My neighbor and I have been friends for 30 years. I have no doubt that she holds me to a high regard, as I do her. But when she asked me if I had a hard time being “crippled,” I literally felt a chill run through my body.
I have MS, and I use a cane or walker to get around. In my mind, that does not make me “crippled.” But even if I was unable to walk at all without a mobility device, I would still feel uncomfortable being referred to by that term. It conjures up an image of helplessness that is not only inaccurate, but robs me of my dignity...
Isn't it amazing how a piece of card with your picture on can be the biggest help, yet the biggest hindrance at the same time?
From the perspective of a 20-something-year old who doesn't need a wheelchair, but still has a disabled permit, the following is what generally goes down...
The Internet is indeed a mixed blessing. The good news is that there’s an amazing amount of information out there. The bad news is that there’s an amazing amount of information out there.
As an individual with multiple sclerosis, I have of course surfed the web, looking for answers. Once I learned how to separate the truthful and credible information from the wacky and even dangerous stuff, I learned a great deal...
How does the term “disabled” make you feel?
For some people, it might be an easy transition. It might feel right for you, and if that is you, that’s okay...
That’s what we’re all looking for, isn’t it?
The truth is, when you find your zen, it is much easier to heal. I don’t mean heal in the sense of “find a cure,” but rather in the sense of “I am happy with my life and feel like I am the best person that I can be, disease or not.” I’m confessing to you that I’m the latter...
Sometimes, MS is one of those diseases that is nearly impossible to hide. Whether we walk with a gimp or we use a wheelchair, it’s hard to act like it isn’t there. On the hard days, all I hear is “are you alright?” “do you need assistance?” or “what’s wrong with you?” On the hard days, I just want to disappear. On the easy days, I am just like everyone else–my disease is invisible, and I am unstoppable. This is awesome, right? Maybe to me and the people who know me, but to the people completely outside of my circle, I am just seeking attention because I don’t have a “real” illness.
Each and every one of us works hard to function at our best–whether it be for a wedding or just walking down the block. We don’t want MS getting in the way. We train, we practice, and we gather up all of the courage we have to make that goal a reality and when it happens, it’s truly an amazing feeling! But what feeling is more powerful–the feeling of finally having what feels like an MS-free day, or the feeling of discouragement when someone accuses you of not really being sick?...
How can I describe my mother? She is smart, funny and kind, and is devoted to her faith and her family. More importantly, everyone loves her. What do people comment most about her when they meet her? Her smile.
In 1984, my mom was diagnosed with progressive multiple sclerosis at the age of 38. Before her diagnosis, my mother was active. She worked in the school. She had many friends. With this, our family was devastated, relationships were challenged and family roles shifted. In my heart, I lost my mother.
On March 6, 2019, the National MS Society entered into a four-year Memorandum of Agreement with the Veterans Administration. This partnership will provide veterans living with MS comprehensive and coordinated care and services.
Society president and CEO Cyndi Zagieboylo, a proud daughter of a veteran, reflects on what this means:...
When I was diagnosed with MS, I had four children under the age of six. Yep, 4 under the age of 6.
When I began experiencing numbness and tingling in my limbs, I was convinced I had a pinched nerve. I only went to the doctor because my HMO required a referral to see a specialist...
There was a moment in my life when I just paused. I paused because of the uncertainly that was hidden right before my very own eyes. That uncertainty was delivered in four very short words in March of 2008, “You have multiple sclerosis.”
Like many of us who have had to hear that same phrase, we have no idea what MS looks like from the outside because for some individuals, you will never even know… but we know what havoc it’s wrecking on the inside. At just 18 years old, I had to “power up” and accept the fact that I was now going to live with a disease I knew nothing to little about, except for what the dreaded search engine was telling me: no cure, disability, wheelchair bound and a lot of big medical terms...
How do you MS like a boss?!
How do you “own it?”
How do you feel more self-empowered with MS?
I was super inspired by the recent actions of ultimate-MS-boss Selma Blair beautifully displaying herself on the red carpet at the vanity fair Oscar party for the first time since her multiple sclerosis diagnosis...