, the following is what generally goes down...
How does the term “disabled” make you feel?
For some people, it might be an easy transition. It might feel right for you, and if that is you, that’s okay...