Most of us with multiple sclerosis are heat intolerant to the point of being unable to function outside during peak summer temperatures. When I asked people with MS on my blog what their MS temperature “limits” were, I was surprised that many people came back with answers lower than I would have expected – most said that 80 degrees was pretty much their cutoff for comfort and that 55- to 70-degree weather was really ideal.However, it got even more interesting when several people said that while hot temperatures were not good, the cold wasn't so great for them, either.
Many people wrote in to complain of increased spasticity in the cold weather. Readers mentioned that their limbs "felt like wood" or that their joints ached during lower temperatures. A couple of people also mentioned that the MS “hug” could be intolerable in the cold. (The MS hug is the gripping feeling around the torso that is caused by a lesion in the spinal cord that results in spasms in the tiny muscles between the ribs.)
I also know that some people living with MS tend to feel more fatigued in winter months. This could be an indirect result of coping with some of the symptoms mentioned above. It could also be that the shorter days and limited sunlight are exacerbating depression, which can be a symptom of MS.
New data is emerging all the time on the role of vitamin Din MS. Experts are fairly confident that low vitamin D has a role in developing MS, but now it is really looking like vitamin D levels have an impact on relapses and disease progression. It has been well-established that vitamin D levels in people are lower in winter months due to less exposure to sunlight (which is necessary for the body to produce vitamin D). Perhaps we feel our symptoms more acutely when our vitamin D reserves are at their winter lows, although this hasn’t been confirmed yet by scientific studies.
However, the effects of cold on MS symptoms have not been studied extensively. I was able to find one study that compared people with MS in the same four-week inpatient therapy program held in two different locations: Spain (warm) and Norway (cold). After therapy, the average walking distance had increased more in Spain (70 meters, as opposed to 49 meters in Norway) and participants also reported less exertion after walking in Spain than they did in Norway.*
I've put together a few tips below to help you enjoy the colder months if you find that you are bothered by frigid temperatures. Please add your own stories and tips in the comments section.
Soak up the sunshine. As much as you can stand to be outside during the warmest part of a sunny winter day, do it (within reason). Help your body produce vitamin D. Even better, get a little exercise outside while you are at it.
Don't overdo the heat inside. I tend to get a little dramatic when I get too cold and, as a result I take really hot baths or showers. Recently, I got dangerously dizzy from my hot shower. Remember, extreme heat is not our friend, either.
Warm yourself from the inside. Try drinking a hot beverage to take the chill off and warm your core faster.
Like many other situations that we must navigate through with MS, a little strategic planning about winter activities can help you have a little control over symptoms. Really put some thought into what you enjoy doing in the winter, take a couple more precautions and get the most out of the cold months.
*It should be noted that the people in this study were not heat-intolerant.