MS Connection Blog


When you gotta go

Blog Summary

This blog was originally published on March 21, 2016 and updated on November 9, 2018.

Where’s the restroom?

There are so many symptoms with MS that a bunch of them often get glanced over. The one that has been the most active for me lately is incontinence. The opposite of constipation, incontinence is where your bladder is going to empty NOW; with as little notice as possible. I never thought that at 31, I would be like my grandmother and know where every bathroom in the county is. It can be super frustrating when out of nowhere, you have to go...

I Got 99 Problems and 87 of Them are Side Effects

Blog Summary

When I was first diagnosed about 5 years ago, I was prescribed Rebif, which is a subcutaneous injection, injected 3 times a week.   Now, as if being suddenly diagnosed out of the blue at 22 years old again, I’m losing feeling in my hands, feeling like I'd lost everything I worked for previously. I now had to comprehend injecting myself 3 times a week all over again with what felt like super strong acid...

Diet Matters… and It Matters Now

Blog Summary

Greetings from ECTRIMS, the 34th Congress of the European Committee for Treatment and Research in MS. This is a lion of a meeting–the world’s largest gathering of researchers dedicated to MS. One thing I have noticed is how close MS researchers are getting to the real concerns of people affected by this disease. People with MS have been asking for years about diet–is there a diet that works for MS? Does what you eat matter? The work I’ve seen thus far is beginning to answer these questions (links to the scientific summaries, or abstracts, are provided below)...

Imaginary Pain

Blog Summary

The buzzing throughout my arms, hands, legs and feet had not let up for 3 full days. My annual checkup with my neurologist was just a day away, so I figured, what better timing? I practically danced into the office and was so excited to get some answers about this newfound pain. ​ Enter the man of the hour, and come to find out, it’s… all… in my head? Excuse me?...

If That Day Comes

Blog Summary

Life is tough. You get thrown curve ball after curve ball, and when you first start to play the game, you might get a black eye, a broken bone or knocked down. You get so frustrated because you just can't play like everyone else. Then one day, you dodge the ball. You catch it and throw it right back. Even if you do it your own way, you manage to play...

Helping Others to Understand

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“I’m exhausted.”   “Oh, me too! I know exactly how you feel! I went to bed really late and haven’t had my coffee yet!”...

Rise Up

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Resilience is the capacity to recover from difficulties and finding your strength within. Where do I begin? I’m 39 years old and have been through my share of difficulties. If I’ve learned anything, it’s that no matter what happens, you have to get back up and fight all the curve balls that this life throws you...

Life as We Know It

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I recently walked our two boys to town to get pizza, and I ran into another mother from the neighborhood. She was alone and bringing pizza home for her kids because she and her husband were going out for a much-needed date night.     "It's so important to make time to do that, you know?" she said to me, looking for relatability as I tried to wrestle a handful of napkins from my three-year-old before he tore them into confetti in the restaurant...

Is This MS?

Blog Summary

There was one thing to always look forward to on sick days when I was a child, other than staying home from school. It was watching The Price is Right. A box of Kleenex, some cough medicine, plain toast and that beloved game show were sick day staples. I’m not even sure why I enjoyed the show so much as a kid—I had no real sense of money and the numbers that the contestants shouted out just seemed arbitrary. I’d still play along, though...

You Are Not Alone: MS and Incontinence

Blog Summary

Because MS affects the central nervous system, it’s difficult to predict what symptoms each person will have. MS can cause complications with vision, muscle control, balance and other basic functions. One of the most common, and to be honest, often embarrassing symptoms is incontinence...

MS & Movement

Blog Summary

One of the things I love about attending the Annual Meeting of the Consortium of MS Centers is how many studies focus on pinpointing problems in the daily lives of people with MS and how to find solutions. This is the point of rehabilitation–to restore or maintain function as much as possible. One problem that is being investigated is sedentary behavior, also called “sitting time.” Researchers from the University of Alabama at Birmingham and colleagues around the country administered a physical activity questionnaire to more than 6,000 people with MS...