MS Connection Blog

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That Was Then, This is Now

Blog Summary

I first heard the words, “You have multiple sclerosis,” in 1986. I had no idea what that was or how I got it. How could this happen to me at the age of 28? I had my whole life in front of me. What would become of me? How will my life change? Will my boyfriend still love me? Will I die from it?
 
I had so many questions, and there were not many answers...

How I Use My Voice for Better Care

Blog Summary

As I journey past the 30-­year mark of my life with multiple sclerosis, I am profoundly grateful for the research advances that have taken place since my diagnosis. They allow people in the MS community to hold on to hope while living with an unpredictable and incurable disease. In the dark ages of my diagnosis I felt scared and alone. With no FDA-approved medications and the internet in its infancy, I didn’t know where to turn. My world went from living color to black and white. From the angst and loneliness I felt, along with the absence of a treatment to control my disease, I became angry and frustrated. How could I possibly be proactive about my health when the medical community could only recommend I go home, rest, and call if I had a flare-up? My future looked bleak...