MS Connection Blog


What I Want My Legislators to Know About My MS

Blog Summary

I was diagnosed with multiple sclerosis in October 2010. I was 27 and had a daughter who just started kindergarten. I was working full-time as a nurse in a busy local practice. I had just started dating the man who would later become my husband. As time went on after diagnosis, my family and I moved forward, and transparently fought our battle, sharing with everyone we came in contact with what life with multiple sclerosis was like for us.
Eight years after diagnosis, I started realizing that the majority of public policy discussed was having a direct impact on my life. I started to focus in on how vital talking with our legislators is and what I wanted my legislators to know specifically about my life with MS...

Dear Dad

Blog Summary

Dear Dad,   Telling you I have MS is the hardest thing I’ve had to do yet. Harder than telling you someone wanted to marry me, I was pregnant with the first grandchild or that a divorce was on the horizon. More difficult than I am moving away, I am changing jobs or I have fallen short of the dreams we dreamed together...

MS Allies

Blog Summary

“What can I do to help” is a phrase I often hear. Usually, the offer of help comes right after I tell someone that I live with MS, or sometimes comes after the person has learned of a close friend or family member living with MS and reach out to me to ask what steps to take next.   I have an answer...