I hadn’t left my house in weeks. Out of an abundance of caution, I had self-quarantined before it became mandatory by my state.
Usually, I would have had my “Infusion Day bag” with me: phone charger, sweater and lunch. But this time, my infusion would be different than the last five times...
When I realized that my Ocrevus infusion was scheduled shortly after the COVID-19 outbreak and initial uproar (scheduled for mid-April), I began to panic. Since I work in a hospital and am around germs constantly, I was not so much worried about being in the hospital to receive my medicine… I was mainly worried about not being able to get it at all.
With almost all elective procedures being put on hold, I was terrified that they would stop outpatient infusions completely. Therefore, I decided to call my neurologist and propose that we move up my infusion a few weeks to get it in and over with before things get worse from a virus standpoint. He agreed with that proposal and helped speed up my prior-authorization approval, and I was able to get my infusion about two weeks early...
The National Multiple Sclerosis Society is working with experts across the world to learn more about COVID-19 and how it impacts people living with multiple sclerosis.
The latest findings include MS therapies being studied as possible COVID-19 treatments, the role of inflammation in severe cases and the risk of complications from COVID-19...
This is boring! Humans were not meant to stay inside all day, every day. But the current pandemic has driven us to this universal isolation, and we are feeling its consequences.
It can be much worse for those of us with MS, for several reasons. Depression is often a neurological symptom of our disease, as are mobility and vision problems. These can often make us afraid to venture outdoors, even in a pandemic-free environment, and now we don’t have a choice...
“Your results are positive.”
Those were the words the nurse says to me over the phone. Now, often times in life, you want to hear positive test results. When I received my positive pregnancy test results for both of my children, I was ecstatic! Positive results for COVID-19? Not so much...
I live in San Francisco with my husband, two kids and dog. As I sit to write this, I’m reflecting on the past three weeks of our shelter-in-place and social distancing guidelines as mandated by our public officials, Mayor London Breed and Gov. Gavin Newsom because of COVID-19.
I was diagnosed with MS in 2015. Normally, I spend my days managing my family. Waking up, getting the kids fed and to school on time. A win every time that is accomplished because all parents know getting up and out of the house can be challenging. I exercise (something that is very important to me because of my MS) and then spend the rest of my day running errands (Target, grocery shopping, getting snacks and dinner ready, etc.), attending meetings for my volunteer projects, walking the dog, being a landlord and trying to spend time with my 93-year-old grandma...
As I sit alone in my house, I am becoming familiar with the sounds it makes I never noticed before. The ticking of the clock is soothing, the dropping of ice in the freezer startles me and the subtle noise of the furnace turning on calms me. I am not usually alone with only the noise of my home. You see, my home is usually full of life. I normally cannot hear the sounds of my home over the sounds of my two boys and their friends. I must admit that I miss the sounds of the water running forever in a way too long shower, the microwave heating up a second and third dinner, and the monotonous commotion of endless video games.
I reflect on many things during my time in quarantine. Why did I get MS? Why do I have to get treatment once a month? Why am I always tired? Why does my hand go numb? Why can I not walk a mile without foot drop?
March is multiple sclerosis awareness month. Well, on the calendar it is.
But this past March, the world has been occupied with COVID-19. So, naturally and rightly so, our attention and efforts have shifted to keeping ourselves, our families, our communities and the world safe. Life has gotten insurmountably scarier for those of us who are medically compromised, and I imagine it's intimidating for many others as well. I won't attempt to compare COVID-19 and multiple sclerosis. However, the same empathy, compassion and support we desire for the MS community should be extended to people and families impacted by COVID-19. While we continue to support each other, I'm confident that our amazing medical professionals and government will get a handle on this crisis and life will prevail...
People with multiple sclerosis are the reason the National MS Society is here, and we know this time of uncertainty can be unsettling. We are working closely with our partners around the globe to bring you the latest, most accurate information possible to keep you and your families safe as we move through the COVID-19 pandemic together.
Here are some of the recent questions asked on our Ask an Expert call...
Because of COVID-19, many of us who take disease-modifying therapies for MS are stuck in a tricky situation. How cautious do we need to be? How high IS the risk? If we are due for another infusion or dose of medication, should we take it or wait a few weeks? How isolated do we need to be?
I just had my infusion (with ocrelizumab) two weeks ago, which suppressed my immune system in order to control my MS. These questions of risk are personal and real...