MS Connection Blog

Share

Back to Square One

Blog Summary

“Just when I thought I was out, they pull me back in!” 
 
Anyone who has seen the classic Godfather trilogy remembers this iconic line from Michael Corleone in the final chapter of the saga. Unfortunately, this was the one good line in a pretty disappointing movie. Or, at least we can all agree that the third one wasn’t as good as the first two. Another thing we certainly can agree on is that 2020 feels like we are all in a bad movie. And, as a person living with multiple sclerosis in this bad movie, I can totally relate to Michael Corleone’s line...

What I Wasn’t Told

Blog Summary

When I was diagnosed with MS, I was told a lot of things about how I should treat my condition from a medical standpoint—I was told what MS is. I researched MS and realized that my life was going to change.   But there were a lot of things that I wasn't told. They weren't intentionally hidden from me; because I honestly don't think these things are relevant from a medical standpoint. How MS would change me over the following 13 years couldn't have been anticipated by a doctor or internet story...

Man Up vs. Open Up

Blog Summary

As a young boy growing up in Winston-Salem, North Carolina, I heard this phase a lot. You have to “man up” and don’t show your feelings or emotions. Showing your emotions/feelings was a sign of a weak man. This all changed when I had to come around and man up about my multiple sclerosis diagnosis with my children and wife of seven years. You see, I was a single parent for a long time, so I thought I had to be a tough disciplinarian, without showing my feelings or emotions. Remember, this was part of my DNA...

Constant Reminder

Blog Summary

Day and night, on good days and bad, it’s always there. Watching. Waiting.   I’m talking, of course, about my multiple sclerosis DMT injection...

Answering Your COVID-19 Questions: Part 2

Blog Summary

The National Multiple Sclerosis Society is working with experts across the world to learn more about COVID-19 and how it impacts people living with multiple sclerosis. The latest findings include MS therapies being studied as possible COVID-19 treatments, the role of inflammation in severe cases and the risk of complications from COVID-19...

MS vs. Menzies

Blog Summary

Menzies. That time of the month. Aunt Flo’s visit, whatever you want to call it. For some reason, talking about this seems to be a taboo subject.   It affects half of the population every month, so why do we not talk about it more?..

Being Chronically Ill Does Not Mean Giving up Life’s Joys

Blog Summary

There comes a point with every type of situation in life (especially when you have a chronic illness) where unsolicited advice becomes more harmful than helpful. As I get older, I’ve learned to ask others if they would actually like to hear my opinion on their situation. I was a certified nutritionist for two years in my spare time, specializing in fitness nutrition. I am educated and aware of how to feed my body to feel my best; that doesn’t mean I’m going to eliminate the foods that don’t necessarily make me feel tip-top all the time. I openly share my journey on social media, and I love the opportunities and connections that decision has brought me – however, it also comes with a price...

Fearlessness

Blog Summary

My second solo trip to my hometown was during the peak of summer from April to May in India. One day, I went to visit my aunt. I sat on a sofa and after a chit-chat, my eyes were on the stairs in front of me that had no railing. In the past, I was scared to climb those stairs because of my MS symptoms. But that day I did not have the same fear, and when my aunt went inside, I started climbing up...

My New 5-Inch Heels

Blog Summary

1993 was a normal year. I was a 20-year-old classically trained opera singer with a normal life. I was a tall female, and it always seemed like I was getting the short end of the stick in relationships. I didn’t know it, but another short end of a whole new stick was heading my way.  In December, my left arm went numb. Blood tests, an MRI and a variety of other tests were performed. Brain cancer and Lou Gehrig’s were offered as possibilities, but nothing certain. Advice was to observe and watch. For two years, there were no additional symptoms, which put me in the persistently uncertain world of “no news is good news..."

Everyone Else’s

Blog Summary

Sometimes it can be difficult to live with those pesky MS symptoms that get in the way of the things you actually want to do. It makes it harder that no one else can see or understand the illness too, right?   The thing that makes symptoms even harder to deal with is when a loved one or a friend starts to put their ailments onto you. You know what I’m talking about. When someone tells you they are also exhausted, they also “didn’t sleep well” and they also “have terrible back pain.” Am I right in saying your first thought is, “well it’s not as bad as mine?”...

Check List: Managing MS Through the COVID-19 Crisis

Blog Summary

Managing MS is challenging, given its unpredictable nature. Managing MS in times of stress – such as we are all experiencing now with the COVID-19 pandemic – can make it even more challenging. Here are a few tips and resources that may help you and your family manage through this very difficult time...