MS Connection Blog

Share

Working for Veterans

Blog Summary

On March 6, 2019, the National MS Society entered into a four-year Memorandum of Agreement with the Veterans Administration. This partnership will provide veterans living with MS comprehensive and coordinated care and services. Society president and CEO Cyndi Zagieboylo, a proud daughter of a veteran, reflects on what this means:...

Putting the Frosting on a Diagnosis

Blog Summary

When I was diagnosed with MS, I had four children under the age of six. Yep, 4 under the age of 6.    When I began experiencing numbness and tingling in my limbs, I was convinced I had a pinched nerve. I only went to the doctor because my HMO required a referral to see a specialist...

Always Looking Ahead

Blog Summary

There was a moment in my life when I just paused. I paused because of the uncertainly that was hidden right before my very own eyes. That uncertainty was delivered in four very short words in March of 2008, “You have multiple sclerosis.” Like many of us who have had to hear that same phrase, we have no idea what MS looks like from the outside because for some individuals, you will never even know… but we know what havoc it’s wrecking on the inside. At just 18 years old, I had to “power up” and accept the fact that I was now going to live with a disease I knew nothing to little about, except for what the dreaded search engine was telling me: no cure, disability, wheelchair bound and a lot of big medical terms...

How to MS Like a Boss

Blog Summary

How do you MS like a boss?! How do you “own it?” How do you feel more self-empowered with MS?   I was super inspired by the recent actions of ultimate-MS-boss Selma Blair beautifully displaying herself on the red carpet at the vanity fair Oscar party for the first time since her multiple sclerosis diagnosis...

Walking the Walk

Blog Summary

A few months ago, I was sitting in my car in a parking lot, and I saw a car pull into a disabled parking place. No one hung a disability placard on the rearview mirror, and I saw a young man jump out and head for the store.   “Hey, that’s a disabled parking place,” I yelled at him...  

Twice as Many

Blog Summary

As an invisible illness, it’s often difficult to know if someone lives with MS. So, it comes as no surprise that many of us have a connection to MS we may be unaware of.And the odds of our connection have just increased...

Run a Myelin My Shoes

Blog Summary

We are “Run a Myelin My Shoes” (RAMMS), a team of 96 people from 25 U.S. states and 16 nations. 49 of us live with multiple sclerosis (MS); 47 are our support heroes. On October 21, 2018 we came together from every continent across the globe to participate in the Detroit Marathon. This is our story. “If you had one shot Or one opportunity To seize everything you ever wanted In one moment Would you capture it? Or just let it slip?”...  

Cleats for a Cause

Blog Summary

While some symptoms of MS are visible, often times, they’re not. Symptoms like fatigue, numbness, tingling and mood changes can bring a chorus of, “But you don’t look sick” comments your way. Many celebrities, musicians, actors, athletes and politicians have decided to use their platforms to shine a light on what it means to live with MS...

Never Say Never

Blog Summary

You know the saying, “never say never?” Well, I continually remind myself of this since my diagnosis 13 years ago. First it was, “I will never marry someone in the military or shorter than me.” And then I did both. I have told myself multiple times, “I will never do a marathon,” and I have done Challenge Walk MS (50 miles in 3 days!) twice and recently ran in a marathon relay. It’s so easy to say no to things, especially if the challenge seems too daunting because there is a fear that MS may prevent you from accomplishing something. This fear, in turn, overshadows the possibility that you really can do it...

When You Have MS, Politics is Personal

Blog Summary

Sincelast summer’s failed congressional efforts to repeal many provisions of the 2010 Affordable Care Act (ACA), the hashtag #IAmAPreExistingCondition has peppered countless social media updates. Current and former cancer patients use it on Twitter, Facebook, and Instagram. Asthma sufferers post it, too. Ditto for people with diabetes, mental health issues and heart ailments...

The Heart of Service

Blog Summary

I often divide my life with MS into two parts: BC (Before Chair) and AD (After Disability). I was diagnosed with MS in 1988, the beginning of BC. At the time, I think I was in denial. I dealt with problems as they came up, and I pushed it to the back of my mind. It wasn’t until 1993 when I had a particularly bad exacerbation that AD began. That’s when I went into a wheelchair...