MS Connection Blog

Share

When you gotta go

Blog Summary

This blog was originally published on March 21, 2016 and updated on November 9, 2018.
 

Where’s the restroom?

There are so many symptoms with MS that a bunch of them often get glanced over. The one that has been the most active for me lately is incontinence. The opposite of constipation, incontinence is where your bladder is going to empty NOW; with as little notice as possible. I never thought that at 31, I would be like my grandmother and know where every bathroom in the county is. It can be super frustrating when out of nowhere, you have to go...

Learning to like my cane

Blog Summary

Ten years ago, I never would have thought I'd be 27 years old going to Wal-Mart at 11pm to hastily shop for a cane. I didn't even know the proper hand to hold it with. I found a $12 black collapsible cane that wasn't terrible and I was happy to have something for the next morning's commute. Getting to and from work had become pretty tough; it took 2 ferries and 2 busses with plenty of walking in between. That first commute with my new cane was a learning experience, that's for sure. Right off the bat I noticed people's glances lasted longer. If my tattoos and piercings didn't get their attention, the cane sure did. I could sense the frustration of people having a hard time getting around me in the crowds. My coworkers on the other hand were super helpful and supportive...

Sex, Intimacy & MS

Blog Summary

Intimacy with a neurological disease can make things interesting, to say the least. At 25 years old I never thought I would have to worry about my ability to have sex with my wife. It's not a symptom of MS many people want to talk about. But I am not scared. There have been many ups and downs (hehe) along the way. At one point I decided to try the pharmaceutical route — you've seen the commercials. Do they work? Yup! But the side effects that I experienced were uncomfortable. My face was a bright glowing red and I couldn't breathe through my nose. It was awkward to be ready to go while feeling so terrible, and Meg could see my discomfort. It was all around bad. I tried taking a much smaller dose which helped a lot, but not enough...

Fatigue

Blog Summary

Fatigue: how many of you can get through the next few paragraphs without nodding off? Probably not this guy. When I start sharing all the wonderful symptoms that MS throws my way, so many people want to skip over fatigue and go right to the numbness. Most folks have a pretty good idea of what the word "fatigue" means and how it feels in general. But for me, using that word to describe the kind of exhaustion I experience doesn’t seem specific or accurate enough. When that tired sets in, I can’t just wait it out. It's not like being worn out from a workout, where you can recover with a few hours of rest. While I’ve learned that certain things can make the tired come on strong, it can be hard to predict when it’s going to slap me in the face next. A trip to the grocery store, or just a day out with the fam can be pretty good precursors to having a day of the sleeps. Sometimes for no good reason, I will nod off at the dinner table. Once those eyelids get heavy, it’s lights out. There are even days when I think my fatigue might border on narcolepsy...

Seaside

Blog Summary

I was diagnosed with MS in 2010 and it was a turning point in not only my life, but also my marriage. The first few months were full of uncertainty and tears but the one constant was (and continues to be) my amazing wife Meg. In the first year, I lost more than some people do in a lifetime of battling MS. With every flare up the fear of what I might lose next is always present. MS has changed so many things in our lives, but we will not let traveling be one of those things. As I transition into secondary progressive MS, Meg and I are ready to document and share our journey. And with our 8th Anniversary just around the corner I can’t help but look back...