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Answering Your COVID-19 Questions: Part 2

Blog Summary

The National Multiple Sclerosis Society is working with experts across the world to learn more about COVID-19 and how it impacts people living with multiple sclerosis. The latest findings include MS therapies being studied as possible COVID-19 treatments, the role of inflammation in severe cases and the risk of complications from COVID-19...

MS vs. Menzies

Blog Summary

Menzies. That time of the month. Aunt Flo’s visit, whatever you want to call it. For some reason, talking about this seems to be a taboo subject.   It affects half of the population every month, so why do we not talk about it more?..

Being Chronically Ill Does Not Mean Giving up Life’s Joys

Blog Summary

There comes a point with every type of situation in life (especially when you have a chronic illness) where unsolicited advice becomes more harmful than helpful. As I get older, I’ve learned to ask others if they would actually like to hear my opinion on their situation. I was a certified nutritionist for two years in my spare time, specializing in fitness nutrition. I am educated and aware of how to feed my body to feel my best; that doesn’t mean I’m going to eliminate the foods that don’t necessarily make me feel tip-top all the time. I openly share my journey on social media, and I love the opportunities and connections that decision has brought me – however, it also comes with a price...

Fearlessness

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My second solo trip to my hometown was during the peak of summer from April to May in India. One day, I went to visit my aunt. I sat on a sofa and after a chit-chat, my eyes were on the stairs in front of me that had no railing. In the past, I was scared to climb those stairs because of my MS symptoms. But that day I did not have the same fear, and when my aunt went inside, I started climbing up...

My New 5-Inch Heels

Blog Summary

1993 was a normal year. I was a 20-year-old classically trained opera singer with a normal life. I was a tall female, and it always seemed like I was getting the short end of the stick in relationships. I didn’t know it, but another short end of a whole new stick was heading my way.  In December, my left arm went numb. Blood tests, an MRI and a variety of other tests were performed. Brain cancer and Lou Gehrig’s were offered as possibilities, but nothing certain. Advice was to observe and watch. For two years, there were no additional symptoms, which put me in the persistently uncertain world of “no news is good news..."

Everyone Else’s

Blog Summary

Sometimes it can be difficult to live with those pesky MS symptoms that get in the way of the things you actually want to do. It makes it harder that no one else can see or understand the illness too, right?   The thing that makes symptoms even harder to deal with is when a loved one or a friend starts to put their ailments onto you. You know what I’m talking about. When someone tells you they are also exhausted, they also “didn’t sleep well” and they also “have terrible back pain.” Am I right in saying your first thought is, “well it’s not as bad as mine?”...

Check List: Managing MS Through the COVID-19 Crisis

Blog Summary

Managing MS is challenging, given its unpredictable nature. Managing MS in times of stress – such as we are all experiencing now with the COVID-19 pandemic – can make it even more challenging. Here are a few tips and resources that may help you and your family manage through this very difficult time...

3 Mindset Hacks to Reduce Your Anxiety

Blog Summary

Invisible illness comes with many ups and downs along the journey. When you’re first diagnosed and suddenly find yourself living in a hospital, it can come as a bit of a shock. You may have to have tests you’ve only ever seen on Grey’s Anatomy, or even start on a medication that involves something you’re not used to. For me it was my first injectable treatment—I just couldn’t get on with it. I remember having panic attack after panic attack.   When I was first diagnosed 6 years ago, I was petrified of needles. Blood tests, I found, were always really difficult for me. I’d be sitting in the waiting room, palms sweating, heart beating like crazy, I couldn't breathe. Constantly thinking to myself, “I can’t do this...”

How My Superpower Fights Multiple Sclerosis

Blog Summary

From the moment of my diagnosis, I was determined not to let MS defeat me. Although I was terrified of what MS would mean for my future, I slowly gathered my armor; (information), made my battle plan (improved diet, exercise, sleep and stress management strategies) and planted my feet for a fight. Lines were drawn between me and my immune system, both sides gaining and losing ground. While I hoped for a truce, I diligently worked on fortifying myself from the inside out, but MS was persistent. Through the years, I learned to acknowledge and trust in attributes that I never knew I had. I came to understand that these qualities were secret weapons to help me in my fight toward wellness.

Gaining It All Back

Blog Summary

Processed food came on the scene when I was in grade school. My mother was working full time when I was in fourth grade, plus another part time job when I was in high school. I had three sisters and a brother. I remember spending a lot of time home with my sisters and brother, but I don’t really remember my mom being there, so she must have been working many hours. I remember sitting down for dinners and picking numbers (small numbers on yellow pieces of paper that were thrown into a hat), to allow you to pick the leftover of your choice. This was a great game. Would it be left over hamburger helper, casserole, mac and cheese? I remember the big gallon jugs of milk and cheese we always had and the bread we ate. Food was our gathering spot, where my brother and I got tested for spelling, where we fought over the leftovers from previous nights...